Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey)

Boer, Dolf de; Berg, Michael van den; Ballester, Marta; Bloemeke, Janika; Boerma, W.G.W.; Bienassis, Katherine de; Groenewegen, Peter; Groene, Oliver; Kendir, Candan; Klazinga, Niek; Porter, Ian; Suñol, Rosa; Thomas, Laura; Valderas, José M; Williams, Rachel; Rijken, Mieke

doi:10.1136/bmjopen-2022-061424

Cited by 23 publications

(21 citation statements)

References 31 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…Nonetheless, CHCL has demonstrated ongoing efforts over the years to enhance patient safety culture and care quality. This commitment is further underscored by its recent participation in the OECD initiative, focusing on the outcomes and experiences of patients receiving care in family medicine practices ( 30 ).…”

Section: Discussionmentioning

confidence: 99%

Perception of Patient Safety Culture at the Primary Care Level: The Case of the Community Health Centre Ljubljana

VIRTIČ POTOČNIK,

KLEMENC-KETIŠ

2024

Slovenian Journal of Public Health

View full text Add to dashboard Cite

Background Patient safety is a crucial element of quality healthcare, and endeavours to enhance it are vital for attaining universal health coverage and improving patient outcomes. This study aimed to evaluate the perception of patient safety culture among staff at the Community Health Centre Ljubljana (CHCL). Methods A cross-sectional study was conducted in December 2022. All CHCL staff (N=1,564) from different professional groups were invited to participate in an anonymous electronic survey using the validated Slovenian version of the “Medical Office Survey on Patient Safety Culture” (MOSPSC). Mean percent positive scores for all items in each composite were calculated. Results The final sample included 377 participants (response rate, 24.1%), most of whom were women (91.5%, N=345) with different professional profiles. The mean age of the participants was 44.5 years (SD 11.1) with a mean work experience of 20.1 years (SD 12.1). The percentage of positive overall MOSPSC composite scores was 59.6%. A strong patient safety culture perception was identified in the following dimensions: Information exchange with other settings (93.5%), Organisational learning (90.2%), List of patient safety and quality issues (88.1%), Patient care tracking/follow-up (76.2 %) and Teamwork (75.0%). Weak patient safety culture was identified in the dimensions of Work pressure and pace (10.7%), Leadership support for patient safety (27.1%), Communication openness (40.9%), Office processes and standardisation (48.2%) and Overall ratings on quality and patient safety (49.4%). Conclusions CHCL leadership should address weaknesses, redesign processes, and implement strategies to reduce patient safety incidents. Establishing a just culture that encourages employees to report errors fosters transparency and facilitates learning from errors.

show abstract

Section: Discussionmentioning

confidence: 99%

Perception of Patient Safety Culture at the Primary Care Level: The Case of the Community Health Centre Ljubljana

VIRTIČ POTOČNIK,

KLEMENC-KETIŠ

2024

Slovenian Journal of Public Health

View full text Add to dashboard Cite

show abstract

“…Patients’ opinions about the care provided are an important quality measure as they can offer different perspectives and provide insights into aspects of healthcare that professionals are unaware of. Consequently, there is increasing attention given to the use of patient-reported experience measures (PREMs) in seeking to improve quality as part of value-based healthcare (VBHC) [ 2 – 4 ]. In the Netherlands, most tertiary hospitals measure patients’ experiences with the Picker Institute’s patient experience questionnaire [ 5 ].…”

Section: Introductionmentioning

confidence: 99%

The first steps in the development of a cancer-specific patient-reported experience measure item bank (PREM-item bank): towards dynamic evaluation of experiences

van Hof,

Dulfer,

Sewnaik

et al. 2024

Support Care Cancer

View full text Add to dashboard Cite

Objective Since the implementation of value-based healthcare, there has been a growing emphasis on utilizing patient-reported experience measures (PREMs) to enhance the quality of care. However, the current PREMs are primarily generic and static, whereas healthcare is constantly evolving and encompasses a wide variety of aspects that impact care quality. To continuously improve care requires a dynamic PREM. The aim of this study was to propose an item bank for the establishment of a dynamic and care-specific patient-reported evaluation. Methods In co-creation with patients, a mixed methods study was conducted involving: (1) an explorative review of the literature, (2) a focus group analysis with (ex-)patients, (3) qualitative analyses to formulate themes, and (4) a quantitative selection of items by patients and experts through prioritization. Results Eight existing PREMs were evaluated. After removing duplicates, 141 items were identified. Through qualitative analyses of the focus group in which the patient journey was discussed, eight themes were formulated: “Organization of healthcare,” “Competence of healthcare professionals,” “Communication,” “Information & services,” “Patient empowerment,” “Continuity & informal care,” “Environment,” and “Technology.” Seven patients and eleven professionals were asked to prioritize what they considered the most important items. From this, an item bank with 76 items was proposed. Conclusion In collaboration with patients and healthcare professionals, we have proposed a PREM-item bank to evaluate the experiences of patients’ receiving cancer care in an outpatient clinic. This item bank is the first step to dynamically assess the quality of cancer care provided in an outpatient setting.

show abstract

“…A standardised data collection procedure is preferred in international surveys. Due to a wide variety of legal, ethical and cultural differences in primary care, a data collection strategy is adapted for each country in agreement with the consortium [ 11 ]. To date the largest international research on the quality of primary care (Quality and Costs of Primary Care in Europe (QUALICOPC)) was carried out in 31 countries between 2010 and 2013, and it included assessment of the patients’ experiences [ 12 ].…”

Section: Introductionmentioning

confidence: 99%

Patient Reported Indicator Surveys (PaRIS): Methodological Considerations of a Field Trial in Slovenia

AMBROŽ,

KENDIR,

BOERMA

et al. 2024

Slovenian Journal of Public Health

Self Cite

View full text Add to dashboard Cite

Introduction Healthcare systems collect little information about the experiences and outcomes of care from the perspectives of patients. Patient Reported Indicator Surveys (PaRIS) is an OECD initiative to measure the outcomes and experiences of people living with chronic conditions, who are managed in primary care. Objectives To evaluate the feasibility of the methodology employed in the Field Trial of the PaRIS survey in Slovenia and propose adjustments to enhance sampling in the Main Survey. Methods In 2022, we conducted a cross-sectional observational study in 50 family medicine practices in Slovenia with a target of recruiting 70 patients per practice. We used the Slovenian version of the PaRIS questionnaires, and evaluated sampling and data collection. Results The sample contained 21 providers (42.0% response rate) and 454 patients (50.7% response rate). The provider sample did not differ from the population characteristics, while the patient sample differed significantly from the patient population. All providers completed the survey online, in 20.9±11.1 minutes and had 1.5±1.5 restarts. Most patients (74.9%) completed the survey online and needed 36.0±22.6 minutes, and the mean number of restarts was 1.4±2.2. Conclusion Based on the results, we recommend conducting a methodology test for quality assessment studies before initiating the main survey. Legal issues should be addressed and considered early when developing the methodology. It is also necessary to be aware of the feasibility of the study in practice, to avoid a low participation rate.

show abstract

Assessing the outcomes and experiences of care from the perspective of people living with chronic conditions, to support countries in developing people-centred policies and practices: study protocol of the International Survey of People Living with Chronic Conditions (PaRIS survey)

Cited by 23 publications

References 31 publications

Perception of Patient Safety Culture at the Primary Care Level: The Case of the Community Health Centre Ljubljana

Perception of Patient Safety Culture at the Primary Care Level: The Case of the Community Health Centre Ljubljana

The first steps in the development of a cancer-specific patient-reported experience measure item bank (PREM-item bank): towards dynamic evaluation of experiences

Patient Reported Indicator Surveys (PaRIS): Methodological Considerations of a Field Trial in Slovenia

Contact Info

Product

Resources

About