Aphasia blog talk: How does stroke and aphasia affect the carer and their relationship with the person with aphasia?

Abstract

Citation: Winkler, M., Bedford, V., Northcott, S. and Hilari, K. (2014). Aphasia blog talk:How does stroke and aphasia affect the carer and their relationship with the person with aphasia?. Aphasiology, doi: 10.1080Aphasiology, doi: 10. /02687038.2014 This is the unspecified version of the paper.This version of the publication may differ from the final published version. Permanent AbstractBackground: Carers of stroke survivors with aphasia are at risk of experiencing negative bio-

“Struggling to stay connected”: comparing the social relationships of healthy older people and people with stroke and aphasia

“…Further, other stroke studies have found that perceived functional support remains relatively stable across time post onset (King, ShadeZeldow, Carlson, Feldman, & Philip, 2002;Tsouna-Hadjis, Vemmos, Zakopoulos, & Stamatelopoulos, 2000). Thus despite the well-documented strains placed on intimate relationship following a stroke (Pallesen, 2014;Winkler, Bedford, Northcott, & Hilari, 2014) this construct may be relatively stable, which is the pattern found in the general population (Sarason et al, 1986). It has been hypothesised that perceived functional support may in fact reflect attachment style: high perceived support related to secure attachment; low perceived support related to anxious or avoidant attachment (Sarason et al, 1986).…”

‘Living with Aphasia the Best Way I Can': A Feasibility Study Exploring Solution-Focused Brief Therapy for People with Aphasia

“…The social consequences of aphasia can also be severe. The family unit is placed under strain [4,5]; people take part in fewer social activities [6], and are at risk of losing contact with friends and their wider social network [7,8]. Neglecting psychosocial well-being potentially has broader ramifications.…”

Social participation in working-age adults with aphasia: an updated systematic review

“…In addition, the contextual factors impacting on social participation were investigated. 29 . PWA experienced a higher degree of dependence and changes in the roles they played 29 .…”

“…In two studies with moderate and high levels of evidence respectively, the Social Integration subscale of the CIQ was used 20,21 , which indicated reduced social integration in working-age PWA, with a decrease in time spent on leisure activities 20 . The remaining two studies on moderate and low levels of evidence respectively, used the ICF to report on their findings 24,29 . Of the aspects investigated, restrictions in recreation and leisure activities were noted.…”

“…Attention was given to return to work 13,24,28,29 and the ability to participate in work activities 24,25 . Overall, the studies indicated a greatly reduced productivity level, with few working-age participants returning to paid employment.…”