Background
Uncontrolled asthma is a common highly-morbid condition with worse outcomes in low-income and minority patients in part due to barriers accessing and engaging with healthcare. We developed a patient advocate to educate about and assist with navigating access to care and provider-patient communication. Participants completed an End of Study Questionnaire (ESQ) which was analyzed to assess experience and engagement with the protocol.
Objective
This study uses qualitative analysis to evaluate participant experience with the Patient Advocate and control group interventions.
Methods
The ESQ aimed to prompt open-ended discussion of study experience. Questions were developed from patient focus groups about the patient advocate intervention (PAI), and were revised based on early responses. The questionnaire was administered after 12 months of study participation: 6 months of control or PAI, followed by 6-months of follow-up. Answers were evaluated using qualitative coding and a Grounded Theory analytical approach.
Results
102 low-income and minority adults with moderate or severe asthma who have completed the study protocol at the time of publication (approximately one-third of total participants) found PAI and control group activities acceptable. Four themes emerged from both groups: 1) appreciation of interpersonal and educational interaction, 2) perception of improved healthcare adherence, 3) preparedness for physician appointments, 4) improved patient-provider communication. Attention from study personnel and review of asthma-related information was unanimously well-received and empowered patients’ active healthcare participation.
Conclusion
Patient engagement and empowerment were elicited by perceived education and personal attention. This study suggests a low-resource, feasible method to improve patient engagement.