Are Treatment Satisfaction, Quality of Life, and Self-assessed Disease Severity Relevant Parameters for Patient Registries? Experiences from Finnish and Swedish Patients with Psoriasis

Abstract

Patient registries often lack indicators of the disease as experienced by patients, e.g. treatment satisfaction and self-assessed disease severity. There is scarce information about the relationship between these assessments and currently existing instruments used in treatment evaluation. Our objective was to explore the importance of these indicators among patients with psoriasis in Finland and Sweden, in relation to treatment patterns and current measures of health-related quality of life. Data were collected from a patient survey and a retrospective chart review for 273 patients over 12 months. To assess psoriasis treatment completely, it is necessary to consider the impact of the disease on the patient in terms of treatment satisfaction, disease severity and health-related quality of life. The individual disease burden on patients should play a central role in formulating treatment goals. Clinician- and patient-based perspectives of the overall impact of psoriasis can assist clinical decision-making and evaluations of treatments.

Moderate to severe psoriasis treatment challenges through the era of biological drugs

“… 65 Levels of satisfaction associated with biological treatments were significantly higher than those associated with topical therapies, phototherapy and conventional systemic therapies, although using different satisfaction questionnaires and, consequently, different definitions of satisfaction. 62 - 64 , 66 , 67 However, 49% of patients still don't consider themselves "highly" or "completely" satisfied, despite biological treatment, or in another study, only 45% of patients on biological treatment were "very satisfied". 62 , 66 …”

The Effect of Continuity of Care on Emergency Room Use for Diabetic Patients Varies by Disease Severity

“…The positive effects of COC on patient outcomes are often due to patient satisfaction, which, in turn, is often associated with disease severity. 15 , 16 Gill et al 17 reported that, after controlling for diseases severity, no significant associations were observed between provider continuity and improved monitoring for patients with diabetes, indicating that the effects of COC may depend on disease severity.…”

Krónikus betegségek biológiai terápiájának alkalmazásával kapcsolatos gazdasági megfontolások

“…and DLQI global scores (Norlin et al, [2012]); (Blome et al, [2013]); (Currie et al, [2007]); (Hjortsberg et al, [2011] EQ-5D consists of a five-item instrument to assess general HRQOL (mobility, self-care, usual activities, pain/discomfort, and anxiety/depression), and of a visual analogue scale (EQ VAS). In the current survey, EQ-5D-3L version was used in which each dimension has three response levels (no problems, some problems, and severe problems), accordingly 3 5 =243 combinations of health states are possible.…”