Assessing the impact of caregiving on informal caregivers of adults with a mental disorder in OECD countries: A systematic literature review of concepts and their respective questionnaires

Bremmers, Leonarda; Fabbricotti, Isabelle; Gräler, Eleonora S.; Groot, Carin A Uyl-de; Roijen, Leona Hakkaart-van

doi:10.1371/journal.pone.0270278

Cited by 6 publications

(1 citation statement)

References 167 publications

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“…These effects may occur not only through changes in the care recipients' health, but also via other mechanisms such as the care recipients' engagement with healthcare services or the conditions in which these services are provided [31]. Different measures have been developed to capture these effects, focusing on aspects such as the caregiver's burden, care-related QoL, management and coping, emotional and mental health, and psychosocial impacts [76,77]. However, these measures were generally developed for evaluating interventions aimed at caregivers and are therefore mostly not suited for inclusion in economic evaluations of interventions for patients [78][79][80][81].…”

Section: Other Effectsmentioning

confidence: 99%

On spillovers in economic evaluations: definition, mapping review and research agenda

Mendoza-Jiménez,

van Exel,

Brouwer

2024

Eur J Health Econ

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An important issue in economic evaluations is determining whether all relevant impacts are considered, given the perspective chosen for the analysis. Acknowledging that patients are not isolated individuals has important implications in this context. Increasingly, the term “spillovers” is used to label consequences of health interventions on others. However, a clear definition of spillovers is lacking, and as a result, the scope of the concept remains unclear. In this study, we aim to clarify the concept of spillovers by proposing a definition applicable in health economic evaluations. To illustrate the implications of this definition, we highlight the diversity of potential spillovers through an expanded impact inventory and conduct a mapping review that outlines the evidence base for the different types of spillovers. In the context of economic evaluations of health interventions, we define spillovers as all impacts from an intervention on all parties or entities other than the users of the intervention under evaluation. This definition encompasses a broader range of potential costs and effects, beyond informal caregivers and family members. The expanded impact inventory enables a systematic approach to identifying broader impacts of health interventions. The mapping review shows that the relevance of different types of spillovers is context-specific. Some spillovers are regularly included in economic evaluations, although not always recognised as such, while others are not. A consistent use of the term “spillovers”, improved measurement of these costs and effects, and increased transparency in reporting them are still necessary. To that end, we propose a research agenda.

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