Archived Specimens: A Platform for Discussion

Wertz, Dorothy C.

doi:10.1159/000016187

Cited by 10 publications

(11 citation statements)

References 27 publications

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“…A common theme emerging in recent recommendations is that anonymous tissue or organs may be used for teaching and research purposes without consent (Wertz, 1999). However the corollary to this assertion should be that anatomists should embark on aggressive enlightenment campaign to educate the populace on the need for informed bequeathing of bodies by those who might be willing to do so and once this is appreciated the role of informed consent follows automatically.…”

Section: Discussionmentioning

confidence: 99%

Sources of cadaver used for dissection at the Ibadan medical school, Nigeria - Analysis of a three-year data

Osuagwu¹,

Imosemi²,

Oladejo³

2010

African Journal of Biomedical Research

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Section: Discussionmentioning

confidence: 99%

Sources of cadaver used for dissection at the Ibadan medical school, Nigeria - Analysis of a three-year data

Osuagwu¹,

Imosemi²,

Oladejo³

2010

African Journal of Biomedical Research

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“…But whatever the type of sample identification, with modern -DNA -identification techniques, it is possible even in anonymized collections to link a sample with an individual if one wishes to spend the effort and if the individual provides a fresh sample for matching. 10 The consent requirements for the banking and further use of samples will be explored in the third section.…”

Section: Conditions Of Data Storage and Dna Bankingmentioning

confidence: 99%

“…(9) How should the competence of the director of a DNA laboratory be demonstrated? (10) Should DNA banks and/or DNA diagnostic laboratories be certified? And (11) What role should the American society of human genetics take to ensure that DNA banks and laboratories meet patient needs?…”

Section: The United States Of Americamentioning

confidence: 99%

Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective

Godard

Schmidtke

Cassiman³

et al. 2003

Eur J Hum Genet

148

107

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The purpose of this paper is to formulate a professional and scientific view on the social, ethical, and legal issues that impact on data storage and DNA banking practices for biomedical research in Europe. Many aspects have been considered, such as the requirements for data storage and DNA banking in the public and private sectors in Europe and the issues relating to DNA banking, that is to say the consent requirements for the banking and further uses of DNA samples, their control and ownership, and the return of benefit derived from DNA exploitation to the community. The methods comprise primarily the review of the existing professional guidelines, legal frameworks and other documents related to the data storage and DNA banking practices in public and private sectors in Europe. Then, the issues related to DNA banking were examined during an international workshop organized by the European Society of Human Genetics Public and Professional Policy Committee in Paris, France, 07 -08, April, 2000. A total of 50 experts from 12 European countries attended this workshop. It came out that DNA banking for medical and research purposes is indispensable. It facilitates the constitution of large collections, sharing of samples, multiple testing on the same samples, and repeating testing over the years. However, banking organization is complex, requires multiple actors, and concerns are expressed in various countries. International standardization of ethical requirements and policies with regard to DNA banking has been recommended. Such standardization would facilitate a greater protection of individuals as well as future international cooperation in biomedical research.

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“…Regulation to ensure that molecular genetic tests meet standards of accuracy with delineation of rates of false positives and false negatives and to ensure that there is privacy protection regarding the use of tissue and blood samples held by laboratories, as well as protection of test results, is needed [17]. In this regard, it is of concern that in a recent survey of North American DNA laboratories to which 245 responded (76% response rate), only 69% of laboratories had a written confidentiality policy [11].…”

Section: Some Challenges To Appropriate Clinical Genetic Service Provmentioning

confidence: 99%

Current Challenges to Appropriate Clinical Use of New Genetic Knowledge in Different Countries

Baird

2001

Public Health Genomics

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Objective: To describe the challenges facing countries all over the world regarding the appropriate clinical use of genetics in their health care systems. Methods and Results: Aspects of the economic and social contexts in different countries which are of particular relevance to shaping the existing challenges are outlined. Issues which are relevant (but of different prominence) in all countries in providing genetic services are discussed. Conclusions: The challenges facing the provision of appropriate genetic services differ markedly in four major groups of countries. These challenges range from controlling inappropriate commercialization and the overuse of genetic approaches to putting in place even minimal basic community genetics services in countries where the infant mortality rate has fallen to a range where genetic and congenital disorders contribute substantially to ongoing handicap and early mortality.

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Archived Specimens: A Platform for Discussion

Cited by 10 publications

References 27 publications

Sources of cadaver used for dissection at the Ibadan medical school, Nigeria - Analysis of a three-year data

Sources of cadaver used for dissection at the Ibadan medical school, Nigeria - Analysis of a three-year data

Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspective

Current Challenges to Appropriate Clinical Use of New Genetic Knowledge in Different Countries

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