Assessing Pain in Adults with Intellectual Disability: a Descriptive and Qualitative Evaluation of Ratings and Impressions Among Care-Providers

Rothschild, Allison W.; Ricciardi, Joseph N.; Luiselli, James K.

doi:10.1007/s10882-019-09663-7

Cited by 6 publications

(3 citation statements)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…With ageing, the risk of painful conditions increases, and parents or siblings are less available, which makes it even more difficult to establish the presence of pain (McGuire and Kennedy 2013;Findlay et al 2015). Some professional care providers might even be less perceptive for pain in the residents they care for because they believe that non-communication of pain suggests the absence of pain (Breau et al 2003;Rothschild et al 2019). These are possible explanations for the moderate correlation between the estimated pain intensity by the caregivers and the more objective observation with the use of the REPOS by the principal investigator.…”

Section: Discussionmentioning

confidence: 99%

Validity of the Rotterdam Elderly Pain Observation Scale for institutionalised cognitively impaired Dutch adults

Boerlage

Sneep

Rosmalen

et al. 2021

J intellect Disabil Res

View full text Add to dashboard Cite

Background The Rotterdam Elderly Pain Observation Scale (REPOS) has not yet been validated for institutionalised cognitively impaired adults. To fill this gap of knowledge, we tested psychometric properties of the REPOS when used for pain assessment in this population. Methods In this multicentre observational study, residents were filmed during a possibly painful moment and at rest. Healthcare professionals were asked to rate residents' pain by means of a Numeric Rating Scale (NRS)-proxy. Two researchers assessed pain with the REPOS and the Chronic Pain Scale for Non Verbal Adults with Intellectual Disabilities (CPS-NAID) from video-recordings. Results In total, 168 observations from 84 residents were assessed. Inter-observer reliability between the two researchers was good, with Cohen's kappa 0.72 [95% confidence interval (CI) 0.64 to 0.79]. Correlation between the REPOS and CPS-NAID for a possibly painful moment was 0.73 (95% CI 0.65 to 0.79). Sensitivity (85%) and specificity (61%) for the detection of pain were calculated with REPOS ≥ 3 and NRS ≥ 4 as a reference value. Item response theory analysis shows that the item grimace displayed perfect discrimination between residents with and without pain. Conclusion The REPOS is a reliable and valid instrument to assess pain in cognitively impaired individuals.

show abstract

Section: Discussionmentioning

confidence: 99%

Validity of the Rotterdam Elderly Pain Observation Scale for institutionalised cognitively impaired Dutch adults

Boerlage

Sneep

Rosmalen

et al. 2021

J intellect Disabil Res

View full text Add to dashboard Cite

show abstract

“… The first step in the management of pain is a comprehensive pain assessment that is suitable and applicable according to the type and degree of disability [ 4 ]. There is no consistent method for assessing pain in people with ID, various instruments approach assessment differently, and few guidelines are available for training providers to reliably detect pain in non-communicating individuals [ 133 ]. Individuals with ID and their parents/caregivers should be included in the assessment and management plan [ 134 ].…”

Section: Pain Management In Intellectual Disabilitymentioning

confidence: 99%

“…There is no consistent method for assessing pain in people with ID, various instruments approach assessment differently, and few guidelines are available for training providers to reliably detect pain in non-communicating individuals [ 133 ].…”

Section: Pain Management In Intellectual Disabilitymentioning

confidence: 99%

Pain Management in the Most Vulnerable Intellectual Disability: A Review

2023

View full text Add to dashboard Cite

This review is made up of two parts; the first part discussing intellectual disability (ID) in general, while the second part covers the pain associated with intellectual disability and the challenges and practical tips for the management of pain associated with (ID). Intellectual disability is characterized by deficits in general mental abilities, such as reasoning, problem solving, planning, abstract thinking, judgment, academic learning, and learning from experience. ID is a disorder with no definite cause but has multiple risk factors, including genetic, medical, and acquired. Vulnerable populations such as individuals with intellectual disability may experience more pain than the general population due to additional comorbidities and secondary conditions, or at least the same frequency of pain as in the general population. Pain in patients with ID remains largely unrecognized and untreated due to barriers to verbal and non-verbal communication. It is important to identify patients at risk to promptly prevent or minimize those risk factors. As pain is multifactorial, thus, a multimodal approach using both pharmacotherapy and non-pharmacological management is often the most beneficial. Parents and caregivers should be oriented to this disorder, given adequate training and education, and be actively involved with the treatment program. Significant work to create new pain assessment tools to improve pain practices for individuals with ID has taken place, including neuroimaging and electrophysiological studies. Recent advances in technology-based interventions such as virtual reality and artificial intelligence are rapidly growing to help give patients with ID promising results to develop pain coping skills with effective reduction of pain and anxiety. Therefore, this narrative review highlights the different aspects regarding the current status of the pain associated with intellectual disability, with more emphasis on the recent pieces of evidence for the assessment and management of pain among populations with intellectual disability.

show abstract

Special Population: Adults with Intellectual and Developmental Disabilities

Boggiano

Daaleman

2023

Chronic Illness Care

View full text Add to dashboard Cite

Assessing Pain in Adults with Intellectual Disability: a Descriptive and Qualitative Evaluation of Ratings and Impressions Among Care-Providers

Cited by 6 publications

References 15 publications

Validity of the Rotterdam Elderly Pain Observation Scale for institutionalised cognitively impaired Dutch adults

Validity of the Rotterdam Elderly Pain Observation Scale for institutionalised cognitively impaired Dutch adults

Pain Management in the Most Vulnerable Intellectual Disability: A Review

Special Population: Adults with Intellectual and Developmental Disabilities

Contact Info

Product

Resources

About