“Are You Sure?”

Abstract

Accurate retrospective reporting of activities and symptoms has been shown to be problematic for older adults, yet standard clinical care relies on self-reports to aid in assessment and management. Our aim was to examine the relationship between self-report and sensor-based measures of activity. We administered an online activity survey to participants in our ongoing longitudinal study of in-home ubiquitous monitoring. We found a wide range of accuracy when comparing self-report with time-stamped sensor data. Of the 95 participants who completed the two-hour activity log, nearly one quarter did not complete the task in a way that could potentially be compared with sensor data. Where comparisons were possible, agreement between self-reported and sensor-based activity was achieved by a minority of participants. The findings suggest that capture of real time events with unobtrusive activity monitoring may be a more reliable approach to describing behaviors patterns and meaningful changes in older adults.

Mediatory effect of depression in the relations between cognitive reserve and cognitive abilities. Does a CR index matter?

“…These results are consistent with previous research reports (Opdebeeck et al, 2016;Szepietowska, 2019). Data from a few studies showed that a positive self-report is correlated with higher level of cognitive abilities (Amer, El Akkad, & Hassan, 2014;Cruz et al, 2016) and negative self-report is associated with lower overall cognitive capacities (MMSE) and verbal memory deficits (Wild, Mattek, Austin, & Kaye, 2015).…”

Pervasive Computing Technologies to Continuously Assess Alzheimer’s Disease Progression and Intervention Efficacy

“…Another significant challenge to assessing an individual’s mental and functional status in the often annual office visit is that both patient self-report and collateral informant data are required, each of which might be biased or unreliable due to stress, worry, or forgetfulness (Wild et al, 2015 ). Given the implicit pressure to limit the duration of the visit, there is a high demand on patients to provide concise and well-organized health histories.…”

Why Older Adults and Their Children Disagree About In-Home Surveillance Technology, Sensors, and Tracking

“…The surveilling nature of technologies that allow caregivers to remotely monitor the movements and activities of older adults could make such technologies ripe for conflict if not used in accordance with the older adults' preferences and boundaries. The dramatic influx of passive remote monitoring devices has been driven by the promise of benefits of predicting health events, supporting independence, and enhancing safety (Wild et al, 2016;Kaye, 2017); however, the development of devices without the input of older adults (Ienca et al, 2017;Meiland et al, 2017) and without explicit consideration of ethical values (Robillard, Cleland, Hoey, Nugent, 2018) has limited their efficacy and adoption (Ienca et al, 2017;Friedman, Kahn, and Borning, 2002;Berridge, 2017a). The use of these technologies poses ethical dilemmas and can threaten core values important to older adults, such as autonomy and independence, privacy, control, freedom and dignity (Alzheimer Europe, 2010;Ienca et al, 2017;Sánchez et al, 2017;Hofmann, 2013;Meiland et al, 2017;Berridge, 2016).…”