Assessment of dietary compliance to Gluten Free Diet and psychosocial problems in Indian children with celiac disease

Chauhan, Jignesh; Kumar, Praveen; Dutta, A. K.; Basu, Srikanta; Kumar, Arun

doi:10.1007/s12098-010-0092-3

Cited by 63 publications

(92 citation statements)

References 22 publications

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“…These results are similar to other studies 25. Good compliance in young children could be due to parents’ awareness about the disease.…”

Section: Discussionsupporting

confidence: 92%

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Dietary compliance in Iranian children and adolescents with celiac disease

Taghdir¹,

Honar²,

Mazloomi³

et al. 2016

JMDH

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IntroductionCeliac disease (CD) is caused due to intake of gluten, a protein component in wheat, barley, and rye. The only treatment currently available for CD is strict lifetime adherence to a gluten-free diet (GFD) which is a diet that excludes wheat, barley, and rye. There is limited information on barriers to following a GFD. The present study aimed to investigate the compliance with a GFD, barriers to compliance, and the impact of compliance on the quality of life (QOL) in Iranian children and adolescents suffering from CD.MethodsIn this cross-sectional study, a total of 65 known cases of CD (both males and females), diagnosed in Namazi Hospital, a large referral center in south of Iran, selected by census were studied in 2014. Dietary compliance was assessed using a questionnaire. A disease-specific QOL questionnaire for children with CD (the celiac disease DUX [CDDUX]) was used. Comparisons between categorical variables were performed using chi-square test.ResultsSixty-five patients, 38 females (58.5%) and 27 (41.5%) males, were surveyed. Mean (± standard deviation [SD]) age of the respondents was 11.3 (±3.8) years. Dietary compliance was reported by 35 (53.8%) patients. The mean (± SD) CDDUX score was higher in dietary-compliant patients (33.5 [±19.4] vs 26.7 [±13.6], respectively, P=0.23). The score of CDDUX in parents of patients in dietary-compliant group was more than the noncompliant patients (28.1 [±13.5] vs 22.1 [±14], respectively, P=0.1). Barriers to noncompliance were poor or unavailability (100%), high cost (96.9%), insufficient labeling (84.6%), poor palatability (76.9%), and no information (69.23%).ConclusionApproximately half of the patients with CD reported dietary compliance. Poor or unavailability was found to be the most important barrier contributing to noncompliance. The QOL was better in compliant patients. Proposed strategies to improve compliance are greater availability of gluten-free products, better food labeling, and better education about the diet and condition.

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“…These results are similar to other studies 25. Good compliance in young children could be due to parents’ awareness about the disease.…”

Section: Discussionsupporting

confidence: 92%

“…Higher noncompliance rate in female patients may be explained by family pressure as they approach marriage age,25 which is a social issue in Iranian and some other Asian cultures. Noncompliance was more common in female patients aged 10–18 years (ie, 56%) compared to females <10 years of age (ie, 46.2%).…”

Section: Discussionmentioning

confidence: 99%

Dietary compliance in Iranian children and adolescents with celiac disease

Taghdir¹,

Honar²,

Mazloomi³

et al. 2016

JMDH

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“…We understand that the low number of participants in this research is a strong limitation, nonetheless these results support research done in Europe (21) , Australia (22) , India (23) and in the United States (24) , where studies show a need to care for the biopsychosocial sphere. This way this study hitherto fulfills an existing gap in the literature in Brazil, that thus far had not looked to psychosocial issues and its impacts on CD treatment.…”

Section: Discussionsupporting

confidence: 76%

The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease

Rocha

Gandolfi

Santos

2016

Rev. esc. enferm. USP

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Objective:To comprehend the psychosocial effects that Coeliac Disease diagnosis entails. Method: Qualitative study, achieved through semi-structured interviews, analyzed in accordance to the Association of ideas map Technique. A total 12 recently-diagnosed patients from the Centro de diagnóstico, tratamento e apoio ao paciente com doença celíaca (Coeliac Disease Prevention, Support and Treatment Diagnose Centre) from the Hospital Universitário de Brasília (University Hospital of Brasilia) were enrolled for the study, between the years of 2013 and 2014. Results: The interviewed patients presented negative impacts in three categories: psychoaffective, family and social relationships, indicating issues with social readaptation once the treatment had started, as well as difficulty coping with a gluten free diet. Conclusion: Coeliac Disease holds substantial impact on psychological functions, family and social relationships to diagnosed patients, requiring a clinical biopsychological assistance for better adherence to treatment and patients quality of life. DESCRIPTORS

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“…Apart from a visual analogue score scale which consists of an unmarked line with the anchor sentences ‘I never adhere to my diet’ and ‘I always adhere to my diet’ at each end,162 there are a number of questionnaires evaluating self-reported GFD adherence and food frequency in the English language163 – 166 that are also available in other languages 167 – 171. These questionnaires should be augmented by a dietetic review, which is a useful tool to tease out inadvertent gluten intake and to provide education for a balanced and adequate nutrient intake.…”

Section: Follow-upmentioning

confidence: 99%

Diagnosis and management of adult coeliac disease: guidelines from the British Society of Gastroenterology

Ludvigsson

Bai

Biagi

et al. 2014

Gut

946

1,032

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A multidisciplinary panel of 18 physicians and 3 non-physicians from eight countries (Sweden, UK, Argentina, Australia, Italy, Finland, Norway and the USA) reviewed the literature on diagnosis and management of adult coeliac disease (CD). This paper presents the recommendations of the British Society of Gastroenterology. Areas of controversies were explored through phone meetings and web surveys. Nine working groups examined the following areas of CD diagnosis and management: classification of CD; genetics and immunology; diagnostics; serology and endoscopy; follow-up; gluten-free diet; refractory CD and malignancies; quality of life; novel treatments; patient support; and screening for CD.

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Assessment of dietary compliance to Gluten Free Diet and psychosocial problems in Indian children with celiac disease

Cited by 63 publications

References 22 publications

Dietary compliance in Iranian children and adolescents with celiac disease

Dietary compliance in Iranian children and adolescents with celiac disease

The psychosocial impacts caused by diagnosis and treatment of Coeliac Disease

Diagnosis and management of adult coeliac disease: guidelines from the British Society of Gastroenterology

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