Analysing the role of support wear, clothing and accessories in maintaining ostomates' quality of life

Johnson, Debbie; Readding, Linda; Ryan, Claire

doi:10.12968/gasn.2015.13.7.23

Cited by 9 publications

(8 citation statements)

References 45 publications

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“…There is a range of stoma accessories available, including support garments which include belts, panty girdles or boxer shorts made of elastic, Lycra, cotton or microfibre materials 19. An article about stoma support wear suggests that support garments may be used for physical exercise, underclothing, and for intimacy and sexual activity to provide discretion and stoma protection 20. Yet very little is known about how frequently and for what purposes these garments are worn by this patient group.…”

Section: Introductionmentioning

confidence: 99%

Experiences of support garments following bowel stoma formation: analysis of free-text responses in a cross-sectional survey

Hubbard

Taylor

Munro

et al. 2019

BMJ Open Gastroenterol

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AimTo explore the experiences of support garments when adjusting to bodily change following bowel stoma formation.DesignThematic analyses of free-text responses in a cross-sectional survey of the stoma population in 2018.MethodsFree-text responses were invited so that respondents could describe their experiences in more detail. A process of induction was chosen to allow for themes to emerge directly from the data. The concept ‘embodiment’ was used as a theoretical framework during interpretation.Results1425 people with a bowel stoma responded to the survey, of whom 598 provided free-text responses. Four themes about experiences of support garments in the context of changed bodily experiences following stoma formation were identified: body complications, which is about experiences of using support garments to prevent or self-manage parastomal hernia; body appearance, which is about hiding the stoma and stoma appliance; body function, which is about managing stoma appliance complications; and body sensation, which is mainly about negative experiences of ill-fitting garments.ConclusionSupport garments can be understood as items that are used by people during an ongoing process of adjusting to bodily changes following stoma formation and as part of an ongoing process of reconstructing new embodied selves.ImpactThis is the first study to explore people’s experiences of support garments following bowel stoma formation. Support garments are used in the self-management of body complications, appearance, function and sensations. Stoma nurses may draw on the findings of this study to advise patients about the benefits of garments for adjusting to bodily change, and garment suppliers should address people’s negative experiences by improving garments.

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Section: Introductionmentioning

confidence: 99%

Experiences of support garments following bowel stoma formation: analysis of free-text responses in a cross-sectional survey

Hubbard

Taylor

Munro

et al. 2019

BMJ Open Gastroenterol

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“…Patients not reporting use of support garments were more likely not to meet recommendations. We have no data to indicate whether patients used support garment as a prerequisite for being physically active or if patients who were already physically active used garments for comfort and security [41][42][43]. Garments may provide patients with control over body function and appearance [36,42,43], prevent or contain leaks [42,43], and thus directly and indirectly be of help to patients doing physical activity.…”

Section: Discussionmentioning

confidence: 99%

Physical activity after colorectal cancer surgery—a cross sectional study of patients with a long-term stoma

Krogsgaard

Andersen

Danielsen

et al. 2021

Support Care Cancer

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Physical activity is recommended to cancer survivors by the World Health Organisation (WHO) and is associated with improved survival after colorectal cancer. It remains unclear whether having a stoma is a barrier for an active lifestyle. We examined the level of physical activity and explored factors impacting physical activity in survivors with a stoma. MethodsA total of 1265 (65%) patients in the Danish Stoma Database completed a multidimensional survey.Physical activity of moderate-and vigorous-intensity was assessed using two validated questions. Based on WHO guidelines, physical activity was categorised into 'Meeting' or 'Not Meeting' recommendations.Multivariate regression analysis, adjusting for potential confounders, provided odds ratio (OR) and 95% confidence intervals (CI) for factors' association with 'Not Meeting' guideline recommendations. ResultsIn total, 571 patients with colorectal cancer reported on physical activity at a median of 4.3 years (interquartile range 3.1-5.8) after stoma surgery. Two hundred ninety-three patients (51%) were 'Meeting recommendations' and 63% of them were 'Highly active'. Two hundred seventy-eight were 'Not meeting' recommendations (49%).Of the factors analysed, patients without support garment were more likely (OR 1.72 [95% CI 1.16; 2.54] not to meet guideline recommendations. We found no association between stoma type, surgical procedure, parastomal bulging and 'problematic stoma' and level of physical activity, respectively. ConclusionIn this large sample of survivors with a stoma half of patients met or exceeded guideline recommendations.Of patients not meeting recommendations some could potentially meet the recommendations by modest increases in either moderate or vigorous activity.

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“…Wearing a support garment can contribute to a feeling of safety, looking normal (Hubbard et al, 2019 ; Johnson et al, 2015 ) and conceal the parastomal bulge (Hubbard et al, 2019 ; Krogsgaard et al, 2017a ). Physical symptoms such as pain (Krogsgaard et al, 2017b ), a bearing-down or falling out sensation (Hubbard et al, 2019 ; Krogsgaard et al, 2017a ) can be relieved.…”

Section: Introductionmentioning

confidence: 99%

Assessment of a support garment in parastomal bulging from a patient perspective: a qualitative study

Borglit

Krogsgaard

Theisen

et al. 2022

International Journal of Qualitative Studies on Health and Well

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Aim To investigate patients’ experiences of the assessment of support garments in relation to a parastomal bulge. Methods We conducted a qualitative study with semi-structured interviews preceded by field observations. The 11 in-dept interviews were analysed using interpretative phenomenological analysis. Results In the assessment process patients lacked information from professionals on the advantages, disadvantages as well as criteria for choosing between garments. Garments had to fit patients’ needs and personal preferences; being comfortable, flexible and user-friendly. The garment created new possibilities and challenges; well-assessed garments reduced symptoms while poorly assessed worsened or induced symptoms and ended up unworn. When comorbidities were not accounted for, garments were unmanageable to patients. Patients needed guidance on how to apply and use the garment. Lack of hands-on-guidance left patients confused and helpless with unworn garments. Re-assessment of a garment before it could be worn was time consuming, stressful and required patients’ physical and mental resources. Conclusion Exploring patients’ expectations, symptoms, needs and comorbidity was vital for patients’ subsequent use and benefit of garments. Tailor-made information, hands-on-guidance and professional assistance are important in the assessment process. Interventions to support a patient centred, individual and systematic approach is warranted.

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Analysing the role of support wear, clothing and accessories in maintaining ostomates' quality of life

Cited by 9 publications

References 45 publications

Experiences of support garments following bowel stoma formation: analysis of free-text responses in a cross-sectional survey

Experiences of support garments following bowel stoma formation: analysis of free-text responses in a cross-sectional survey

Physical activity after colorectal cancer surgery—a cross sectional study of patients with a long-term stoma

Assessment of a support garment in parastomal bulging from a patient perspective: a qualitative study

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