Assessing an Intervention to Improve Clinical Trial Perceptions Among Predominately African-American Communities in South Carolina

Ford, Marvella E.; Wahlquist, Amy H.; Blake, Rashell; Green, CoDanielle; Streets, June; Fuller, Ebonie; Johnson, Erica S.; Jefferson, Melanie; Etheredge, James; Varner, Heidi; Johnson, Shannon; Glover, Saundra H.; Turner, David D.; Garrett‐Mayer, Elizabeth

doi:10.1353/cpr.2012.0047

Cited by 3 publications

(3 citation statements)

References 21 publications

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“…Other projects (Langford et al, 2010; Wallington et al, 2012) are difficult to compare because they use a single item to measure awareness of clinical trials. While some recent research (Ma et al, 2014; Quinn et al, 2013) with general community members did not examine attitudes toward CCTs, M. E. Ford et al (2012) found that a 7-item measure of attitudes improved among African Americans with poor baseline perceptions after a 30-minute segment of a 3.5-hour cancer education program.…”

Section: Discussionmentioning

confidence: 93%

Adaptation of a Cancer Clinical Trials Education Program for African American and Latina/o Community Members

et al. 2015

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The pilot study reported in this article culturally and linguistically adapted an educational intervention to promote cancer clinical trials (CCTs) participation among Latinas/os and African Americans. The single-session slide presentation with embedded videos, originally developed through a campus–community partnership in Southern California, was chosen for adaptation because it was perceived to fit the CORRECT model of innovation (credible, observable, relevant, relatively advantageous, easy to understand, compatible, and testable) and because of the potential to customize any components not identified as core, allowing them to be revised for cultural and linguistic alignment in New York City. Most of the 143 community participants (76.2%) were female; most (54.6%) were older than 59 years. More than half (78.3%) preferred to speak English or were bilingual in English and Spanish. A large proportion (41.3%) had not completed high school. Knowledge and perceived benefits and barriers regarding CCT showed small, though statistically significant, increases. There were no statistically significant group differences for changes in mean knowledge, perceived benefits, or perceived barriers when examined by ethnicity, education level, language, or other included sociodemographic variables. However, a small, but statistically significant difference in perceived barriers was observed when examined by country of origin, with the foreign born score worsening 0.08 points (SD = 0.47, p = .007) on the 5-point Likert-type scale administered posteducation compared to preeducation. Participants’ open-ended comments demonstrated the acceptability of the topic and intervention. This adaptation resulted in an intervention with the potential to educate African American and Latina/o general community members in a new geographic region about the purpose, methods, and benefits of CCTs.

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Section: Discussionmentioning

confidence: 93%

Adaptation of a Cancer Clinical Trials Education Program for African American and Latina/o Community Members

et al. 2015

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“…Education can improve apparent willingness to join a clinical trial 2,18,20,21 , but it is not clear that such willingness translates into improved trial recruitment 2,17,20 .…”

Section: Discussionmentioning

confidence: 99%

A Comparison of Patient Knowledge of Clinical Trials and Trialist Priorities

Cameron

Pond

et al. 2013

Current Oncology

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“…ARTQ (which may be found in Fallowfield et al, 1998, table 5) is used to identify a potential subject's set of attitudes and has been found to be predictive (with 80% accuracy) of trial enrollment (Fleissig et al, 2001). Among a largely African American population, which is under-represented in cancer trials, ARTQ items changed after an educational intervention, although there was no control group in this study (Ford et al, 2012).…”

Section: Attitudes To Randomized Trials Questionnairementioning

confidence: 91%

Review of measurement instruments in research ethics in the biomedical sciences, 2008−2012

Redman

2014

Research Ethics

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There is an urgent need in biomedical science to understand whether regulations are being met, prerequisite to goals of subject protection and integrity in research practice. This article presents an update of a 2006 summary of measurement instruments in research ethics with psychometric information in the years 2008−2012. A review of 25 instruments identified seven used in the time period 2008−2012 and which had accumulated at least one study of its psychometric qualities beyond its developmental phase. Many of these instruments had been accumulating psychometric information over more than a decade. Two additional but still underdeveloped instruments addressing important bioethical issues − coercion and therapeutic misconception − are included because they address important issues in research ethics. Bioethicists use a wide range of methods for knowledge development and verification; each method should meet stringent standards of quality. Measurement instruments that meet these standards have the potential to greatly ease the work of institutional review boards and other regulatory bodies as well as to enhance empirical work on human research ethics.

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Assessing an Intervention to Improve Clinical Trial Perceptions Among Predominately African-American Communities in South Carolina

Abstract: Background-African Americans (AA) are not well-represented in cancer clinical trials despite having significantly higher cancer mortality rates than their European-American (EA) counterparts.

Cited by 3 publications

References 21 publications

Adaptation of a Cancer Clinical Trials Education Program for African American and Latina/o Community Members

Adaptation of a Cancer Clinical Trials Education Program for African American and Latina/o Community Members

A Comparison of Patient Knowledge of Clinical Trials and Trialist Priorities

Review of measurement instruments in research ethics in the biomedical sciences, 2008−2012

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