Application of the Five Stages of Grief to Diabetic Limb Loss and Amputation

Spiess, Kerianne E.; McLemore, Anna; Zinyemba, Priscilla; Ortiz, Natalia; Meyr, Andrew J.

doi:10.1053/j.jfas.2014.06.016

Cited by 18 publications

(15 citation statements)

References 42 publications

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“…Some noted anger as the first emotion they feel when faced with daily difficulties, even in adulthood, suggesting that the process of grief may continue for those who have experienced childhood parental mental illness long into adulthood. Depression is another manifestation associated with loss (Spiess et al, 2014). While participants in this study identified feeling low in mood at times and reported childhood periods of depression, none had received a formal diagnosis nor substantial treatment.…”

Section: Discussionmentioning

confidence: 84%

“…All stages of grief as highlighted by Spiess et al (2014) were identified in participant narratives for this particular study, with differing manifestations and to varying degrees. Denial was not simply linked to the perceived loss of the parent as a consequence of illness, but also evident in denial of one's need and right for emotional expression.…”

Section: Discussionmentioning

confidence: 97%

“…There was also a role for bargaining attached to their emotional expression, when participants noted that they changed their behaviours in order to influence parental behaviours in some way. Similarly, Spiess et al (2014) identified anger as a stage of bereavement. Many participants noted their experiences of long standing anger.…”

Section: Discussionmentioning

confidence: 99%

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Adult Children of Parents with Mental Illness: Losing Oneself. Who am I?

Murphy

Peters

Wilkes

et al. 2016

Issues in Mental Health Nursing

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There is a limited body of research that focuses on experiences of families of people with mental illness. While the body of knowledge concerning children of parents with mental illness is increasing, there remains limited discourse surrounding the experiences of adults who have lived with childhood parental mental illness. This paper examined one major theme of a study focusing on parenting narratives of adults who had experienced childhood parental mental illness. The narrative study from a metropolitan area of Australia reflects adult children's experiences of being overwhelmed with parental mental illness. They felt unsure of their own emotions and felt they had lost a sense of who they were as individual people. Adult children felt confused about their sense of reality, particularly for those whose parent had a diagnosis of schizophrenia or psychosis. Their experiences of loss were closely associated with changing self identity. Furthermore, many of the narratives demonstrated experiences of grief for adult children. Greater understanding of adult children's perceptions of being parented by a person with mental illness, alongside their experiences of loss, has the potential to help health and social care professionals to facilitate greater resilience for families who are living with parental mental illness.

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Section: Discussionmentioning

confidence: 84%

Section: Discussionmentioning

confidence: 97%

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Adult Children of Parents with Mental Illness: Losing Oneself. Who am I?

Murphy

Peters

Wilkes

et al. 2016

Issues in Mental Health Nursing

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“…In line with other findings, the physical loss of the breast represented a loss of identity and femininity for some women, and they reported feelings and sentiments of grief—captured in the theme “loss and grief.” This emotional reaction postsurgery has been identified within other patient groups including prostate cancer and diabetic patients following limb loss and amputation …”

Section: Discussionmentioning

confidence: 86%

Women's initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study

et al. 2019

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Objective: Surgical procedures intended to treat breast cancer or reduce risk of developing the disease typically result in changes to appearance and scarring of the breast area, and any donor sites. The longer-term impact of these changes on body image and quality of life are well documented, but research in this field has failed to explore women's initial experiences of their appearance after surgery. This study used a qualitative approach to gain insight and better understand the experiences of women at this time point in their treatment pathway. Methods: Women (n=128) who had undergone mastectomy and/or breast reconstruction following a diagnosis of breast cancer or to reduce their risk of developing the disease completed an online survey. Open-ended questions asked participants about their experiences when seeing the postsurgical appearance of their breast/breast area (and donor site, if relevant) for the first time, and the support available to them.Results: Thematic analysis generated four key themes: "preparedness and support,""first thoughts and emotions," "loss and grief," and "the reaction of others." Conclusions:There was considerable variability in women's experiences. Some felt prepared and emotionally supported at this time, whilst others felt this element of care was missing. The findings suggest that there is a need to ensure all women are informed and have the necessary support when looking at the results of their surgery for the first time. Areas for improvement were proposed, including preoperative discussions, increased preparation and support. This could potentially contribute to better patient outcomes overall.

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“…In the traditional five-stage grief model, acceptanc e is often recognized as the last phase. 24 For focus group participants, numerous factors played a role in achieving acceptance. One participant expressed accepting the injury immediately, with difficulty experienced in regards to proposed recovery time to regain pre-amputation level of activity.…”

Section: Discussionmentioning

confidence: 99%

Amputees Unanimous

Amorelli¹,

Yancosek

Morris

2019

Prosthetics &Amp; Orthotics International

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Background: Alongside physical impairment, psychosocial health issues may arise after amputation, impacting quality of life. Traditional psychosocial care models provide services in a linear fashion, with limited supports upon discharge. A novel program entitled Amputees Unanimous is a 12-step program provided for amputees by amputees. Objective: To shape the final content of Amputees Unanimous by identifying personal beliefs and opinions of healthcare professionals and amputees. Study Design: Qualitative design utilizing a phenomenological approach. Method: Five focus groups were held: four with amputees and one with healthcare providers. A phenomenological approach shaped the inquiry of the lived experience of limb loss in relation to the content of Amputees Unanimous. Results: Three themes emerged: (1) accepting limb loss, (2) peer inspiration, and (3) regaining prior level of function. Conclusion: Limb loss may alter one’s self-image, both physically and psychologically, having a profound effect on how an individual copes throughout his or her lifetime. The content and delivery format of Amputees Unanimous could be tested for effectiveness as a program tailored to facilitate coping after limb loss and to provide encouragement, support, and hope for the future of amputees. Clinical relevance A dynamic, amputee-led, mutual help program may provide individuals with limb loss a place for encouragement, support, and optimism for the future.

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Application of the Five Stages of Grief to Diabetic Limb Loss and Amputation

Cited by 18 publications

References 42 publications

Adult Children of Parents with Mental Illness: Losing Oneself. Who am I?

Adult Children of Parents with Mental Illness: Losing Oneself. Who am I?

Women's initial experiences of their appearance after mastectomy and/or breast reconstruction: A qualitative study

Amputees Unanimous

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