Assessing proxy reports: agreement between children with asthma and their caregivers on quality of life

Burks, Margaret L.; Brooks, Edward G.; Hill, Vanessa; Peters, Jay I.; Wood, Pamela

doi:10.1016/j.anai.2013.05.008

Cited by 20 publications

(18 citation statements)

References 28 publications

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“…15 Subjects had a median QOL score of 5.6 (IQR, 3.7–6.5; range 2–7), indicating some impairment related to asthma, but better than scores reported previously for children with refractory asthma. 5,17 Most subjects had variability in symptom scores and QOL scores while some maintained consistent scores throughout the 2 year study period (Figure 1). Within subjects coefficient of variation for symptom scores was 24% (95% CI 21, 29; range 0–51%); variation for QOL was 15% (95% CI 13, 29; range 0–31%).…”

Section: Resultsmentioning

confidence: 95%

Mycoplasma pneumoniae and health outcomes in children with asthma

Wood

Kampschmidt

Dube

et al. 2017

Annals of Allergy, Asthma & Immunology

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Section: Resultsmentioning

confidence: 95%

Mycoplasma pneumoniae and health outcomes in children with asthma

Wood

Kampschmidt

Dube

et al. 2017

Annals of Allergy, Asthma & Immunology

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“…Thus, data presented herein are from the parents’ perspective and ‘burden profiles’ may differ from children’s point of view and may also differ by age and gender. The discordance between parent-report and child self-report has been noted in previous research [54–57]. It is known, for example, that particularly for mental disorders, parents may underestimate the impact on child’s school experience and social functioning whereas children tend to estimate their HRQOL similar to their peers [13, 43, 58].…”

Section: Discussionmentioning

confidence: 91%

Childhood chronic conditions and health-related quality of life: Findings from a large population-based study

et al. 2017

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The objective of this study was to assess the impact of health-related quality of life (HRQOL) across prevalent chronic conditions, individually and comorbid, in school-aged children in the Netherlands. 5301 children aged 4–11 years from the Dutch Health Interview Survey were included. Parents completed questionnaires regarding child and parental characteristics. HRQOL of children was measured using the Child Health Questionnaire Parent Form 28 (CHQ-PF28). Independent-t tests were used to assess differences in the mean scores of the CHQ-PF28 summary scales and profile scales between children with a prevalent chronic condition (excluding or including children with multiple chronic conditions) and children without a chronic condition. Cohen’s effect sizes (d) were calculated to assess the clinical significance of difference. The mean age of children was 7.55 (SD 2.30) years; 50.0% were boys. In children without any chronic condition, the mean score of physical summary scale (PhS) was 58.53 (SD 4.28) and mean score of the psychosocial summary scale (PsS) was 53.86 (SD 5.87). Generally, PhS and/or PsS scores in children with only one condition were lower (p<0.05) than for children without chronic conditions. When children with multiple conditions were included, mean scores of CHQ-PF28 summary and profile scales were generally lower than when they were excluded. The present study shows important information regarding the impact of prevalent chronic conditions on HRQOL in a representative population-based sample of school-aged children in the Netherlands. The information could be used for developing a more holistic approach to patient care and a surveillance framework for health promotion.

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“…It is well reported that differences often exist between child- and proxy-reported HRQOL. (Burks et al, 2013, Cremeens et al, 2006, Jardine et al, 2014) Although several possibilities for child / proxy differences exist, it may simply be that parents were more aware of these specific symptoms, and that this drove the association with proxy-reported HRQOL.…”

Section: Discussionmentioning

confidence: 99%

Symptoms in Children with Intermittent Exotropia and Their Impact on Health-Related Quality of Life

2016

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Purpose In childhood intermittent XT the frequency and type of symptoms has not been rigorously studied. We aimed to identify specific symptoms in children with intermittent XT, their frequency, and effects on health-related quality of life (HRQOL). Methods 35 children (5–13 years) with intermittent XT, without previous surgery were enrolled in a prospective cohort study. Specific symptoms were identified from a previous study involving child and parent interviews and formulated as a 22-item symptom questionnaire. A frequency Likert-type rating scale was used and a response of “sometimes” or more was considered consistent with having the symptom. All 35 children, along with one parent for each child, also completed the patient-derived intermittent XT HRQOL questionnaire (IXTQ) with Child, Proxy and Parent components. The frequency of symptoms was calculated, and the relationship between individual symptom question scores and Child, Proxy and Parent HRQOL scores, was evaluated in multivariate linear regression analyses. Results The mean number of specific symptoms was 7 (range 2 to 19). The most frequently reported were: rubbing the eye (29 [83%] of 35), problems with eyes in the sun and the eyes feeling tired (each 22, 63%). Lower (worse) Child IXTQ HRQOL scores were associated with symptoms of difficulty focusing eyes (P=0.0007), double vision (P=0.007), eyes hurting (P=0.006), and problems with eyes in the sun (P=0.06). There were weak associations between Proxy IXTQ and Parent IXTQ scores and child symptoms. Overall, 7 symptom questions were associated with reduced HRQOL in multivariate models. Conclusion Children with intermittent XT frequently experience symptoms, some of which impact the child’s HRQOL. Formal assessment of symptoms may aid understanding of the effects of intermittent XT on an individual child, and could use just the seven symptom questions associated with reduced HRQOL.

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Assessing proxy reports: agreement between children with asthma and their caregivers on quality of life

Cited by 20 publications

References 28 publications

Mycoplasma pneumoniae and health outcomes in children with asthma

Mycoplasma pneumoniae and health outcomes in children with asthma

Childhood chronic conditions and health-related quality of life: Findings from a large population-based study

Symptoms in Children with Intermittent Exotropia and Their Impact on Health-Related Quality of Life

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