Anxiety and depression in adolescent cancer: Findings in patients and parents at the time of diagnosis

Allen, Ruth H.; Newman, Stanton; Souhami, R. L.

doi:10.1016/s0959-8049(97)00176-7

Cited by 115 publications

(99 citation statements)

References 19 publications

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“…This elevated rate was also surprising, as studies of anxiety rates among chronically ill children and adolescents tend to suggest that anxiety rates are comparable to rates among healthy population controls. This has been observed in cancer (64,65) and among adolescents with a variety of chronic illnesses (66). We wondered if the elevation in anxiety might be related to the interview.…”

Section: Discussionmentioning

confidence: 98%

“…We selected the BDI because it contains few somatic items, an important consideration when assessing psychological symptoms in chronically ill patients. The BDI has been used with adolescents with medical illnesses (25)(26)(27)(28). The instrument has been administered extensively and shown to have good reliability coefficients ranging from 0.73 to 0.92 (29).…”

Section: Measures Of Psychological Distressmentioning

confidence: 99%

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Psychological Distress and Adherence to the Medical Regimen Among Adolescent Renal Transplant Recipients

Penkower¹,

Dew²,

Ellis³

et al. 2003

American Journal of Transplantation

105

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This longitudinal pilot study of adolescent renal transplant recipients (a) describes the prevalence of psychological distress, (b) describes the prevalence of nonadherence, and (c) explores the association between the recipient's psychological distress and his/her subsequent medical adherence. Twenty-two adolescents, aged 13-18 years, completed two interviews that were separated by approximately 12 months. Psychological distress was assessed in three domains: symptoms of depression, anxiety, and anger. Adherence was assessed in three domains: medication taking, blood work, and clinic attendance. At the initial interview, 36.4% had symptoms of depression, 36.4% endorsed anxiety, and 18.2% endorsed excessive state anger. Non-adherence rates were 13.6% for medication, 22.7% for blood work, and 50% for missed clinic. At the second interview, nonadherence with medication remained the same and the other domains decreased. Our small pilot sample, however, limited our ability to detect statistically significant changes over time. Predictive analyses demonstrated that adolescents with excessive anger were at greater risk for subsequently missing medications than adolescents without excessive anger. These findings suggest that while symptoms of depression and anxiety are observed among some adolescents with renal transplants, only anger is associated with elevated risk for nonadherence with medication.

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Section: Discussionmentioning

confidence: 98%

Section: Measures Of Psychological Distressmentioning

confidence: 99%

Psychological Distress and Adherence to the Medical Regimen Among Adolescent Renal Transplant Recipients

Penkower¹,

Dew²,

Ellis³

et al. 2003

American Journal of Transplantation

105

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“…This finding somewhat contradict the conclusions of previous studies reporting gender differences. Typically, those studies have merely compared the scores of mothers with those of fathers, and often found that mothers report more distress than fathers do (e.g., [4,6]), although other times no such gender differences are found (e.g., [10,26]). Relying on the approach used in the present study, we may conclude that the experience of the child's illness often is as stressful for fathers as for mothers.…”

Section: Discussionmentioning

confidence: 99%

“…Elevated levels of anxiety and depression are found in parents close after the disclosure of diagnosis [4,5], and may not drop to normal until a few years after diagnosis [6]. Moreover, parental distress has been observed many years after successfully completed treatment [7,8].…”

mentioning

confidence: 99%

Parent distress in childhood cancer: A comparative evaluation of posttraumatic stress symptoms, depression and anxiety

Norberg¹,

Boman²

2008

Acta Oncologica

141

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“…Although most parents show remarkable resilience over time, for a subgroup of parents, levels of psychological distress remain high throughout the entire treatment period and thereafter [1][2][3][4][5]. Heightened levels of depression [6,7], anxiety [8][9][10][11], stress [10,12], a decreased quality of life [13], marital distress [14,15] and post-traumatic stress symptoms (e.g. [16][17][18]) have been reported in parents of pediatric cancer patients.…”

Section: Introductionmentioning

confidence: 99%

Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

et al. 2010

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Egeler, R. M. (2010). Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi-center study. Psycho-oncology, 19(4), 368-375. DOI: 10.1002/pon.1571 Copyright Other than for strictly personal use, it is not permitted to download or to forward/distribute the text or part of it without the consent of the author(s) and/or copyright holder(s), unless the work is under an open content license (like Creative Commons).Take-down policy If you believe that this document breaches copyright please contact us providing details, and we will remove access to the work immediately and investigate your claim.Downloaded from the University of Groningen/UMCG research database (Pure): http://www.rug.nl/research/portal. For technical reasons the number of authors shown on this cover page is limited to 10 maximum. AbstractObjectives: Diagnosis and treatment of childhood cancer are continuous stressors in the lives of the entire family involved. Disease-related tools for the assessment of parental stress and adaptation are scarce. For that reason, the Pediatric Inventory for Parents (PIP), a diseaserelated measure, was translated into Dutch and its psychometric qualities were determined to prove its value. Methods: The PIP and three other measures (State-Trait Anxiety Inventory, General Health Questionnaire and Parenting Stress Index, Short Form) were administered to 174 parents of 107 children diagnosed with cancer in three university medical centers in the Netherlands.Results: Internal consistency (Crohnbach's a 5 0.94 and 0.95) and test-retest reliability (Pearson's r between 0.67 and 0.87) of the Dutch PIP total scales are satisfactory. Validity was illustrated by a high correlation between PIP-scores and anxiety and general stress. Confirmatory factor analysis showed acceptable fit to the data for the original four-factor and the one-factor models; the four-factor model showed slightly better fit.Conclusion: The PIP can be used in clinical practice to assess disease-related parental stress. Further psychometric testing is highly recommended.

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Anxiety and depression in adolescent cancer: Findings in patients and parents at the time of diagnosis

Cited by 115 publications

References 19 publications

Psychological Distress and Adherence to the Medical Regimen Among Adolescent Renal Transplant Recipients

Psychological Distress and Adherence to the Medical Regimen Among Adolescent Renal Transplant Recipients

Parent distress in childhood cancer: A comparative evaluation of posttraumatic stress symptoms, depression and anxiety

Psychometric qualities of the Dutch version of the Pediatric Inventory for Parents (PIP): a multi‐center study

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