Are the instruments for quality of life assessment comparable between cultures? No

Tripathy, Swagata; Myatra, Sheila Nainan

doi:10.1007/s00134-020-06007-4

Cited by 13 publications

(15 citation statements)

References 13 publications

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“…Secondly, factors like religious and cultural beliefs regarding critical illness may have played a role. There have been concerns that questionnaires may not be valid across cultures even after careful adaptations [28].This will need further exploration and may have a broader implication for non LMIC countries which see an everincreasing ICU load of patients of mixed cultural backgrounds [27][28][29].…”

Section: Discussionmentioning

confidence: 99%

Post traumatic stress symptoms, anxiety, and depression in patients after intensive care unit discharge – a longitudinal cohort study from a LMIC tertiary care centre

et al. 2020

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Background: Data on intensive care unit (ICU) related psychiatric morbidity from Low Middle-Income Countries are sparse. We studied the ICU related posttraumatic stress symptoms (PTSS), anxiety, and depression symptoms in a cohort of patients from Eastern India. Methods: We included adults admitted more than 24 h to a mixed ICU. PTSS, anxiety, and depression symptoms were assessed by telephonic or face to face interviews by using the Impact of Events-r (IES-r) and Hospital anxiety and depression (HADS), respectively, at 0, 7,14, 30, 90 and 180 days from ICU discharge. The loss to follow up was minimal. Demographic, socioeconomic, quality of life (QOL), and critical care related variables were studied. Results: Of 527 patients, 322 (59.4%) completed 6 months' follow up. The majority were male (60%), mechanically ventilated > 48 h (59.4%), mean age of 48 (+/− 16), mean acute physiology and chronic health evaluation II (APACHE II) at admission 9.4 (+/− 4.6), median length of stay 3 (2-28 days). The rates of ICU related clinical PTSS was < 1 and < 3% for anxiety/depression at any point of follow up. Data were analyzed by linear mixed (random effects) models. There was a significant drop in all scores and association with repeated measures over time. Poor QOL at discharge from the ICU showed significant association with PTSS, anxiety, and depression (β = − 2.94, − 1.34, − 0.7 respectively) when corrected for gender and education levels. Younger age, greater severity of illness, and prior stressful life experiences predicted worse PTSS (β = − 0.02, 0.08, 3.82, respectively). Benzodiazepines and lower sedation scores (better alertness) predicted lower depression symptoms. (β = − 0.43, 0.37 respectively). Conclusion: ICU related psychiatric morbidity rates in our population are low compared with reported rates in the literature. Poor QOL at ICU discharge may predict worse long-term mental health outcomes. Further research on the impact of ICU and sociocultural factors on mental health outcomes in patients from different backgrounds is needed. The study was registered at CTRI/2017/07/008959.

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Section: Discussionmentioning

confidence: 99%

Post traumatic stress symptoms, anxiety, and depression in patients after intensive care unit discharge – a longitudinal cohort study from a LMIC tertiary care centre

et al. 2020

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“…Participants were then asked to sort the cards onto a grid (see Fig. 1) from most important (15) to least important (-5). The most important item was placed in the rightmost cell and the 2 second most important items on the (14) column and so on, until all the items were assigned on the grid.…”

Section: Data Collection Proceduresmentioning

confidence: 99%

“…It was also found that older participants were more likely to emphasize cognitive function items and physical health items, as participants placed in quadrant I and II had the highest average ages. Also, social well-being and mind- (13) self-care (15) life attitude (14) regularity in daily life (15) usual activities (17) ability to think ( 18) mobility ( 18) discomfort (18) peace (17) pain (18) appetite (19) body strength (19) depression (20) diet habits ( 20) stress ( 20) anxiety (20) self-confidence (20) breadth of mind (20) ability to remember (21) social relations ( 22) tiredness ( 22) vision ( 21) sense of satisfaction with life (21) hearing ( 23) family medical history (24) ability to response swiftly (23) morality (26) adaptability to social environment (22) ability to concentrate (24) dependence on medication (26) communication (24) colour of face ( 26) anger (26) body weight (27) social support (28) ability to make decisions (29) fear (30) sex life (29) adaptability to weather changes (32) loneliness (32) most important middle least important frame aspects were likely to be emphasized by participants who were located in quadrant III and whose average self-rated scores were the highest compared to that of other quadrants. Three health items (body constitution, sleep quality, and spiritual appearance) were in the middle of the configuration, which indicated that they seemed to be rated as most important across the whole sample.…”

Section: The Multidimensional Unfolding Solutionmentioning

confidence: 99%

“…Such a translation process assumes that HRQOL, as a concept, has universal cultural equivalence. 14,15 Without assessing the conceptual equivalence of HRQOL measures in targeting cultures, the translated Western-developed HRQOL measures may fail to include aspects of health that are considered most relevant and important in other cultural settings. 16,17 Take the use of Western HRQOL measures in China, for example.…”

Section: Introductionmentioning

confidence: 99%

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The Unfolding Method to Explore Health-Related Quality of Life Constructs in a Chinese General Population

et al. 2021

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Health-related quality of life (HRQOL) is a complicated concept that can be measured using multiple health items. Although HRQOL is closely associated with people's subjective assessment of their own health, a limited number of studies have investigated which health items are considered most important and relevant by the general population. Even fewer empirical studies have investigated how HRQOL is understood in non-Western populations. This study used multidimensional unfolding analysis in a Chinese general population to explore the constructs of HRQOL.Methods: A scoping review of Chinese generic HRQOL measures and a series of qualitative interviews produced a list of 42 potentially important health items in a Chinese cultural setting; 110 Chinese participants in face-to-face interviews ranked the health items from most important to least important. Responses were coded into a rectangular 110 3 42 matrix, and multidimensional unfolding was conducted to analyze participants' preferences for health items.Results: It was found that demographic characteristics and one's health condition affected views of HRQOL. Meanwhile, 3 health items were considered to be most important across the whole sample: sleep quality, body constitution, and spiritual appearance. Conclusion:This study used a novel approach to explore how people coming from a Chinese cultural setting may perceive HRQOL and which aspects of HRQOL are most important to them. The study shows that multidimensional unfolding is a feasible approach to assess preferences in a general population. Future studies using this approach are recommended to further explore the constructs of HRQOL in other general populations.

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“…The choice of the questionnaire to apply will depend not only on the variable to be measured and whether it is validated but also on its applicability to the target population and its cross-cultural adaptation [41]. Cross-cultural adaptations must be validated so that the results obtained from the population analysis can be compared with other studies that use the same instrument [33] This systematic review presents a series of limitations that must be taken into account when analyzing the results presented.…”

Section: Questionnaire Assessmentmentioning

confidence: 99%

Identification of Tools for the Functional and Subjective Assessment of Patients in an Aquatic Environment: A Systematic Review

Cuesta‐Vargas

Martín-Martín

Gónzalez-Sánchez

et al. 2020

IJERPH

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Aquatic therapy is one of the most common treatments for alleviating musculoskeletal pathologies. Its effectiveness has been evaluated with functional tests and questionnaires. Functional tests are used in aquatic therapy; however, in most cases, they are carried out in a non-aquatic environment and, as such, their results may differ from those of tests performed in an aquatic environment. A systematic review was performed to assess the accuracy of functional tests and patient-reported outcomes to assess aquatic therapy interventions. The authors conducted a literature search in July 2019. In total, 70,863 records were identified after duplicates removed. Of these, 14 records were included about functional tests assessment in aquatic environment and 725 records for questionnaires. The majority of the tests had also been assessed in a dry environment, allowing differences and similarities between the tests in the two environments to be observed. Different variables have been assessed in tests included in the present systematic review (cardiorespiratory, neuromuscular, kinematic, physiological, kinetic responses and rating of perceived exertion) which are included in the manuscript. Visual Analogue Scale, Western Ontario and McMaster Universities Osteoarthritis Index and the 12-item Short Form Health Survey were the assessments most commonly used by the different authors.

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Are the instruments for quality of life assessment comparable between cultures? No

Cited by 13 publications

References 13 publications

Post traumatic stress symptoms, anxiety, and depression in patients after intensive care unit discharge – a longitudinal cohort study from a LMIC tertiary care centre

Post traumatic stress symptoms, anxiety, and depression in patients after intensive care unit discharge – a longitudinal cohort study from a LMIC tertiary care centre

The Unfolding Method to Explore Health-Related Quality of Life Constructs in a Chinese General Population

Identification of Tools for the Functional and Subjective Assessment of Patients in an Aquatic Environment: A Systematic Review

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