Appropriate inhaler use in children with asthma: barriers and opportunities through the lens of the socio-ecological model

Bickel, Scott; Cohen, Robyn T.; Needleman, Joshua P.; Volerman, Anna

doi:10.1080/02770903.2022.2152352

Cited by 3 publications

(3 citation statements)

References 56 publications

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“…Bronfenbrenner's theory underscores the importance of various environmental layers, ranging from microsystems (family, school) to exosystems (policy, culture), and chronosystems (historical events) in an individual's development 7 . Studies guided by this theory reveal that the HRQoL of children with chronic diseases or congenital defects is influenced by their family, school and community environments, in addition to their illness severity 8–10 . Erikson's model stresses that individuals encounter various psychosocial crises across life stages that need to be addressed for healthy development 11 .…”

Section: Introductionmentioning

confidence: 99%

“… 7 Studies guided by this theory reveal that the HRQoL of children with chronic diseases or congenital defects is influenced by their family, school and community environments, in addition to their illness severity. 8 , 9 , 10 Erikson's model stresses that individuals encounter various psychosocial crises across life stages that need to be addressed for healthy development. 11 Applying this model to children with chronic disease, it is evident that physical differences can prompt low self‐esteem during the psychosocial crisis of ‘self‐esteem versus inferiority’, thus hampering normal development.…”

Section: Introductionmentioning

confidence: 99%

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Exploring the life experiences of school‐aged children afflicted by tethered spinal cord syndrome: An interpretative qualitative study

Lin,

Ren,

Xiang

et al. 2024

Health Expectations

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BackgroundChildren affected by tethered cord syndrome (TCS) encounter multifaceted challenges encompassing educational, familial and social spheres, underscoring the significance of a holistic comprehension of their subjective emotional well‐being and life encounters. Nonetheless, healthcare professionals tend to prioritise the physical functionality of the afflicted individuals throughout the treatment and rehabilitation process, often neglecting the emotional experiences and requirements of these children as they transition into posthospitalization phases.AimTo advance the subjective experiences and perceptions of children with TCS upon reintegration into their families, educational institutions and wider societal contexts subsequent to their discharge from medical facilities.MethodsThe study was conducted at the Children's Hospital in Zhejiang. Twelve children aged 8–15 with TCS were included in the study. The research design used an interpretative qualitative approach, utilising semi‐structured interviews as the primary data collection method. Data analysis was performed using reflexive thematic analysis, facilitating a comprehensive exploration of emerging themes and patterns.ResultsFour major themes (and seven subthemes) were identified from the findings: (1) growing pains (a shameful secret, distance between ideal and reality); (2) inappropriate expressions of familial affection (knowing is not understanding, unspeakable guilt); (3) social estrangement (uncomfortable distinctions, familiar stranger) and (4) striving for independence and consistency.ConclusionsChildren affected by TCS exhibit internal sensitivity and challenges in self‐development, family dynamics and social interactions. They aspire to attain a future characterised by independence and freedom, akin to that of their typically developing peers. These findings can help health professionals, families and educators gain a deeper understanding of what it takes to be a child with TCS, and the findings can also serve as a platform for interventions that seek to promote self‐expression in these children so that they can experience life as a meaningful and positive process.Patient or Public ContributionThis study received support from children with TCS and their guardians during data collection, as well as from the head nurse of the unit. Coresearchers also contributed to design, data collection, analysis and writing.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Exploring the life experiences of school‐aged children afflicted by tethered spinal cord syndrome: An interpretative qualitative study

Lin,

Ren,

Xiang

et al. 2024

Health Expectations

View full text Add to dashboard Cite

show abstract

“…7 Studies guided by this theory reveal that the life quality of children with chronic diseases or congenital defects is in uenced by their family, school, and community environments, in addition to their illness severity. [8][9][10] Erikson's model stresses that individuals encounter various psychosocial crises across life stages that need to be addressed for healthy development. 11 Applying this model to children with chronic disease, it is evident that physical differences can prompt low selfesteem during the psychosocial crisis of 'self-esteem versus inferiority,' thus hampering normal development.…”

Section: Introductionmentioning

confidence: 99%

Delving into the Life Experiences of School-aged Children Afflicted by Tethered spinal cord syndrome: An Interpretative Qualitative Study

Lin

Wang³

et al. 2023

Preprint

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Tethered cord syndrome in pediatric patients manifests as an intricate interplay of complications permeating educational, familial, and societal contexts, underscoring the necessity of a comprehensive understanding of their subjective emotional states and life experiences. However, the healthcare sector often exhibits a skewed focus on the physical functionality of the afflicted pediatric patients throughout their treatment and post-treatment phases, frequently neglecting the emotional dimensions of their experience. As such, there is a pressing need to enhance our understanding of the lived experiences and perceptions of pediatric patients with tethered cord syndrome upon their reintroduction into familial, educational, and broader societal environments post-discharge. This study was executed at the Children's Hospital in Zhejiang, incorporating twelve tethered cord syndrome-affected participants aged between 8 to 15 years. An interpretative qualitative research design was employed, employing semi-structured interviews as the chief data acquisition tool. Reflexive thematic analysis was utilized for data evaluation, enabling an exhaustive scrutiny of emerging thematic patterns. Four major themes (and seven sub-themes) were identified from the findings: (1) growing pains (a shameful secret, distance between ideal and reality); (2) inappropriate expressions of familial affection (knowing is not understanding, unspeakable guilt); (3) social estrangement (uncomfortable distinctions, familiar stranger); (4) striving for independence and consistency. Pediatric patients with tethered cord syndrome display intrinsic sensitivity and face complexities in personal growth, familial relationships, and social interactions. Their aspirations revolve around future independence and freedom, similar to their developmentally typical counterparts. The findings of this study offer critical insights for healthcare providers, families, and educators, fostering a deeper comprehension of the experiences and challenges faced by children with tethered cord syndrome. Furthermore, the results serve as a foundation for potential interventions promoting self-expression and enabling these patients to perceive life as a meaningful and positive journey.

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Exploring Experiences and Asthma Management Among Middle Eastern Arabic-Speaking Migrants and Refugees with Asthma: A Qualitative Study

Al-Juhaishi,

Lim,

Chan

et al. 2024

PPA

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Appropriate inhaler use in children with asthma: barriers and opportunities through the lens of the socio-ecological model

Cited by 3 publications

References 56 publications

Exploring the life experiences of school‐aged children afflicted by tethered spinal cord syndrome: An interpretative qualitative study

Exploring the life experiences of school‐aged children afflicted by tethered spinal cord syndrome: An interpretative qualitative study

Delving into the Life Experiences of School-aged Children Afflicted by Tethered spinal cord syndrome: An Interpretative Qualitative Study

Exploring Experiences and Asthma Management Among Middle Eastern Arabic-Speaking Migrants and Refugees with Asthma: A Qualitative Study

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