Assessing Patient Perspectives on Receiving Bad News: A Survey of 1337 Patients With Life-Changing Diagnoses

Mirza, Reza; Ren, Melody; Agarwal, Arnav; Guyatt, Gordon

doi:10.1080/23294515.2018.1543218

Cited by 53 publications

(62 citation statements)

References 26 publications

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“…However, some guidelines were found not completely derived from empirical data [37]. Therefore, formal guideline for breaking bad news is necessary to be made.…”

Section: Discussionmentioning

confidence: 99%

Knowing Cancer Diagnosis is a Protective Factor for the Survival of Patients With Breast Cancer : A Retrospective Cohort Study

Zhu

Tang

et al. 2020

Preprint

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Background: The health burden of breast cancer is rising in China. The effect of informed diagnosis on long-term survival has not been fully understood. This retrospective cohort study aims at exploring the association between early informed diagnosis and survival time in breast cancer patients.Methods: 12,327 breast cancer patients were enrolled between October 2002 and December 2016. Potential factors including knowing cancer diagnosis status, gender, age, clinical-stage, surgical history, the grade of reporting hospital and diagnostic year were registered. We followed up all participants every 6 months until June 2017.Results: By June 2017, 18.04% of the participants died of breast cancer. Both the 3-year and 5-year survival rate of whom knew cancer diagnosis were longer (P<0.001). By stratified analysis, except subgroups of male patients and patients in stage III, patients knowing diagnosis showed a better prognosis in all the other subgroups (P<0.05). By Cox regression analysis, it was showed that not knowing cancer diagnosis was an independent risk factor for survival in breast cancer patients (P<0.001).Conclusions: Being aware of their cancer diagnosis plays a protective role in extending the survival time in breast cancer patients, which suggests medical staff and patients’ families disclose cancer diagnosis to patients timely.

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“…However, some guidelines were found not completely derived from empirical data [37]. Therefore, formal guideline for breaking bad news is necessary to be made.…”

Section: Discussionmentioning

confidence: 99%

Knowing Cancer Diagnosis is a Protective Factor for the Survival of Patients With Breast Cancer : A Retrospective Cohort Study

Zhu

Tang

et al. 2020

Preprint

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“…These protocols consistently present similar principles: emotional support; what and how much information to provide; manner of communicating news; and setting (13). A study among 1,337 individuals with life-changing diagnoses showed that the SPIKES protocol largely reflects patients' preferences (14). This study found 83% of the surveyed medical schools in Canada reported using the SPIKES to teach how to disclose difficult news.…”

Section: Introductionmentioning

confidence: 91%

Delivering Difficult News: Simulation-Enhanced Training Improves Psychiatry Residents' Clinical Communication Skills

et al. 2021

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Background: Delivering difficult news to individuals diagnosed with mental health disorders and their family members can be challenging. The use of simulated patients (SP) is an effective teaching method to enhance clinical skills, particularly those around communication. We developed, implemented, and evaluated the effectiveness of an SP-based training module to improve psychiatric residents' clinical communication skills in delivering difficult news.Methods: We conducted 5-h workshops consisting of 3 components: (1) a high-fidelity simulation session with a professional actor; (2) a 30-min lecture; and (3) role-playing of 3 short scenarios, during which residents rotated taking on different roles (as psychiatrist, patient, or family member). We observed through a 1-way mirror and videotaped each resident's simulation session and followed it with personalized debriefing. Following the workshop, each resident received the full-length video of their simulated interview, together with a list of questions as a take-home assignment. Two months after the workshop, the residents were invited to a second SP-based session, during which 2 independent evaluators, each a board-certified psychiatrist with expertise in medical simulation, evaluated the participants' communication skills using a previously validated instrument. To avoid observation bias, the 2 evaluators rated the videotapes blind to the timing of the simulation (pre- vs. post-training). Participants completed self-report questionnaires on satisfaction and self-confidence, before, after, and 2 months following the workshop.Findings: Of the 28 psychiatric residents who participated in the training day, 24 (86%) completed the post-workshop evaluation. Mean communication score increased from 24.9 to 27.8 (paired t-test: 5.6, p < 0.001). The mean score for the self-confidence questionnaire, calculated on a 1 to 5 Likert scale, increased from 3.4 to 4.0 after the training day, and remained unchanged (4.2) 2 months later (p < 0.001).Conclusions: An SP-based training module proved useful in improving the objectively measured communication skills of psychiatric residents delivering difficult news. The training further enhanced participants' subjective sense of confidence in those clinical skills.

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“…The four most important components of SPIKES from patients' perspectives were physicians demonstrating empathy, explaining their diagnosis and its implications, taking their time rather than rushing patients, and asking patients if they understood. 46 A much smaller-scale study (n=30 patients) from Sweden found that the doctor's character and their facility in creating personal relationships affected patients' ability to cope with communications regarding the transition from curative to palliative cancer care. 47 A survey of patients from the USA with amyotrophic lateral sclerosis (n=144) and their caregivers (n=123) found that 56% of patients rated their HCP's breaking of the news as "average", "below average" or "poor".…”

Section: Comparison Of Pwms' Perspectives On Disease Progression Withmentioning

confidence: 99%

Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives

Celius¹,

Thompson²,

Pontaga³

et al. 2021

PPA

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Assessing Patient Perspectives on Receiving Bad News: A Survey of 1337 Patients With Life-Changing Diagnoses

Cited by 53 publications

References 26 publications

Knowing Cancer Diagnosis is a Protective Factor for the Survival of Patients With Breast Cancer : A Retrospective Cohort Study

Knowing Cancer Diagnosis is a Protective Factor for the Survival of Patients With Breast Cancer : A Retrospective Cohort Study

Delivering Difficult News: Simulation-Enhanced Training Improves Psychiatry Residents' Clinical Communication Skills

Disease Progression in Multiple Sclerosis: A Literature Review Exploring Patient Perspectives

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