An intervention to reduce psychosocial and  biological indicators of stress in African American lupus patients: The balancing lupus experiences with stress strategies study

Williams, Edith M.; Penfield, Megan; Kamen, Diane L.; Oates, Jim C

doi:10.4236/ojpm.2014.41005

Cited by 41 publications

(43 citation statements)

References 43 publications

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“…83–87 The follow-up reported varied from 6 weeks to 6 months. The Chronic Disease Self-Management Program (CDSMP) was the mode of self-management education/ implementation reported by each study; however, some studies also used electronic administrative records and disease activity data from medical histories, physical examination, phlebotomy and urine collection to assess changes 84…”

Section: Resultsmentioning

confidence: 99%

I too, am America: a review of research on systemic lupus erythematosus in African-Americans

Williams¹,

Bruner

Adkins

et al. 2016

Lupus Sci Med

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Systemic lupus erythematosus (SLE) is a multi-organ autoimmune disorder that can cause significant morbidity and mortality. A large body of evidence has shown that African-Americans experience the disease more severely than other racial-ethnic groups. Relevant literature for the years 2000 to August 2015 were obtained from systematic searches of PubMed, Scopus, and the EBSCOHost platform that includes MEDLINE, CINAHL, etc. to evaluate research focused on SLE in African-Americans. Thirty-six of the 1502 articles were classified according to their level of evidence. The systematic review of the literature reported a wide range of adverse outcomes in African-American SLE patients and risk factors observed in other mono and multi-ethnic investigations. Studies limited to African-Americans with SLE identified novel methods for more precise ascertainment of risk and observed novel findings that hadn't been previously reported in African-Americans with SLE. Both environmental and genetic studies included in this review have highlighted unique African-American populations in an attempt to isolate risk attributable to African ancestry and observed increased genetic influence on overall disease in this cohort. The review also revealed emerging research in areas of quality of life, race-tailored interventions, and self-management. This review reemphasizes the importance of additional studies to better elucidate the natural history of SLE in African-Americans and optimize therapeutic strategies for those who are identified as being at high risk.

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Section: Resultsmentioning

confidence: 99%

I too, am America: a review of research on systemic lupus erythematosus in African-Americans

Williams¹,

Bruner

Adkins

et al. 2016

Lupus Sci Med

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“…11,101–114 Evidence-based self-management interventions designed to enhance social support and provide health education, among patients with lupus, have reduced pain, improved function and delayed disability. 11,101,103–115 Although there is no generally accepted self-management program available for SLE, 58 2 programs that have been shown to be successful in improving conditions in patients with arthritis are the Arthritis Self-Management Program and the generic Chronic Disease Self-Management Program. Each program incorporates 6 weeks of peer-led sessions ranging in disease-specific and more general self-help content.…”

Section: Introductionmentioning

confidence: 99%

Effective Self-Management Interventions for Patients With Lupus: Potential Impact of Peer Mentoring

Williams

Egede

Faith

et al. 2017

The American Journal of the Medical Sciences

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Systemic lupus erythematosus (SLE) is associated with significant mortality, morbidity and cost for the individual patient and society. In the United States, African Americans (AAs) have 3–4 times greater prevalence of lupus, risk of developing lupus at an earlier age and lupus-related disease activity, organ damage and mortality compared with whites. Evidence-based self-management interventions that incorporate both social support and health education have reduced pain, improved function and delayed disability among patients with lupus. However, AAs and women are still disproportionately affected by lupus. This article presents the argument that peer mentoring may be an especially effective intervention approach for AA women with SLE. SLE peers with a track record of success in lupus management and have a personal perspective that clinicians often lack. This commonality and credibility can establish trust, increase communication and, in turn, decrease disparities in healthcare outcomes.

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“…Arthritis self-management education delivered by small-group, home study, computer, or internet modalities have demonstrated significant improvements in health distress, self-reported global health, and activity limitation, with trends toward improvement in self-efficacy and mental stress management [20,[36][37][38][39][40][41][42][43][44][45]. However, African Americans and women are still disproportionately impacted by lupus [46][47][48][49][50][51][52].…”

Section: Discussionmentioning

confidence: 99%

If You Dont Put it in Your Mind, then it Dont Matter: A Phenomenological Study of Coping Self-Efficacy in African American Women Diagnosed with Lupus

M¹,

Wooten²,

D³

et al. 2018

Divers Equal Health Care

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Key Points• Systemic lupus erythematosus is a chronic autoimmune inflammatory disease treated through complex lifestyle and medication regimens, however it has no cure.• Lupus disproportionately impacts women and African Americans in prevalence, morbidity, and mortality.• Evidence based treatment and behavioral programs have been used to help lupus patients, but African American women have been underrepresented in such examinations and are less responsive to those programs when included.• Herein interviews were conducted to explore the lived experiences and perceptions of coping self-efficacy among African American women diagnosed with lupus.• Six major themes emerged including self-awareness, religion and spirituality, a sense of connectedness, stigma, empowerment, and peer perceptions.Findings can be applied to care and practice in order to better tailor such endeavors to the specific needs of this demographic group in order to address the ongoing health disparity. ABSTRACTLupus is a chronic debilitating rheumatic autoimmune disease that disproportionately affects African American women. A phenomenological approach was used to conduct confidential semi-structured qualitative interviews to explore "lived experiences" of coping and self-efficacy among 10 African American women diagnosed with lupus. Six major themes identified included self-awareness, religion and spirituality, a sense of connectedness, stigma, empowerment, and peer perceptions. These themes highlighted human agency and coping self-efficacy exhibited by African American women that facilitate chronic disease management and self-care. Perceptions of coping self-efficacy varied and the women's "use of self" was instrumental to their individualized way of coping with their lupus diagnosis. Study findings increase cultural awareness, understanding, and potentially empathy from providers, employers/colleagues, and family members about African American women's experiences of living with lupus.

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An intervention to reduce psychosocial and biological indicators of stress in African American lupus patients: The balancing lupus experiences with stress strategies study

Cited by 41 publications

References 43 publications

I too, am America: a review of research on systemic lupus erythematosus in African-Americans

I too, am America: a review of research on systemic lupus erythematosus in African-Americans

Effective Self-Management Interventions for Patients With Lupus: Potential Impact of Peer Mentoring

If You Dont Put it in Your Mind, then it Dont Matter: A Phenomenological Study of Coping Self-Efficacy in African American Women Diagnosed with Lupus

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