Anticipatory grief in the context of dementia caregiving.

Holley, Caitlin

doi:10.18297/etd/625

Cited by 6 publications

(9 citation statements)

References 96 publications

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“…15,29 The interaction of factors, including grief, over the caregiving period has not generally been comprehensively addressed. 27,30 The study described in this article is exploratory and seeks to address the gap identified in the literature through focusing on the influence of grief and other aspects of the long-term dementia caregiving experience.…”

Section: Introductionmentioning

confidence: 99%

An Exploratory Study of Grief and Health-Related Quality of Life for Caregivers of People With Dementia

Shuter

Beattie

Edwards

2013

Am J Alzheimers Dis Other Demen

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The aim of this qualitative study was to explore key positive and negative factors that impact on grief resolution and health outcomes of caregivers who were caring, or had cared, for a family member with dementia who had died. The study was a scoping study and involved face-to-face interviews with these family caregivers (N = 13). Results indicated a complex interaction of issues (many unique to dementia caregiving) which in different combinations acted as protective or risk factors for caregiver outcomes. Interaction of individual characteristics, role appraisal, value of intrinsic and extrinsic resources, and experiences with health professionals during the caregiving period and around the death of their relative were shown to have the most influence on caregiver outcomes. Psychological resilience and satisfaction with caregiving were protective against negative outcomes while unresolved grief was a risk factor. These findings highlight the potential benefits of multicomponent, holistic dementia caregiver interventions.

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Section: Introductionmentioning

confidence: 99%

An Exploratory Study of Grief and Health-Related Quality of Life for Caregivers of People With Dementia

Shuter

Beattie

Edwards

2013

Am J Alzheimers Dis Other Demen

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“…26,45,49,131,145 The studies using anticipatory grief were mostly conducted with family members of patients with dementia ( N = 17) or cancer ( N = 15). Lastly, of the studies that used the term anticipatory grief, the Anticipatory Grief Scale was the most used measure (14 studies; 26,34,63,70,87,92,110,124,132,143,147,148 ). The Marwit-Meuser-Caregiver Grief Inventory 56,66,80,113,122,127,142 Marwit-Meuser-Caregiver Grief Inventory- Short Form 25,44,53,74 was used in 11 studies.…”

Section: Resultsmentioning

confidence: 99%

An examination and proposed definitions of family members’ grief prior to the death of individuals with a life-limiting illness: A systematic review

et al. 2022

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Background: Research has extensively examined family members’ grief prior to the death of an individual with a life-limiting illness but several inconsistencies in its conceptualization of related constructs, yet significant conceptualization issues exist. Aim: This study aimed to identify and characterize studies published on family members grief before the death of an individual with a life-limiting illness, and propose definitions based on past studies in order to initiate conceptual clarity. Design: A mixed-method systematic review utilized six databases and was last conducted July 10, 2021. The search strategy was developed using Medical Subject Headings. This study was prospectively registered on PROSPERO (CRD42020166254). Results: One hundred thirty-four full-text articles met inclusion criteria. This review revealed across studies a wide variation in terminology, conceptualization, and characterization of grief before the death. More than 18 terms and 30 definitions have been used. In many cases, the same term (e.g. anticipatory grief) was defined differently across studies. Conclusions: We found grief occurring before the death of a person with a life-limiting illness, which we termed pre-death grief, is comprised of two distinct constructs: anticipatory grief and illness-related grief. Anticipatory grief is future-oriented and is characterized by separation distress and worry about a future without the person with the life-limiting illness being physically present. Illness-related grief is present-oriented and is characterized by grief over current and ongoing losses experienced during the illness trajectory. These definitions provide the field with uniform constructs to advance the study of grief before the death of an individual with a life-limiting illness.

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“…Likewise, the duration of the disease in absolute terms does not seem to influence the onset of symptoms of anticipatory grief. Despite this, Holley (2009) warns that the dementia process is 'special' because it is an 'accumulation of losses'. This accumulation, in relation to the grieving processes, makes it complicated.…”

Section: Discussionmentioning

confidence: 99%

“…There are studies in oncological processes and mourning where the losses refer to the sick person or to his relatives [19], giving rise to the concept of anticipatory grief. However, few studies refer to processes of caregivers of people with dementia, where the decline of people is episodic or progressive [20][21][22].…”

Section: Introductionmentioning

confidence: 99%

Alzheimer’s Disease Caregiver Characteristics and Their Relationship with Anticipatory Grief

Pérez-González

Vilajoana-Celaya

Guàrdia‐Olmos

2021

IJERPH

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In Alzheimer’s disease, two fundamental aspects become important for caregivers: ambiguity and ambivalence. Thus, anticipatory grief is considered an active psychological process that is very different from the mere anticipation of death. The present study aims to determine which characteristics of family caregivers of people with dementia, such as age, gender, educational level, relationship with the person with dementia, years with dementia or years as a caregiver, are related to the presence of anticipatory grief. A cross-sectional design was employed. The sample consisted of a total of 129 subjects who cared for a family member with dementia. A sociodemographic data sheet and a battery of tests measure the presence of anticipatory grief, caregiver burden and/or psychopathology. The results obtained allowed us to confirm some of the hypotheses regarding the anticipatory grief construct, the importance of the care time factor, in years and per day, as well as the relevance of the previous demographic and psychopathological profile (being female, spouse function and possible depressive symptomatology). Likewise, from the prediction analyzes performed, it seems that these variables can predict anticipatory grief. These results propose interesting opportunities to formulate care proposals to professionals and family caregivers in relation to care tasks and caregiver skills.

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Anticipatory grief in the context of dementia caregiving.

Cited by 6 publications

References 96 publications

An Exploratory Study of Grief and Health-Related Quality of Life for Caregivers of People With Dementia

An Exploratory Study of Grief and Health-Related Quality of Life for Caregivers of People With Dementia

An examination and proposed definitions of family members’ grief prior to the death of individuals with a life-limiting illness: A systematic review

Alzheimer’s Disease Caregiver Characteristics and Their Relationship with Anticipatory Grief

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