An Online Program for Caregivers of Persons Living With Dementia: Lessons Learned

Kovaleva, Mariya; Blevins, Lindsey; Griffiths, Patricia; Hepburn, Kenneth

doi:10.1177/0733464817705958

Cited by 41 publications

(87 citation statements)

References 59 publications

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“…We included 40 articles [ 22 - 61 ] addressing 31 different interventions. There were 9 RCTs [ 22 - 30 ] ( Multimedia Appendix 2 ), 7 quasi-experimental studies [ 31 - 37 ] ( Multimedia Appendix 3 ), 4 qualitative studies [ 38 - 41 ] ( Multimedia Appendix 4 ), and 20 studies with mixed or other methods [ 42 - 61 ] ( Multimedia Appendix 5 ). All statistics in the multimedia appendices are reported as per the original articles.…”

Section: Resultsmentioning

confidence: 99%

“…A wide range of validated and nonvalidated rating scales were used to assess the impact of the interventions. Qualitative results mainly focused on usability of the interventions and included observation of use [ 39 - 41 , 44 , 49 ], free-text surveys [ 38 , 41 , 49 , 51 , 55 , 61 ], interviews [ 38 - 41 , 46 , 47 , 47 , 53 , 54 , 59 , 60 ], and focus groups [ 42 , 45 , 56 ].…”

Section: Resultsmentioning

confidence: 99%

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Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review

Hopwood¹,

Walker²,

McDonagh³

et al. 2018

J Med Internet Res

209

224

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BackgroundCaring for someone with dementia is one of the most challenging caring roles. The need for support for family caregivers has been recognized for some time but is often still lacking. With an aging population, demand on health and social care services is growing, and the population is increasingly looking to the internet for information and support.ObjectiveIn this review, we aimed to (1) identify the key components of existing internet-based interventions designed to support family caregivers of people with dementia, (2) develop an understanding of which components are most valued by caregivers, and (3) consider the evidence of effectiveness of internet-based interventions designed to support family caregivers of people with dementia.MethodsWe conducted a systematic search of online databases in April 2018. We searched reference lists and tracked citations. All study designs were included. We adopted a narrative synthesis approach with thematic analysis and tabulation as tools.ResultsWe identified 2325 studies, of which we included 40. The interventions varied in the number and types of components, duration and dose, and outcomes used to measure effectiveness. The interventions focused on (1) contact with health or social care providers, (2) peer interaction, (3) provision of information, (4) decision support, and (5) psychological support. The overall quality of the studies was low, making interpretation and generalizability of the effectiveness findings difficult. However, most studies suggested that interventions may be beneficial to family caregiver well-being, including positive impacts on depression, anxiety, and burden. Particular benefit came from psychological support provided online, where several small randomized controlled trials suggested improvements in caregiver mental health. Provision of information online was most beneficial when tailored specifically for the individual and used as part of a multicomponent intervention. Peer support provided in online groups was appreciated by most participants and showed positive effects on stress. Finally, online contact with a professional was appreciated by caregivers, who valued easy access to personalized practical advice and emotional support, leading to a reduction in burden and strain.ConclusionsAlthough mixed, the results indicate a positive response for the use of internet-based interventions by caregivers. More high-quality studies are required to identify the effectiveness of internet interventions aimed at supporting family caregivers, with particular focus on meeting the needs of caregivers during the different stages of dementia.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review

Hopwood¹,

Walker²,

McDonagh³

et al. 2018

J Med Internet Res

209

224

View full text Add to dashboard Cite

show abstract

“…Based on pilot results of decreased caregiver burden, anxiety, depressive symptoms, and distress due to their persons’ behavioral and psychological symptoms of dementia (BPSD), and participants’ endorsement of the feasibility and acceptability of Tele-Savvy (Griffiths, Whitney, Kovaleva, & Hepburn, 2016; Kovaleva, Blevins, Griffiths, & Hepburn, 2017), we received support to conduct a large-scale randomized controlled trial (RCT) to test the efficacy of Tele-Savvy (R01AG054079; the clinical trials registration number is NCT03033875). This paper describes the design of the trial currently underway.…”

Section: Introductionmentioning

confidence: 99%

“…To that end, the SCP structure was converted into a 43-day synchronous and asynchronous on-line program. Tele-Savvy combines seven weekly 75-minute group videoconferences interspersed with daily brief (8–20 minute) email-delivered “video lessons” (Griffiths et al, 2016; Kovaleva et al, 2017). Tele-Savvy provides virtual access to SCP’s curriculum and learning objectives by engaging facilitators and caregivers through digital means.…”

Section: Introductionmentioning

confidence: 99%

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Testing Tele‐Savvy: Protocol for a randomized controlled trial

Kovaleva

Bilsborough

Griffiths

et al. 2018

Research in Nursing & Health

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By 2050, almost 16 million Americans may live with dementia and will rely predominantly on informal caregivers for support. In providing this support, caregivers frequently suffer a wide range of adverse consequences. Although established psychoeducation programs benefit caregivers, attending in-person programs is challenging for caregivers who must find time, transportation, and substitute care, all of which come with expenses. To address this challenge, the Savvy Caregiver Program, an evidence-based psychoeducation program with demonstrated effectiveness for caregiving and disease-related outcomes, was transformed into an on-line program, Tele-Savvy. This article describes the rationale for and design of a prospective longitudinal randomized controlled trial (n=270), currently underway. The trial aims to establish Tele-Savvy’s efficacy in (i) reducing the negative effects of caregiving on caregivers; (ii) promoting care recipients’ quality of life; (iii) improving caregiver mastery; and (iv) to explore Tele-Savvy’s efficacy among caregivers of different races/ethnicities. The mediating role of mastery on Aims 1 & 2 outcomes will be assessed. Participants are randomized to the active condition (immediate Tele-Savvy participation), attention control, or usual care. Participants in the two latter conditions complete Tele-Savvy six months post-baseline. Multilevel mixed effects models will be used to examine changes in outcomes and model group by time interactions (months since baseline). The exploratory aim will be addressed using analysis of covariance and qualitatively. This trial’s results may be used by healthcare and community organizations to implement Tele-Savvy into dementia care, increasing caregivers’ access to this evidence-based intervention.

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In-Home Video Telehealth for Dementia Management: Implications for Rehabilitation

2019

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An Online Program for Caregivers of Persons Living With Dementia: Lessons Learned

Cited by 41 publications

References 59 publications

Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review

Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review

Testing Tele‐Savvy: Protocol for a randomized controlled trial

In-Home Video Telehealth for Dementia Management: Implications for Rehabilitation

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