Are we there yet? The state of the evidence base for guidelines on breaking bad news to cancer patients

Paul, Christine; Clinton‐McHarg, Tara; Sanson‐Fisher, Rob; Douglas, H.E.; Webb, Gloria R.

doi:10.1016/j.ejca.2009.08.013

Cited by 72 publications

(50 citation statements)

References 23 publications

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“…[13][14][15] Informing the children of a parent's condition and prognosis is one of the major challenges that families face. 16 Although much research has been conducted on how health care providers tell patients that they have life-threatening diagnoses and poor prognoses, 17,18 little is known about how parents tell their children that one parent is seriously ill or dying. More research is needed in order to understand how families carry out this difficult task.…”

Section: Introductionmentioning

confidence: 99%

Telling Adolescents a Parent Is Dying

Sheehan

Draucker

Christ

et al. 2014

Journal of Palliative Medicine

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Background: When a parent is terminally ill, one of the major challenges facing families is informing children of the parent's condition and prognosis. This study describes four ways in which parents disclose information about a parent's life-threatening illness to their adolescent children. Methods: We audio-recorded and transcribed 61 individual interviews with hospice patients who were recruited from a large hospice in northeastern Ohio, their spouses/partners, and their adolescent children. The interviews were coded and analyzed using a constant comparison approach. Results and Conclusions: Families inform adolescents about the progression of a parent's terminal illness in characteristic ways that remain fairly consistent throughout the illness, and are aimed at easing the adolescents' burden and distress. The families engaged in the process of disclosure in one of four ways: measured telling, skirted telling, matter-of-fact telling, and inconsistent telling. These results will inform the development of interventions that assist families with disclosure and are tailored to each family's communication style.

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Section: Introductionmentioning

confidence: 99%

Telling Adolescents a Parent Is Dying

Sheehan

Draucker

Christ

et al. 2014

Journal of Palliative Medicine

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“…In total, the retrieved relevant publications were 245 that 55.5% supplied new data and 16.7% were intervention studies which aimed more on enhancing provider skills rather than patient outcomes (9.8% of studies) (Paul et al, 2009). …”

Section: Evidence On Breaking Bad Newsmentioning

confidence: 99%

“…However, education on delivering bad news effectively is dependent on the reliable and firm base of evidence (Paul et al 2009). Considerable amount of education and research information now exist regarding breaking bad news.…”

Section: Introductionmentioning

confidence: 99%

A Suitable Model for Breaking Bad News: Review of Recommendations

2014

JMED

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Most physicians experience difficulty when required to deliver bad news. Therefore, recommendations for facilitating breaking bad news were reviewed and a suitable model was described in this study. We performed a search with keywords "breaking bad news", "strategy", "protocol", "guideline" and "model" as the primary descriptors, and limiting the sources to English language articles with abstracts and guidelines, published since 1961 to March 2013. Two trained authors independently reviewed titles, abstracts and full texts of articles after a pilot inter-rater reliability assessment. All articles dealing specifically with breaking bad news were examined; they were descriptive and analytical studies. Recommendations and best models for facilitating breaking bad news from these articles were explored; sorted into discrete categories, summarized and framed as the best model for breaking bad news. The latest models, tools, steps and recommendations (e.g., delivering the bad news at a suitable and calm environment, giving the news with empathy and …) were examined. Although many articles have discussed the topic of breaking bad news, those that occurred repeatedly throughout these articles were summarized. Finally, the reference steps as according to the most important models for breaking bad news were presented. It is suggested that for more effective investigations, studies regarding interactional approaches in patients-medical team relationships be conducted on breaking bad news interventions.

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“…23,36 Such analyses have been used to critically examine the progression of research in many fields including Indigenous 28 and rural 37 health, alcohol misuse, 27 physical activity and falls prevention, 23 and cancer. 30,[38][39][40] The outcomes of a number of such studies have demonstrated a lack of progression over time, concluding that this may contribute to a lack of impact on public health outcomes. 23,27,40 For example, no change in the proportion of data-based and non-data-based research surrounding the delivery of multidisciplinary cancer care was reported between 1997-2001 and 2002-2006.…”

Section: Introductionmentioning

confidence: 99%

Smoking and Mental Illness: A Bibliometric Analysis of Research Output Over Time

Metse¹,

Wiggers²,

Wye³

et al. 2016

NICTOB

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Introduction: The prevalence of smoking among persons with a mental illness has remained unchanged, being 2-3 times higher than the general population in high-income countries. Assessment of the volume and characteristics of research output over time can assist in identifying research priorities to promote progress within a field. The aim of this study was to undertake such an assessment in the field of smoking and mental illness. Methods: A descriptive repeat cross-sectional study was conducted of peer-reviewed publications in Medline and PsycINFO for the periods 1993-1995, 2003-2005, and 2013-2015. Publications were classified as data-or non-data-based; data-based publications were further categorized by study type, population, setting, and for intervention-focused publications by level of evidence and research translation phase. Results: Included were 547 articles published in 1993-1995 (n = 65), 2003-2005 (n = 153), and 2013-2015 (n = 329). The number and proportion of data-based publications significantly increased over time, although their focus remained predominantly descriptive (≥83%); less than 14% of publications in any period had an intervention focus. The proportion of publications reporting on study populations with multiple diagnostic categories and recruiting from nonmental health settings, significantly increased from 1993-1995 to 2003-2005, however then plateaued by 2013-2015. The level of evidence provided by intervention-focused publications was suggested to increase over time, however there was no evident variation in translation phase. Conclusions: Research has increased over time to characterize smoking among those with a mental illness; however more is needed to inform the development and implementation of effective cessation interventions for this group. Implications: This is the first study to examine the volume and characteristics of research publications in the field of smoking and mental illness over time. The number of publications increased fivefold between

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Are we there yet? The state of the evidence base for guidelines on breaking bad news to cancer patients

Cited by 72 publications

References 23 publications

Telling Adolescents a Parent Is Dying

Telling Adolescents a Parent Is Dying

A Suitable Model for Breaking Bad News: Review of Recommendations

Smoking and Mental Illness: A Bibliometric Analysis of Research Output Over Time

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