Assessing accuracy of knowledge of cognitive effects of normal ageing and mild stage of Alzheimer's disease

Bettens, Gemma; Ownsworth, Tamara; Hohaus, Lydia; McKendry, Yvette Joyce

doi:10.1080/13607863.2013.827629

Cited by 9 publications

(4 citation statements)

References 24 publications

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“…Generally, low dementia literacy is correlated with ethnicity and reported to be prevalent in BAC populations and proposed as an explanation for beliefs that depart from the medical model of dementia ( Ayalon & Areán, 2004 ; Mukadam et al, 2011 ; Mukadam, Waugh, Cooper, & Livingston, 2015 ; Werner, Goldstein, Karpas, Chan, & Lai, 2014 ; Werner, Mittelman, Goldstein, & Heinik, 2012 ). However, we did not find evidence of unusually low levels of dementia understanding in this review that had not been reported in other ethnic groups in studies conducted in France ( Breining et al, 2014 ), Istanbul ( Şahin et al, 2006 ), Ireland ( McParland, Devine, Innes, & Gayle, 2012 ), and Australia ( Bettens, Ownsworth, Hohaus, & McKendry, 2014 ). In fact, most participants included in this review had heard of dementia before being involved in a diagnosis process.…”

Section: Discussioncontrasting

confidence: 85%

A Review of Qualitative Research of Perception and Experiences of Dementia Among Adults From Black, African, and Caribbean Background: What and Whom Are We Researching?

et al. 2020

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Background and Objectives Black, African, and Caribbean (BAC) families are disproportionately affected by dementia but engage less with services. Studies reporting their experiences of dementia have tended to aggregate people from diverse backgrounds, without considering the impact of this diversity, or researchers’ ethnicities. We investigated participants’ and researchers’ ethnic identities, exploring how this relates to findings. Research Design and Methods We searched electronic databases in September 2018, for qualitative studies exploring how participants of Black ethnicity understand and experience dementia and dementia care. We reported participants’ and researchers’ ethnicities, and meta-synthesized qualitative findings regarding how ethnicity influences experiences and understanding of dementia. Results Twenty-eight papers reported 25 studies; in United States (n = 17), United Kingdom (n = 7), and Netherlands (n = 1). 350/492 (71%) of participants were in U.S. studies and described as African American; participants in U.K. studies as Caribbean (n = 45), African/Caribbean (n = 44), African (n = 28), Black British (n = 7), or Indo-Caribbean (n = 1); and in Netherlands as Surinamese Creole (n = 17). 6/25 (24%) of studies reported involving recruiters/interviewers matching participants’ ethnicity; and 14/25 (56%) involved an author/advisor from a BAC background during analysis/procedures. We identified four themes: Dementia does not relate to me; Inappropriate and disrespectful services; Kinship and responsibility; Importance of religion. Discussion and Implications Studies were mostly from a U.S. African American perspective, by researchers who were not of BAC background. Themes of dementia diagnosis and services feeling less relevant to participants than the majority population resonated across studies. We caution against the racialization of these findings, which can apply to many differing minority groups.

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Section: Discussioncontrasting

confidence: 85%

A Review of Qualitative Research of Perception and Experiences of Dementia Among Adults From Black, African, and Caribbean Background: What and Whom Are We Researching?

et al. 2020

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“…En cuanto al nivel educacional, observamos que los sujetos con estudios superiores presentaban mejores puntuaciones en las necesidades de cuidados que los que no tenían estudios o tenían estudios primarios. Este es un dato consistente en la literatura independientemente de la escala utilizada, donde se encuentran niveles más altos de conocimiento sobre la demencia tanto a nivel general como en dominios específicos como tratamiento farmacológico y factores de riesgo y de prevención 30,32,38 .…”

Section: Discussionunclassified

Nivel de conocimiento de la enfermedad de Alzheimer en cuidadores y población general

et al. 2021

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“…11 The English version has been administered in the US, UK, and Australia, 12–15 and non-English versions have also been created. 16, 17 Analysis of ADKS scores from several US regions has yielded interesting findings.…”

Section: Introductionmentioning

confidence: 99%

“…The Alzheimer’s Disease Knowledge Scale (ADKS) was developed to assess an individual’s AD-related knowledge, including risk factors, diagnosis, symptoms, course, impact, and management. 11 The English version has been administered in the United States, United Kingdom, and Australia, 12 –15 and non-English versions have also been created. 16,17 Analysis of ADKS scores from several US regions has yielded interesting findings.…”

Section: Introductionmentioning

confidence: 99%

Knowledge and Attitudes in Alzheimer’s Disease in a Cohort of Older African Americans and Caucasians

Howell

Soyinka

Parker

et al. 2015

Am J Alzheimers Dis Other Demen

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African American participation in Alzheimer’s disease (AD) research studies has been historically low. To determine if older African Americans and Caucasians had different knowledge or attitudes related to AD, we administered the Alzheimer’s Disease Knowledge Scale (ADKS) to 67 older African Americans and 140 older Caucasians in the greater Atlanta area, as well as questions targeting locus of control over general health and AD risks. Older African Americans scored slightly lower on ADKS than older Caucasians, with race only accounting for 1.57 (95% CI 0.57–2.61, p < 0.001) points of difference in a mutli-variate model. Attitudes towards AD were also similar between the two groups, but one in three (35.7%) adults reported control over general health but not AD risks. In addition to enhancing education content in outreach efforts, there is an urgent need to address the perception that future AD risks are beyond one’s own internal control.

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Assessing accuracy of knowledge of cognitive effects of normal ageing and mild stage of Alzheimer's disease

Abstract: This preliminary study introduces a new tool for assessing accuracy of knowledge of cognitive effects associated with normal ageing and mild AD, and may assist in identifying misconceptions of the ageing process.

Cited by 9 publications

References 24 publications

A Review of Qualitative Research of Perception and Experiences of Dementia Among Adults From Black, African, and Caribbean Background: What and Whom Are We Researching?

A Review of Qualitative Research of Perception and Experiences of Dementia Among Adults From Black, African, and Caribbean Background: What and Whom Are We Researching?

Nivel de conocimiento de la enfermedad de Alzheimer en cuidadores y población general

Knowledge and Attitudes in Alzheimer’s Disease in a Cohort of Older African Americans and Caucasians

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