Assessment of a condition‐specific quality‐of‐life measure for patients with developmentally absent teeth: validity and reliability testing

Akram, Ansa; Ireland, Anthony J; Postlethwaite, Keith; Sandy, Jonathan R; Jerreat, AS

doi:10.1111/ocr.12018

Cited by 10 publications

(6 citation statements)

References 18 publications

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“…Only the ‘graded response scale items applicable to everyone’ of the ChildQoLDAT were included in the OHrQoL analyses and therefore the following items were excluded: informative items (1a, 1b, 1d, 1e, 2d, 2e and 6a), Yes/No items (1c, 3b and 5j) and the ‘graded response scale items not applicable to everyone’ (2f and 5k) [12,13]. Two items were left unanswered by ≥15% of the oligodontia patients (2b and 3h) and these were excluded as well.…”

Section: Resultsmentioning

confidence: 99%

“…The translated ChildQoLDAT was used for this study [12,13]. A disadvantage of this questionnaire is the negative formulation of almost all the items.…”

Section: Discussionmentioning

confidence: 99%

“…For this purpose, the items of the ChildQoLDAT, developed by Akram et al, were translated into Dutch [12,13]. The Guillemin et al [15] and Wink et al [16] translation approach was used on the ChildQoLDAT for the Dutch setting.…”

Section: Methodsmentioning

confidence: 99%

“…As the management of oligodontia is a complex process and is likely to differ from children not diagnosed with oligodontia, there is a need for a condition-specific OHrQoL questionnaire [12]. Akram et al tried to bridge that omission by developing a condition-specific quality-of-life-in-children-with-developmentally-absent-teeth (ChildQoLDAT) measure for children between 11 and 18 years of age [12,13]. Oligodontia condition-specific problems can be recognized and understood better with the items of this questionnaire, yet it has never been used to describe the differences in OHrQoL between children with oligodontia and unaffected controls.…”

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Oral Health-Related Quality of Life in Dutch Children Diagnosed with Oligodontia. A Cross-Sectional Study

Filius

Cune

M.Creton

et al. 2019

IJERPH

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There is need to get insight into condition-specific oral health-related quality of life in Dutch children with oligodontia. Between October 2014 and March 2017, 11–17-year-old oligodontia patients were approached to join a study assessing the impact of oligodontia on condition-specific oral health-related quality of life (OHrQoL). The patients received a condition-specific OHrQoL questionnaire prior to the start of orthodontic treatment. Non-oligodontia children in the same age group, but also requiring orthodontic treatment, were approached to serve as a control. The Fisher’s Exact Test was used for comparison purposes with the control group because of the small group sizes. Furthermore, subgroup analyses were performed for gender, age, number of congenitally missing teeth, tooth agenesis in the aesthetic region, orthodontic classification and microdontia via independent t-tests. p-values of <0.05 were considered statistically significant. Twenty-eight oligodontia patients and 23 controls agreed to participate. The oligodontia patients’ scores were comparable to the controls except for the items about dental appearance and treatment complexity. The impact of oligodontia on OHrQoL in youngsters is limited and mainly concerns dental appearance and the complexity of the treatment.

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Section: Resultsmentioning

confidence: 99%

“…The translated ChildQoLDAT was used for this study [12,13]. A disadvantage of this questionnaire is the negative formulation of almost all the items.…”

Section: Discussionmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Oral Health-Related Quality of Life in Dutch Children Diagnosed with Oligodontia. A Cross-Sectional Study

Filius

Cune

M.Creton

et al. 2019

IJERPH

View full text Add to dashboard Cite

show abstract

“…Patients' perceptions of outcomes have been identified as a valuable source of information that can be used to improve services and Lord Darzi's report (2008) "High Quality of Care for All" highlighted the need for the success of a treatment intervention to include patient's views. A validated, hypodontia specific questionnaire has been designed to assess the impact of the condition on quality of life (QoL) and to investigate the effects of treatment (Akram et al, 2011(Akram et al, , 2013 and this questionnaire is an important tool for the future. Whilst questionnaire based studies provide important findings, they do not always capture the detail which can be important when planning dental services, and this is where qualitative methods add to the overall picture and can be used to gain invaluable information regarding patients' perceptions.…”

mentioning

confidence: 99%

Evaluation of the orthodontic component of the hypodontia care pathway

O’Keeffe

Collins

Cunningham

2016

Journal of Orthodontics

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IntroductionThe prevalence of hypodontia in the permanent dentition is estimated to be 3.5-6% in the United Kingdom (Brook, 1974), with a 1.22 times more likely chance of hypodontia occurring in females than in males (Khalaf et al. 2014). The aetiology is complex, with genetics, the environment and developmental timing all believed to be factors which play a role (Cobourne, 2007; Fleischmannova et al., 2008).Patients with hypodontia commonly present complaining of spacing between their teeth and poor dental aesthetics (Hobkirk et al., 1995). Missing anterior teeth are considered to be one of the most unattractive dental traits (Shaw, 1981). Individuals who have a less aesthetic dental appearance, such as conspicuous spacing, may also attract unfavourable social responses and become targets for nicknames and teasing from other children (Shaw et al., 1980; Seehra et al., 2011). Hypodontia has been proven to affect social and emotional well-being, although this does not appear to be related to the number of teeth missing (Kotecha et al., 2013).Hypodontia is often treated by a multi-discplinary team approach, with input from orthodontics, paediatric dentistry, and prosthodontics. A multi-disciplinary approach meets the needs of the patients and their families by reducing the number of appointments required and by providing an opportunity for patients to meet all relevant specialties at the outset (Tams and Ashley, 2013), however, as yet there are no defined care pathways in place for hypodontia patients within the UK National Health Service. Ideally patients 4 would make predictable transitions through each stage of the pathway and this would result in them receiving timely and optimal levels of care.Part of the care pathway process also involves assessing outcomes and until relatively recently measuring orthodontic outcomes was primarily clinician led, using tools such as PAR scores or cephalometric outcomes. To date there are few tools in place to measure outcome from a patient perspective. Keles and Bos (2013) carried out a study in the Netherlands to identify specific factors that influenced patient satisfaction with orthodontic treatment and showed that the patient-doctor relationship was the most important factor contributing to patient satisfaction. Feldman (2014) carried out a similar study in Sweden and found that care and attention were the factors that showed the highest correlation with satisfaction. Neither of these studies investigated hypodontia specifically but it is likely that these findings are of importance to all orthodontic patients. Patients' perceptions of outcomes have been identified as a valuable source of information that can be used to improve services and Lord Darzi's report (2008) "High Quality of Care for All" highlighted the need for the success of a treatment intervention to include patient's views. A validated, hypodontia specific questionnaire has been designed to assess the impact of the condition on quality of life (QoL) and to investigate the effects of treatment (Akram et a...

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Hypodontia and its impact on a young person's quality of life, esthetics, and self-esteem

Johal

Huang

Toledano

2022

American Journal of Orthodontics and Dentofacial Orthopedics

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Assessment of a condition‐specific quality‐of‐life measure for patients with developmentally absent teeth: validity and reliability testing

Abstract: This study has demonstrated that the newly developed condition-specific quality-of-life questionnaire is both valid and reliable for use in young patients with hypodontia.

Cited by 10 publications

References 18 publications

Oral Health-Related Quality of Life in Dutch Children Diagnosed with Oligodontia. A Cross-Sectional Study

Oral Health-Related Quality of Life in Dutch Children Diagnosed with Oligodontia. A Cross-Sectional Study

Evaluation of the orthodontic component of the hypodontia care pathway

Hypodontia and its impact on a young person's quality of life, esthetics, and self-esteem

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