Are nurses and physicians able to assess which strategies adolescents recently diagnosed with cancer use to cope with disease- and treatment-related distress?

Engvall, Gunn; Skolin, Inger; Mattsson, Elisabet; Hedström, Mariann; Essén, Louise von

doi:10.1007/s00520-010-0859-0

Cited by 8 publications

(4 citation statements)

References 25 publications

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“…The continued distress experienced by a subset of the present sample and the moderate agreement between parent and adolescents supports this recommendation. Additionally, a recent study indicated that nurses, one of the primary conduits of referrals for patients and families, may overestimate adolescents' ability to manage distress (Engvall et al, 2011). This finding suggests that adolescents who are experiencing significant distress may not be identified by their healthcare provider, even those with close contact, due to overestimations of emotional competence.…”

Section: Discussionmentioning

confidence: 99%

Adolescent cancer survivors’ posttraumatic stress symptoms: Concordance between self-report and maternal-proxy report

2016

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Subsyndromal posttraumatic stress among pediatric cancer survivors has been associated with negative physical and mental health outcomes. However, adolescent self-report and mother-proxy report of adolescents' posttraumatic stress symptoms evidenced varying concordance depending on methodology. There was moderate concordance, particularly among younger respondents, when total posttraumatic stress symptoms were viewed continuously and low-moderate concordance when viewed categorically; moderate-strong concordance for only one posttraumatic stress disorder symptom cluster; low-moderate agreement for high-frequency items; and no concordance for identifying caseness. Although a significant subset of pediatric cancer survivors experience posttraumatic stress, mothers and adolescents demonstrate limited symptom, categorical, and caseness agreement, potentially impacting adolescents' healthcare service utilization.

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Section: Discussionmentioning

confidence: 99%

Adolescent cancer survivors’ posttraumatic stress symptoms: Concordance between self-report and maternal-proxy report

2016

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“…In addition, the measures used were not designed for or validated on YA samples, a limitation characteristic of all psychosocial research in YA oncology at this time. [4] The sample for this study was restricted to YAs with advanced disease[38] and included a broad age range that captures multiple developmental transitions. Examination of coping across disease trajectory and developmental phases within young adulthood may be important.…”

Section: 0 Discussionmentioning

confidence: 99%

Coping and Psychological Distress in Young Adults With Advanced Cancer

Trevino

Maciejewski²,

Fasciano³

et al. 2012

The Journal of Supportive Oncology

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Little is known about how young adults (YAs) cope with cancer or the relationship between coping and psychological distress in YAs with advanced cancer. Structured clinical interviews with 53 YAs (20–40 years) with advanced cancer assessed coping methods, depression, anxiety, and grief. A principal components factor analysis identified underlying coping factors. Regression analyses examined the relationship between these coping factors and depression, anxiety, and grief. Six coping factors emerged and were labeled as: Proactive, Distancing, Negative Expression, Support-seeking, Respite-seeking, and Acceptance coping. Acceptance and Support-seeking coping styles were used most frequently. Coping by Negative Expression was positively associated with severity of grief after controlling for depression, anxiety, and confounding variables. Support-seeking coping was positively associated with anxiety after controlling for depression and grief. This study was limited by cross-sectional design, small sample size, and focus on YAs with advanced cancer. YAs with advanced cancer utilize a range of coping responses that are uniquely related to psychological distress.

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“…Coping strategies employed whilst experiencing side effects during treatments have been an important oncology nursing research focus. Caution need to be taken when intervening as they may be ineffective and potentially harmful (Engvall et al, 2011). Psychological distress encompasses a series of negative emotions such as anxiety and depression, which are the end states of a maladaptive process (Zabalegui et al, 2005;Zainal et al, 2007;Saniah and Zainal, 2010).…”

Section: Symptom Experiences and Coping Strategies Among Multiethnic Solid Tumor Patients Undergoing Chemotherapy In Malaysiamentioning

confidence: 99%

Symptom Experiences and Coping Strategies among Multi-ethnic Solid Tumor Patients Undergoing Chemotherapy in Malaysia

Yahaya

Subramanian²,

Bustam³

et al. 2015

Asian Pacific Journal of Cancer Prevention

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Background: This study was performed to assess patient symptoms prevalence, frequency and severity, as well as distress and coping strategies used, and to identify the relationships between coping strategies and psychological and physical symptoms distress and demographic data of cancer patients. This cross-sectional descriptive study involved a total of 268 cancer patients with various types of cancer and chemotherapy identified in the oncology unit of an urban tertiary hospital. Materials and Methods: Data were collected using questionnaires (demographic questionnaire, Medical characteristics, Memorial Symptom Assessment Scale (MSAS) and Brief COPE scales and analyzed for demographic, and disease-related variable effects on symptom prevalence, severity, distress and coping strategies. Results: Symptom prevalence was relatively high and ranged from 14.9% for swelling of arms and legs to 88.1% for lack of energy. This latter was the highest rated symptom in the study. The level of distress was found to be low in three domains. Problem-focused coping strategies were found to be more commonly employed compared to emotion-focused strategies, demonstrating significant associations with sex, age group, educational levels and race. However, there was a positive correlation between emotion-focused strategies and physical and psychological distress, indicating that patients would choose emotion-focused strategies when symptom distress increased. Conclusions: These findings demonstrate that high symptom prevalence rates and coping strategies used render an improvement in current nursing management. Therefore development of symptoms management groups, encouraging the use of self-care diaries and enhancing the quality of psychooncology services provided are to be recommended.

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Are nurses and physicians able to assess which strategies adolescents recently diagnosed with cancer use to cope with disease- and treatment-related distress?

Abstract: Health-care staff's possibilities to assess how patients cope with disease- and treatment-related distress should be increased. A number of changes in education and the organization of clinical care, especially with regard to assessing patients' needs, are suggested.

Cited by 8 publications

References 25 publications

Adolescent cancer survivors’ posttraumatic stress symptoms: Concordance between self-report and maternal-proxy report

Adolescent cancer survivors’ posttraumatic stress symptoms: Concordance between self-report and maternal-proxy report

Coping and Psychological Distress in Young Adults With Advanced Cancer

Symptom Experiences and Coping Strategies among Multi-ethnic Solid Tumor Patients Undergoing Chemotherapy in Malaysia

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