Application of participation in clinical practice: Key issues

Velde, Dominique Van de; Coussens, Marieke; Baets, Stijn De; Sabbe, Lode; Vanderstraeten, Guy; Vlerick, Peter; Malderen, Lien Van; Gorus, Ellen; Vriendt, Patricia De

doi:10.2340/16501977-2363

Cited by 18 publications

(11 citation statements)

References 91 publications

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“…The importance of the patient's participation is also central in the International Classification of Functioning, Disability and Health's (ICF) biopsychosocial approach to rehabilitation 8 . This recognized approach includes the component ‘participation’ focusing on ‘the lived experience in the actual context in which people live’ 21 …”

Section: Introductionmentioning

confidence: 99%

Nursing staff facilitate patient participation by championing the patient's perspective: An action research study in spinal cord injury rehabilitation

Steensgaard

Kolbæk

Angel

2022

Health Expectations

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Introduction Persons with spinal cord injury have experienced a life‐changing event, and they need to engage in the rehabilitation process to adjust to their current situation and future living conditions. Due to the highly contextual and varying psychological and physical ability to participate from patient to patient during rehabilitation, this is difficult for the injured person and for health professionals to support. Therefore, the aim of the study was to develop and facilitate patient participation by engaging nursing staff and from this engagement in the process, disclose methods to support participation. Methods The processes conducted were based on an action research approach, from problem identification to the development, test and evaluation of four new nursing initiatives. The initiatives were developed by eight nursing staff members who participated actively as co‐researchers in a 2‐year study conducted at a Spinal Cord Injury Centre in Denmark from 2016 to 2018. Data evolved from workshops, transcriptions of meetings and written evaluations and was further analysed using Ricoeur's phenomenological‐hermeneutic approach. Results Action research processes facilitated the development of four communicative initiatives and a shift in the nursing staff's support of the patient. In a collaborative process, the nursing staff acted as participants in the patient's rehabilitation. Awareness of the patient's perspective facilitated a caring, attentive and engaged approach from the nursing staff, which promoted rehabilitation tailored to the individual. Conclusion Patient participation was enhanced when nursing staff actively participated in the development of initiatives and a culture supporting a person‐to‐person approach involving the patient and themselves as equal participants in the collaborative rehabilitation process. Patient or Public Contribution Eight nursing staff members from the rehabilitation centre participated throughout the study as co‐researchers. Patients participated in observations and as informants in interviews during the first phase to identify challenges to patient participation. Patients also participated in testing the nursing initiatives during the action phase (Phase 3). Furthermore, a former patient was a member of the advisory board.

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Section: Introductionmentioning

confidence: 99%

Nursing staff facilitate patient participation by championing the patient's perspective: An action research study in spinal cord injury rehabilitation

Steensgaard

Kolbæk

Angel

2022

Health Expectations

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“…The World Health Organization (1998) introduced empowerment as a strategy for health promotion, defined as ‘a process through which people gain greater control over decisions and actions affecting their health’ (p. 6). Note that the description of empowerment is closely linked to the concepts of shared decisions and participation in clinical practice (van de Velde et al, 2018). Researchers have often applied the concept of empowerment to older care receivers (e.g.…”

Section: Introductionmentioning

confidence: 99%

Giving voice to informal caregivers of community‐dwelling older adults: A systematic review of empowerment interventions

Raemdonck

Lambotte

Witte

et al. 2022

Health Social Care Comm

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Taking care for older adults can place informal caregivers at risk for developing health problems. Therefore, interventions aiming to empower informal caregivers have been developed. Empowerment refers to a health promotion process including strategies to improve informal caregivers' self‐care behaviours, stress‐management and caregiving skills. In literature, empowerment‐oriented interventions often target subsamples of informal caregivers defined through the care receiver's condition. These interventions, however, do not adequately capture the complexity of care needs and might even exclude informal caregivers taking care for older people without a specific diagnosis or with a subthreshold condition. Therefore, the aim of this systematic review is to provide an overview of the content and effectiveness of empowerment‐oriented interventions directed at informal caregivers of community‐dwelling older adults. Following the PRISMA guidelines, a systematic review was performed by searching the following databases: PubMed, PsycINFO, EMBASE and Web of Science. From a total of 6798 unique publications, 13 intervention studies, of which seven randomised controlled trials, were eligible for inclusion. According to the Mixed Methods Appraisal Tool, eight studies scored poor. The intervention studies under review represented different domains of empowerment, with cultivation of positive feelings being the most prevalent one. Social participation and physical health received little attention in interventions. Although no adverse intervention effects were observed, the studies reported mixed results with 57 positive and 47 neutral effects. The limited number and poor quality of studies emphasise the need for future research investigating the effectiveness of empowerment‐oriented interventions targeting informal caregivers of older adults.

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“…Historically, participation has been developed and used in the disability movement as a political term to describe human rights for non-discrimination (United Nations Convention on the Rights of Persons with Disabilities (CRPD), 2007). More recently, participation has been defined from an individual perspective, mostly seen through the International Classification of Functioning, Disability and Health (ICF) (World Health Organisation, 2001) definition: ‘involvement in a real life situation’ or a level of performance in activities (Velde et al, 2018). However, participation is more than the quantifiable performance of an activity (Martin Ginis et al, 2017), and includes agency, engagement, purpose, meaning and satisfaction and acquiring skills.…”

Section: Introductionmentioning

confidence: 99%

Familiarity and participation outside home for persons living with dementia

et al. 2021

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Familiarity is important for persons living with dementia who participate outside home. When familiarity is challenged, such participation may be difficult. This ethnographic study clarifies how familiarity is experienced by persons with dementia in performing activities and visiting places, and how familiarity contributes to maintaining participation outside home. Nine participants were interviewed in their home and while visiting familiar places. Data were content analysed using a constant comparative method. The findings suggest that persons with dementia experience familiarity as continuous and whole, through occurrences that support personal territories. Landmarks and objects enhance the experience of familiarity. Familiarity that is continuously challenged may render participation outside home fragile.

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Application of participation in clinical practice: Key issues

Cited by 18 publications

References 91 publications

Nursing staff facilitate patient participation by championing the patient's perspective: An action research study in spinal cord injury rehabilitation

Nursing staff facilitate patient participation by championing the patient's perspective: An action research study in spinal cord injury rehabilitation

Giving voice to informal caregivers of community‐dwelling older adults: A systematic review of empowerment interventions

Familiarity and participation outside home for persons living with dementia

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