Assessing burden and its determinants in caregivers of chronic kidney disease patients undergoing haemodialysis

Joseph, S.; Bhandari, Samrat Singh; Dutta, Sanjiba; Khatri, Dheeraj; Upadhyay, Alka

doi:10.5958/2394-2061.2021.00017.3

Cited by 7 publications

(6 citation statements)

References 22 publications

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“…Hemodialysis patients might lose their compliance as they receive less family support following the increasing caregiver burden. As suggested previously, family support determines patient compliance to the treatment [4,6]. Support from family caregivers is crucial to increase the motivation of the patient in undergoing hemodialysis program [18].…”

Section: Discussionmentioning

confidence: 99%

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Association between caregiver burden in family and hemodialysis compliance of chronic kidney disease patients in Aceh, Indonesia

Al-Muchtari,

Syukri,

Yusni

2023

Narra J

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Patient compliance toward undergoing treatment determines its success rate. Unfortunately, the compliance among hemodialysis patients is concerning. Supports from family has been suggested influence the patient compliance, especially from a family member who acts as a caregiver. The aim of this study was to determine the association between the level of caregiver burden and compliance in hemodialysis patients. A cross-sectional study was conducted at Dialysis Installation at Dr. Zainoel Abidin Hospital, Banda Aceh, Indonesia. The study sample was family members who accompanied hemodialysis patients. The minimal number of patients was determined of which 67 respondents were required and therefore recruited. Caregiver burden was collected using direct interview using Caregiver Burden Assessment questionnaire. The results revealed that twenty-four respondents (35.8%) had moderate caregiver burden, while there were only nine respondents (13.4%) had very low caregiver burden. The majority of the hemodialysis patients were non-compliant (n=38, 56.7%). A Chi-squared test indicated a significant association between the status of caregiver burden and the patient compliance to hemodialysis (p=0.011). These findings stress the importance of addressing caregiver burden in ensuring the compliance of patients receiving hemodialysis.

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Section: Discussionmentioning

confidence: 99%

“…Oftentimes, caregivers might experience increased levels of stress and anxiety. As emphasized previously, long term therapy contributes to a caregiver burden [4].…”

Section: Introductionmentioning

confidence: 87%

Association between caregiver burden in family and hemodialysis compliance of chronic kidney disease patients in Aceh, Indonesia

Al-Muchtari,

Syukri,

Yusni

2023

Narra J

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“…Patients receiving MHD heavily depend on their caregivers for assistance in all aspects of their daily lives [ 9 ], including fulfilling dietary requirements, managing medications, scheduling dialysis appointments, and providing transportation to the hospital [ 1 , 4 , 10 ]. The limited self-care capabilities of these patients and the frequent complications of hemodialysis increase their reliance on caregivers, aggravating the stress on the caregivers [ 5 , 11 – 14 ]. The term caregiver burden (CB) primarily refers to the adverse impact on a caregiver’s physical health or financial situation as a result of caring for a sick relative [ 1 ].…”

Section: Introductionmentioning

confidence: 99%

“…The term caregiver burden (CB) primarily refers to the adverse impact on a caregiver’s physical health or financial situation as a result of caring for a sick relative [ 1 ]. This burden stems from the prolonged and demanding caregiving responsibilities, which place significant financial, social, and psychological strain on the caregiver [ 1 , 4 , 14 ]. Understanding the determinants of the burden of care can help inform targeted measures to reduce the burden on caregivers [ 15 ].…”

Section: Introductionmentioning

confidence: 99%

The mediating effect of family resilience between coping styles and caregiver burden in maintenance hemodialysis patients: a cross-sectional study

Zhang,

Liu,

Zhang

et al. 2024

BMC Nephrol

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Background Primary caregivers of hemodialysis patients suffer from varying degrees of stress from their patients. Caring for hemodialysis patients can expose caregivers to many problems, leading to an increased burden of care and even impacting the quality of care. The purpose of our study was to examine whether family resilience could be a mediating variable moderating the relationship between patient coping styles and caregiver burden. Methods The study was a cross-sectional and descriptive-analytical study that interviewed 173 pairs of hemodialysis patients and their caregivers at a blood purification center in a public hospital in China. The Brief Coping Styles Scale (Chinese version) was used to assess individuals’ coping styles for disease and treatment. From the caregiver’s perspective, the Family Resilience Assessment Scale (Chinese version) was used to understand the resilience of families, and the Zarit Caregiver Burden Scale was used to capture the caregiver’s subjective experience of burden. Statistical analyses were conducted using SPSS version 23 and Amos version 26 to analyze the relationships between variables to examine for correlation and construct mediated effects models. Results Coping styles showed a significant positive correlation with family resilience (r = 0.347, P < 0.01) and a negative correlation with caregiver burden (r = -0.379, P < 0.01). A significant negative correlation was found between family resilience and caregiver burden (r = -0.503, P < 0.01). In the mediation model, patient coping styles directly impacted caregiver burden significantly (95% CI [-0.372, -0.058]), and coping styles indirectly impacted caregiver burden by family resilience in a significant way (95% CI [-0.275, -0.098]). Conclusions Patient coping styles directly affect caregiver burden. Family resilience is a mediating variable between patients’ coping styles and the burden on caregivers.

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“…En lo referente a las características de los cuidadores de pacientes con ERC, diversos estudios han identificado que predominan cuidadoras femeninas, casadas, de nivel educativo bajo y con empleos informales. Asimismo, reportan niveles altos de carga, disminución en la calidad de vida, niveles elevados de ansiedad y depresión, además de conflictos laborales, deterioro de la vida social y alteraciones orgánicas (Laguado, 2019;Martínez, 2020;Joseph et al, 2021). De acuerdo con la Encuesta Nacional sobre Uso de Tiempo, en 2019, aproximadamente el 97% de las personas participaban en trabajo doméstico no remunerado en su hogar; sobre las actividades específicas, el 50% tenían que ver con el cuidado de otros integrantes de la familia; de manera particular, al brindar cuidados a pacientes con enfermedades crónicas, a la semana se dedicaban en promedio 28.4 horas con cuidados pasivos y 12.8 horas exclusivas de cuidado para cuidadoras femeninas, mientras que, para cuidadores masculinos, el promedio fue de 16.3 y 6.7 horas, respectivamente (Instituto Nacional de Estadística y Geografía, 2020).…”

Section: Introductionunclassified

Propiedades psicométricas de la escala de sobrecarga del cuidador de Zarit en cuidadores de pacientes con enfermedad renal crónica

Ramírez Montalvo,

Figuerola Escoto,

Luna

et al. 2023

rmip

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La carga del cuidador es el estado resultante de la acción de cuidar a una persona dependiente o mayor, un estado que amenaza la salud. La carga es diferente de acuerdo con las características de la enfermedad y el tratamiento que recibe la persona a la que se cuida; por ello, resulta importante para su evaluación contar con instrumentos válidos y confiables para su diagnóstico, tratamiento e investigación. El objetivo del estudio fue evaluar las propiedades psicométricas de la entrevista de carga de Zarit (ZBI, por sus siglas en inglés) en cuidadores de pacientes renales en terapia de reemplazo renal (diálisis peritoneal y hemodiálisis). Se aplicó la ZBI y el inventario de ansiedad de Beck (BAI, por sus siglas en inglés) a 186 cuidadores de pacientes en tratamiento de diálisis peritoneal y hemodiálisis. Un análisis factorial exploratorio (componentes principales, rotación oblicua) detectó un factor único en el instrumento, que explica el 54.14% de la varianza y conservó 12 de sus reactivos originales. La consistencia interna puede ser considerada como excelente (? de McDonald=.919; ? de Cronbach = .91) y el instrumento tiene validez concurrente al mostrar que entre sus puntajes y los del BAI se identificó una correlación positiva con fuerza de asociación alta. Después de un estudio que muestra fortaleza en los procedimientos estadísticos para la evaluación de las propiedades psicométricas del ZBI, concluimos que es un instrumento válido y confiable para ser usado en cuidadores de pacientes en tratamiento de diálisis peritoneal y hemodiálisis, población que muestra un inminente crecimiento. Se sugieren estudios de validación con muestras más amplias, criterios de inclusión más específicos y que se lleve a cabo un análisis factorial confirmatorio.

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Assessing burden and its determinants in caregivers of chronic kidney disease patients undergoing haemodialysis

Cited by 7 publications

References 22 publications

Association between caregiver burden in family and hemodialysis compliance of chronic kidney disease patients in Aceh, Indonesia

Association between caregiver burden in family and hemodialysis compliance of chronic kidney disease patients in Aceh, Indonesia

The mediating effect of family resilience between coping styles and caregiver burden in maintenance hemodialysis patients: a cross-sectional study

Propiedades psicométricas de la escala de sobrecarga del cuidador de Zarit en cuidadores de pacientes con enfermedad renal crónica

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