Assessing the needs of Black/African American dementia caregivers seeking emotional support

Fields, Julie A.; Forsberg, Leah K.; Knutson, Matthew; Seifert, Sara J.; Farah‐Milller, Emily A; Melius, Jodi L; Miller, Joel K; Knopman, David S.; Boeve, Bradley F.; Petersen, Ronald C.; Kramer, K.; Lunde, Angela

doi:10.1002/alz.056579

Cited by 3 publications

(2 citation statements)

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“…In addition to the beneficial impact for the user, families and caregivers may additionally experience positive outcomes (Varey et al, 2021 ; Chou et al, 2022 ). The novelty feature is represented by the combined integration of both technologies whose application and implementation may be adopted for both assessment and rehabilitative purposes in the early cognitive decline among healthy populations on the one side and may be helpful in the early stage of the MNI as predictive of future dementia (Diaz-Orueta et al, 2020 ; Fields et al, 2021 ; Lisko et al, 2021 ; Otake-Matsuura et al, 2022 ).…”

Section: Combined Rl and Vrmentioning

confidence: 99%

Combining reinforcement learning and virtual reality in mild neurocognitive impairment: a new usability assessment on patients and caregivers

Stasolla,

Di Gioia

2023

Front. Aging Neurosci.

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Section: Combined Rl and Vrmentioning

confidence: 99%

Combining reinforcement learning and virtual reality in mild neurocognitive impairment: a new usability assessment on patients and caregivers

Stasolla,

Di Gioia

2023

Front. Aging Neurosci.

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“…The CG populations most negatively affected by this shortage of services are rural individuals and minorities, especially African Americans (Sheridan et al, 2014). African American CGs have reported significantly poorer levels of emotional and community resources than non-Hispanic White CGs (e.g., Fields et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

African American Alzheimer’s Caregiver Training and Support Project 2 (ACTS2) pilot study: Outcomes analysis.

Glueckauf¹,

Kazmer²,

Nowakowski³

et al. 2022

Rehabilitation Psychology

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Purpose/Objective: The purpose of this study was to conduct an initial evaluation of the quantitative and qualitative outcomes of the African American Alzheimer's Caregiver Training and Support Project 2 (ACTS2). Quantitative objectives focused on assessing changes in caregiver depression and health status, as well as the severity of caregiving and self-care problems from pre-to postintervention. Secondary quantitative analyses examined posttreatment changes in social support and caregiver burden. Qualitative objectives included examining caregivers' perceptions of the effectiveness of in-session training activities, quality of relationships among group participants and their facilitator, and appraisals of spiritual elements of the program. Research Method/Design: Nine African American family caregivers of older adults with dementia completed the ACTS2 lay pastoral care facilitator-led, telephone cognitive-behavioral intervention. The 12-week training program included seven skills-building groups and five individual problem-solving sessions. Results: Significant improvements were found on the majority of dependent measures, including caregiver depression, health status, problem severity, and social support. Qualitative analysis highlighted the value caregivers placed on relationships with coparticipants and group facilitators, the role of spirituality in the program, and the importance of goal setting for improving caregiver distress and self-care. Conclusions/Implications: Convergence was found between quantitative and qualitative findings, particularly improvements in caregiver distress, health status, and social support. Overall, the findings of the pilot study were promising. Replication using a randomized controlled design with a larger sample size is needed to test the reliability of the findings. The benefits of tailoring intervention to caregivers' sociocultural preferences and spiritual values are also addressed. Impact and ImplicationsAlthough the number of studies on the effects of telehealth-based, cognitive-behavioral intervention for distressed African American caregivers of older adults with dementia has increased over the past few years, most investigations have not tailored treatment to the cultural preferences and faith traditions of this at-risk population. The present study represents the initial stage of Robert L. Glueckauf https://orcid.

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Telephone-based mindfulness intervention positively impacts family communication and stress within rural, African American dementia caregiving teams

Shafer,

Harr,

Roth

et al. 2024

Aging & Mental Health

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Assessing the needs of Black/African American dementia caregivers seeking emotional support

Cited by 3 publications

References 0 publications

Combining reinforcement learning and virtual reality in mild neurocognitive impairment: a new usability assessment on patients and caregivers

Combining reinforcement learning and virtual reality in mild neurocognitive impairment: a new usability assessment on patients and caregivers

African American Alzheimer’s Caregiver Training and Support Project 2 (ACTS2) pilot study: Outcomes analysis.

Telephone-based mindfulness intervention positively impacts family communication and stress within rural, African American dementia caregiving teams

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