Applying Risk Society Theory to findings of a scoping review on caregiver safety

Macdonald, Marilyn; Lang, Ariella

doi:10.1111/hsc.12056

Cited by 8 publications

(8 citation statements)

References 52 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A recent scoping review found that the compulsory enrollment to take on the caregiver role, the lack of preparedness and support, and loss of control have an impact on family caregiver safety [ 28 ]. In addition, psychological and physical health impairments and financial problems create a safety concern for caregivers [ 28 ]. Whether this applies to advanced home care is not known.…”

Section: Introductionmentioning

confidence: 99%

“…However, a better understanding of family caregivers’ perspective of their contribution to safety their perspective could provide health professionals with additional strategies for providing safe, effective and patient-centered care in the home setting. To date, little empirical work has been undertaken to examine family caregivers’ perspective of safety [ 28 ]. The present study, therefore, aims to fill this research gap by exploring family caregivers in HMV safety experiences and how safety is perceived by them in such a special care arrangement.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Schaepe

Ewers

2018

BMC Nurs

View full text Add to dashboard Cite

BackgroundThe use of medical technology and the various contributing and interdepending human factors in home care have implications for patient safety. Although family caregivers are often involved in the provision of advanced home care, there is little research on their contribution to safety. The study aims to explore family caregivers in Home Mechanical Ventilation (HMV) safety experiences and how safety is perceived by them in this context. Furthermore, it seeks to understand how family caregivers contribute to the patients’ and their own safety in HMV and what kind of support they expect from their health care team.MethodsAn explorative, qualitative study was applied using elements from grounded theory methodology. Data were collected through individual interviews with 15 family caregivers to patients receiving HMV in two regions in Germany. The audiotaped interviews were then subject to thematic analysis.ResultsThe findings shows that family caregivers contribute to safety in HMV by trying to foster mutual information sharing about the patient and his/her situation, coordinating informally health care services and undertaking compensation of shortcomings in HMV.ConclusionConsequently, family caregivers take on considerable responsibility for patient safety in advanced home care by being actively and constantly committed to safety work.Nurses working in this setting should be clinically and technically skilled and focus on building partnership relations with family caregivers. This especially encompasses negotiation about their role in care and patient safety. Support and education should be offered if needed. Only skilled nurses, who can provide safe care and who can handle critical situations should be appointed to HMV. They should also serve as professional care coordinators and provide educational interventions to strengthen family caregivers’ competence.

show abstract

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Schaepe

Ewers

2018

BMC Nurs

View full text Add to dashboard Cite

show abstract

“…Many care theorists highlight the centrality of emotion to care work (Kittay, 2001;Held, 2006;Milligan and Wiles, 2010;. This affective and physical labor renders caregivers vulnerable to negative mental and physical outcomes -sometimes referred to as caregiver burden (Lilly et al, 2012;Macdonald and Lang, 2014). The affective nature of caregiving relationships is often highlighted, but little research has been done on how care changes across contexts, such as in medical tourism, and how this reinforces existing geographies of power.…”

Section: Introductionmentioning

confidence: 99%

Ethics of care in medical tourism: Informal caregivers' narratives of responsibility, vulnerability and mutuality

2015

View full text Add to dashboard Cite

This study examines the experiences of informal caregivers in medical tourism through an ethics of care lens. We conducted semi-structured interviews with 20 Canadians who had accompanied their friends or family members abroad for surgery, asking questions that dealt with their experiences prior to, during and after travel. Thematic analysis revealed three themes central to an ethics of care: responsibility, vulnerability and mutuality. Ethics of care theorists have highlighted how care has been historically devalued. We posit that medical tourism reproduces dominant narratives about care in a novel care landscape. Informal care goes unaccounted for by the industry, as it occurs in largely private spaces at a geographic distance from the home countries of medical tourists.

show abstract

“…Although a growing body of research [7,9,[19][20][21][23][24][25][26][27]] has begun to highlight the complexity and multidimensionality of home care safety there is a dearth of understanding of safety issues from the perspectives of clients and caregivers themselves, as well as from the providers who are responsible for managing and coordinating palliative care at home. As such, the research question guiding this study was: What are the experiences, challenges, and insights of adult clients, their unpaid family/caregivers, and their paid providers, regarding safety in palliative home care?…”

Section: Introductionmentioning

confidence: 99%

Client, caregiver, and provider perspectives of safety in palliative home care: a mixed method design

et al. 2015

Self Cite

View full text Add to dashboard Cite

Background: Palliative care clients with complex needs are increasingly choosing to remain at home for their care. Home represents familiarity, presence of supportive family and friends, potential for normalcy and, a safe haven. The palliative care literature although robust is hardly ever linked with safety and home care. Patient safety has been focused predominantly on institutions without a corresponding level of research or safety initiatives in the home care sector. Although a growing body of research has begun to highlight the complexity and multidimensionality of home care safety there is a dearth of understanding of safety issues from the perspectives of clients, caregivers, and paid providers who are responsible for managing and coordinating palliative home care. The aim of this study was to describe the experiences, challenges, and insights regarding safety for adults receiving and providing palliative home care services. Methods: Mixed method design was used to capture the multiple meanings and influences on the broadened conceptualization of home care safety including emotional, social, and functional safety. There were three types of participants in this multi-site study namely palliative home care clients, caregivers, and paid providers. Individual interviews (n = 33) were conducted in the client's home followed by a photo "walkabout" to describe their daily experiences and routines. Focus groups, three with experienced professionals (n = 25) and two with home support workers (n = 11) were also conducted. Results: This study supports the broadened conceptualization of home care safety namely that: the safety of the client and caregiver are inextricably linked; the home is an unregulated and uncontrolled site for providing palliative home care in contrast to hospitals or other institutional settings; and clients and caregivers have the autonomy to live and take risks in their own home. Conclusion: To ensure quality in palliative home care and to mitigate safety risks the client and caregiver(s) should be considered as the unit of care; caregivers need to be better prepared and trained to manage the complexity of issues; and regular assessments are imperative to monitor and detect changes in the unit of care and their changing needs while respecting their autonomy to make less than safe choices.

show abstract

Applying Risk Society Theory to findings of a scoping review on caregiver safety

Cited by 8 publications

References 52 publications

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

“I see myself as part of the team” – family caregivers’ contribution to safety in advanced home care

Ethics of care in medical tourism: Informal caregivers' narratives of responsibility, vulnerability and mutuality

Client, caregiver, and provider perspectives of safety in palliative home care: a mixed method design

Contact Info

Product

Resources

About