An online Sexual Health and Rehabilitation eClinic (TrueNTH SHAReClinic) for prostate cancer patients: a feasibility study

Matthew, Andrew; Trachtenberg, Lianne; Yang, Zhiyong; Robinson, John W.; Petrella, Anika; McLeod, Deborah; Walker, Lauren M.; Wassersug, Richard J.; Elliott, Stacy; Ellis, Janet; Jamnicky, Leah; Fleshner, Neil; Finelli, Antonio; Singal, Rajiv K.; Brock, Gerald; Jarvi, Keith; Bender, Jackie

doi:10.1007/s00520-021-06510-4

Cited by 10 publications

(3 citation statements)

References 41 publications

(52 reference statements)

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“…32 The intervention was found to be feasible, with the majority of participants completing the entire program and reporting high levels of satisfaction. 33 These findings suggest that with appropriate education and support, survivors can be equipped to engage in self-management strategies.…”

Section: Cuaj -Original Researchmentioning

confidence: 98%

Predictors of prostate cancer survivors’ engagement in self-management behaviors

Giannopoulos

Catton²,

Giuliani³

et al. 2022

CUAJ

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Introduction: Prostate cancer survivors experience a multitude of late treatment effects, resulting in greater unmet needs, elevated symptom burden, and reduced quality of life. Survivors can engage in appropriate self-management strategies post-treatment to help reduce the symptom burden. The objectives of this study were to: 1) explore the unmet needs of prostate cancer survivors using the validated Cancer Survivor Unmet Needs instrument; 2) explore predictors of high unmet needs; and 3) explore prostate cancer survivors’ willingness to engage in self-management behaviors. Methods: Survivors were recruited from a prostate clinic and a cross-sectional survey design was employed. Inclusion criteria was having completed treatment two years prior. Descriptive statistics were used to summarize participant characteristics. Univariate and multivariate analyses were done to determine predictors of unmet needs and readiness to engage. Results: A total of 206 survivors participated in the study, with a mean age of 71 years. Most participants were university/college-educated (n=123, 61%) and had an annual household income of >$99 999 (n=74, 38%). Participants reported erectile dysfunction (81%) and nocturia (81%) as the most frequently experienced symptoms with the greatest symptom severity (x ̅=5.8 and x ̅=4.5, respectively). More accessible parking was the greatest unmet need in the quality-of-life domain (n=34/57, 60%). Overall, supportive care unmet needs were predicted by symptom severity on both univariate (p<0.001) and multivariate analyses (odds ratio [OR] 1.81, 95% confidence interval [CI] 0.92–1.00, p<0.001). Readiness to engage in self-management was predicted by an income of less than $49 000 (OR 3.99, 95% CI 1.71–9.35, p=0.0014). Conclusions: Income was the most significant predictor of readiness to engage in self-management. Consideration should be made to establishing no-cost and no-barrier education programs to educate survivors about how to engage in symptom self-management.

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Section: Cuaj -Original Researchmentioning

confidence: 98%

Predictors of prostate cancer survivors’ engagement in self-management behaviors

Giannopoulos

Catton²,

Giuliani³

et al. 2022

CUAJ

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“…Digital health interventions have provided an added opportunity to advance sustainable cancer survivorship care 9 . Nurse-led digital health innovations have shown to target these gaps in unmet survivorship care needs by broadening the available skilled provider pool beyond specialists for patient-facing care (e.g., symptom monitoring, management, and psychosocial support [10][11][12][13] ). However, equitable access to care continues to be an issue within both conventional specialist-led and virtual care services, as structural barriers (e.g., socioeconomic status, immigration status, neighbourhood disadvantage, geographic location) can prevent patients from accessing timely care 14,15 .…”

Section: Introductionmentioning

confidence: 99%

Nurse-led virtual prostate cancer clinic for survivorship care: Qualitative study of patient experiences and needs

Xiong,

Young,

Pfisterer

et al. 2023

Preprint

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Background: Prostate cancer survivors (PCa) can experience a range of unmet needs over a long horizon of survivorship. Thin healthcare services and specialist-led follow-up care models may not adequately address these needs. Digitally mediated nurse-led virtual care models may help support PCa survivors who have unmet survivorship needs in current healthcare systems. Methods: This qualitative descriptive study explores 10 patients’ experiences with follow-up and virtual care, informing the design of a nurse-led virtual clinic (the “Ned Nurse” Clinic) to provide integrated healthcare services. Results: Patient follow-up care experiences included uncertainty regarding care gaps despite new telemedicine modalities and the need for personalized wellbeing support. Patient recommendations for virtual care related to improving integration of existing care connections, supporting patient self-management, and addressing accessibility. Patients anticipate nurse-led PCa virtual care will: (1) clarify patient and provider roles and responsibilities; (2) improve care ease and access to care; (3) enhance mental wellbeing, and (4) reinforce continuity of care. Conclusion: Patients are keen to benefit from the flexibility and increased resources that digital health may provide, but remain concerned about digital literacy and service changes to support these innovations. Future work should evaluate the efficacy of digitally mediated nurse-led virtual care models to support PCa survivorship.

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“…The advancement of digital health innovations (DHI) has provided an opportunity to improve sustainable cancer survivorship care 20 . Nurse-led DHIs have been developed for PCa survivorship self-management, symptom telemonitoring, and psychosocial care [21][22][23][24] . These solutions have shown e cacy in educational, informational and psychosocial aspects by allowing users to access more holistic support.…”

mentioning

confidence: 99%

Nurse-led virtual prostate cancer clinic for survivorship care: Qualitative study of healthcare professional experiences and needs

Young,

Xiong,

et al. 2023

Preprint

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Background: Approximately one in eight Canadian males will be diagnosed with prostate cancer. Longer survivorship horizons and resource constraints are leading to increasing strain on current models of specialist-led follow-up care delivery. Nurse-led digital health innovations can reduce demand on specialists if co-designed with health care professionals (HCPs). Methods: Using human-centred design, the purpose of this exploratory qualitative study with ten HCPs was to characterize their experiences with prostate cancer (PCa) follow-up and virtual care to optimally situate a nurse-led clinic within this ecosystem. Results: HCPs highlight how current follow-up care can be fragmented, so the scope of a nurse-led clinic should focus on the management of care with referral as needed. Despite an ambivalence for telemedicine arising from its implementation during the COVID-19 pandemic, HCPs see potential for improved care through digital health but note several concerns. Burn-out, weakened patient-provider relationships, and creeping scope of responsibilities were identified as pain points. We provide a health ecosystem readiness checklist to improve odds of acceptability, appropriateness, and feasibility synthesized from six HCP-defined facilitators mapped onto Proctor’s outcomes. Facilitators include: functionality testing (acceptability), technical support and usability (adoption), expectation management (appropriateness), resource allocation (cost), staff readiness (feasibility), and staff training (penetration). Conclusion: Intentional and empathetic co-design with HCPs during the development of digital health innovations, such as digital therapeutics, is necessary to ensure that HCPs can benefit from, instead of being burdened from, the rising tide of digital health in their clinical responsibilities.

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An online Sexual Health and Rehabilitation eClinic (TrueNTH SHAReClinic) for prostate cancer patients: a feasibility study

Cited by 10 publications

References 41 publications

Predictors of prostate cancer survivors’ engagement in self-management behaviors

Predictors of prostate cancer survivors’ engagement in self-management behaviors

Nurse-led virtual prostate cancer clinic for survivorship care: Qualitative study of patient experiences and needs

Nurse-led virtual prostate cancer clinic for survivorship care: Qualitative study of healthcare professional experiences and needs

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