Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement

Mulvale, Alison; Miatello, Ashleigh; Hackett, Christina; Mulvale, Gillian

doi:10.35680/2372-0247.1104

Cited by 61 publications

(71 citation statements)

References 43 publications

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“…Services can improve their relationships with users, focus on user needs and can increase the likely support and success of innovations ( 12 ). However, to date, there is limited research regarding the effectiveness of products or services that have been co-designed compared with those that have not been co-designed ( 13 , 14 ).…”

Section: Introductionmentioning

confidence: 99%

Co-design of eHealth Interventions With Children and Young People

et al. 2018

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Co-design, defined as collective creativity across the entire design process, can lead to the development of interventions that are more engaging, satisfying, and useful to potential users. However, using this methodology within the research arena requires a shift from traditional practice. Co-design of eHealth interventions with children and young people has additional challenges. This review summarizes the applied core principles of co-design and recommends techniques for undertaking co-design with children and young people. Three examples of co-design during the development of eHealth interventions (Starship Rescue, a computer game for treating anxiety in children with long-term physical conditions, a self-monitoring app for use during treatment of depression in young people, and HABITS, the development of an emotional health and substance use app, and eHealth platform for young people) are provided to illustrate the value and challenges of this contemporary process.

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Section: Introductionmentioning

confidence: 99%

Co-design of eHealth Interventions With Children and Young People

et al. 2018

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“…Experience‐based co‐design (EBCD) has been highlighted as a best‐practice approach to engaging users in quality improvement in mental health care . Using an experience‐based approach in research can engage young people with mental health issues, reduce stigma and empower them through service co‐design to share their specific needs and approaches to seeking and receiving mental health care . The EBCD approach also incorporates the experiences of caregivers and service providers who work together with youth to co‐design quality improvements that reflect all three perspectives.…”

Section: Introductionmentioning

confidence: 99%

Co‐designing for quality: Creating a user‐driven tool to improve quality in youth mental health services

Hackett

Mulvale

Miatello

2018

Health Expectations

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101

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BackgroundAlthough high quality mental health care for children and youth is a goal of many health systems, little is known about the dimensions of quality mental health care from users’ perspectives. We engaged young people, caregivers and service providers to share experiences, which shed light on quality dimensions for youth mental health care.MethodsUsing experience‐based co‐design, we collected qualitative data from young people aged 16‐24 with a mental disorder (n = 19), identified caregivers (n = 12) and service providers (n = 14) about their experiences with respect to youth mental health services. Experience data were collected using multiple approaches including interviews, a suite of online and smartphone applications (n = 22), and a co‐design event (n = 16) and analysed to extract touch points. These touch points were used to prioritize and co‐design a user‐driven prototype of a questionnaire to provide feedback to service providers.FindingsYoung people, caregiver and service provider reports of service experiences were used to identify aspects of care quality at eight mental health service contact points: Access to mental health care; Transfer to/from hospital; Intake into hospital; Services provided; Assessment and treatment; Treatment environment; and Caregiver involvement in care. In some cases, low quality care was harmful to users and their caregivers. Young people co‐designed a prototype of a user‐driven feedback questionnaire to improve quality of service experiences that was supported by service providers and caregivers at the co‐design event.ConclusionBy using EBCD to capture in‐depth data regarding experiences of young people, their caregivers and service providers, study participants have begun to establish a baseline for acceptable quality of mental health care for young people.

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“…Actual examples of EBCD implementation with respect to vulnerable groups is generally lacking in practice [15]. A strength of this study was harnessing the time and valuable skills of clinical champions and members of the EBCD steering group which contributed to enhancing consumer and clinician participation and the overall success of the process.…”

Section: Discussionmentioning

confidence: 99%

Care coordination for chronic and complex health conditions: An experienced based co-design study engaging consumer and clinician groups for service improvement

2019

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BackgroundEvidence shows that engaging consumers and clinicians in development of health services creates a more responsive, integrated service that better meets the needs of consumers and the community of practice it serves. Further, consumer and clinician participation in service development processes can boost confidence and motivation levels in organisational employees and help foster clinical accountability.ObjectiveTo see where consumers’ care experiences could be improved by better understanding where care coordination organisational systems needed improvement.MethodsExperienced based co-design informed an investigation of consumer and clinician experiences of a care coordination service and involved the sharing of those experiences across service employees in a series of iterative and feedback loops over eighteen months (July 2012-January 2014). Formal participants included care coordination clinicians (n = 13) and consumers. Data from formal participants were collected during September-December 2012, consisting of consumer video-recorded and clinician audio-recorded interviews. Interview transcriptions were analysed to identify service “touch points”, being emotionally significant events related to key service aspects that connect or disconnect consumers and/or clinicians.ResultsResults revealed that consumers highly valued the transdisciplinary skill base of the care coordination workforce, though service improvements were needed for transition support, quality discharge planning and conveying better understandings of care coordination activity both internally and externally.ConclusionIncorporating consumer and clinician view-points about their experiences, including the production of a DVD, facilitated conversations across the entire service about care coordination provision and provided a catalyst for design improvement that may otherwise have been difficult to achieve. Some changes to the service were made such as improved client complaints processes, new roles for the care coordination service, and enlisting clinical staff to undertake motivational interviewing training to promote greater consumer self-management capacity. In this study, the user experience was given a platform within a larger healthcare workforce capability development project.

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Applying experience-based co-design with vulnerable populations: Lessons from a systematic review of methods to involve patients, families and service providers in child and youth mental health service improvement

Cited by 61 publications

References 43 publications

Co-design of eHealth Interventions With Children and Young People

Co-design of eHealth Interventions With Children and Young People

Co‐designing for quality: Creating a user‐driven tool to improve quality in youth mental health services

Care coordination for chronic and complex health conditions: An experienced based co-design study engaging consumer and clinician groups for service improvement

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