Are We There Yet? The State of Early Prediction and Intervention in Autism Spectrum Disorder

Kasari, Connie

doi:10.1016/j.jaac.2013.11.007

Cited by 11 publications

(8 citation statements)

References 6 publications

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“…In several HICs, children face long waitlists and have often outgrown adequate intervention programs, while there may frequently be a lack of follow-up services in LMICs. Thus, even when families are actively engaged in the process and are aware of the need for early intervention, access to adequate treatment may not readily be available, especially for families from underserved and low-resource settings [20]. The mismatch between awareness-raising initiatives and the services, therefore, poses an important ethical concern [9•].…”

Section: Early Identification Of Asdmentioning

confidence: 99%

“…Current research, therefore, calls for a shift in focus in ASD intervention development towards a better understanding of the effective elements of interventions that may lead to the development of models, which can facilitate translation into the community to build capacity in service delivery for all (e.g., [20]). These include, amongst others, methods that focus on making changes to the person's environment, including schools, instead of targeting a change in the person's abilities [9•].…”

Section: Early Intervention In Asdmentioning

confidence: 99%

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Autism: A Global Perspective

Hahler

Elsabbagh

2014

Curr Dev Disord Rep

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Epidemiological data estimates the presence of 52 million cases of autism worldwide, affecting around 1 %-2 % of children across the globe. There has been a recent increase in interest regarding similarities and differences in the manifestations and the impact of the condition in different world regions. Despite this interest, however, evidence remains limited in low-and middle-income countries (LMICs), and it has been difficult to draw public and policy-maker attention to autism in particular and neurological and mental health conditions more generally in these countries. We adopt a global life-span perspective by reviewing the current state of the science of autism. We include prevalence and global burden of the condition with models for identification and intervention in community based settings from early childhood to adulthood in both high-income countries and LMICs. We conclude with a summary of relevant recent research priorities for improving quality of life for people affected by the condition around the globe.

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Section: Early Identification Of Asdmentioning

confidence: 99%

Section: Early Intervention In Asdmentioning

confidence: 99%

Autism: A Global Perspective

Hahler

Elsabbagh

2014

Curr Dev Disord Rep

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“…For example, the investigated and reported heritability of ASD is highly variable, ranging from 50% to more than 90% (17–19). Concerning ASD intervention, progress has undoubtedly been noted, but a long journey remains ahead (17, 20).…”

Section: Introductionmentioning

confidence: 99%

Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children

Jacobs

Steyaert²,

Dierickx

et al. 2019

Front. Psychiatry

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Introduction: Clinicians working with children with autism spectrum disorder (ASD) occupy an important position between parents and the wide-ranging research findings. However, it is not widely known how clinicians view and experience ASD in children, even though their perspective has been shown to significantly influence their work. Material and methods: Sixteen physicians working with preschool children without a diagnosis of (intellectual or other) disability with a (presumed) diagnosis of ASD participated in a semistructured interview. They described their professional views on ASD, and how they experienced its use in their clinical practice. The data were analyzed by applying the qualitative research method of interpretative phenomenological analysis of the data through Nvivo 11. Results: The main topic of the interviewed physicians’ views and experiences of ASD in a young child comprised three inductively established themes: 1) physicians’ views on ASD are multifaceted but fit within their personal clinical styles; 2) the ASD diagnosis is a “descriptive” part of a clinical trajectory; and 3) ASD treatment is a mix of “standard” approaches and a personalized search. These physicians’ perspectives on ASD are composed of multiple and sometimes ambiguous facets. However, their views are embedded in their personal clinical styles in general (i.e., beyond ASD) and are experienced as clinically “workable.” With the aim of finding an adequate approach to the problems parents bring to their office, many interviewed physicians say that—complementary to or rather than a classificatory diagnosis—they prefer using a personalized “profile” of a child in a therapeutic “process.” Conclusions: The interviewed physicians consider doubts and concerns to be an inherent part of their clinical work with ASD in young children, but do not experience this ambiguity as an obstacle to clinical care. These physicians deal with the multiplicity of their views on ASD by basing their eclectic views on their generally adopted clinical styles, and by selecting what works for them, and for the parents and child, from what they regard as the ‘textbook knowledge’ on ASD. We discuss the implications of these findings for translating research results to the clinic.

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“…However, the authors detected two promising targets for these interventions: ‘reciprocity of social interaction toward others’ and ‘parental synchrony’. In general, progress has been noted in this domain, although a long journey remains ahead and many challenges are still posed, between others due to the limitations in the research undertaken [ 17 , 18 ].…”

Section: Introductionmentioning

confidence: 99%

Implications of an Autism Spectrum Disorder Diagnosis: An Interview Study of How Physicians Experience the Diagnosis in a Young Child

Jacobs

Steyaert

Dierickx

et al. 2018

JCM

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Clinicians are significant translators and interpreters towards parents of the abundant literature on autism spectrum disorder (ASD). However, how clinicians experience and view ASD and an ASD diagnosis is not well known. Sixteen physicians working with young children with a (presumed) diagnosis of ASD participated in a semi-structured interview. They described their professional view on ASD and an ASD diagnosis, and how they experienced its use in their clinical practice. Interpretative phenomenological analysis of the data revealed two main topics about physicians’ experiences: how they view ASD and an ASD diagnosis, and how they experience the implications of an ASD diagnosis. The latter topic comprised three themes: (1) the ASD diagnosis leads to a particular treatment trajectory and services; (2) ambivalence about how the ASD diagnosis impacts parents and child; and (3) psycho-relational functions of the ASD diagnosis. Physicians feel that some doubts and questions are inevitable when dealing clinically with ASD and an ASD diagnosis. They also perceive that there are certain risks associated with assigning the categorical ASD diagnosis to a young child. Altogether however, ASD is perceived by physicians as a useful and valuable diagnosis both because of treatment related consequences and of several psycho-relational implications.

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Are We There Yet? The State of Early Prediction and Intervention in Autism Spectrum Disorder

Cited by 11 publications

References 6 publications

Autism: A Global Perspective

Autism: A Global Perspective

Physician View and Experience of the Diagnosis of Autism Spectrum Disorder in Young Children

Implications of an Autism Spectrum Disorder Diagnosis: An Interview Study of How Physicians Experience the Diagnosis in a Young Child

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