Assessment of distress and quality of life in rare cancers

Bergerot, Cristiane Decat; Bergerot, Paulo Gustavo; Philip, Errol J.; Domenico, Edvane Birelo Lopes De; Manhães, Maria Fernanda Marcusso; Pedras, Renata Nunes; Salgia, Meghan; Dizman, Nazlı; Ashing, Kimlin Tam; Li, Min; Dale, William; Pal, Sumanta K.

doi:10.1002/pon.4873

Cited by 32 publications

(38 citation statements)

References 29 publications

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“…Although there is dearth of literature that documents the experiences of those living with PSC and their caregivers, many of the findings of this study are comparable to the experiences of those with other rare, serious or progressive illnesses. For instance, the presence of psychological distress is notable in those living with rare or advanced cancers [21,22]. Reduced physical…”

Section: Comparison To Previous Literaturementioning

confidence: 99%

The Primary Sclerosing Cholangitis (PSC) Wellbeing Study: Understanding psychological distress in those living with PSC and those who support them

Ranieri

Kennedy

Walmsley³

et al. 2020

PLoS ONE

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Section: Comparison To Previous Literaturementioning

confidence: 99%

The Primary Sclerosing Cholangitis (PSC) Wellbeing Study: Understanding psychological distress in those living with PSC and those who support them

Ranieri

Kennedy

Walmsley³

et al. 2020

PLoS ONE

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“…In addition, we report a case of severe anxiety associated with a rare cancer. Patients diagnosed with rare cancers report more severe anxiety than the general population of patients with cancer [6]. Our case did not respond to benzodiazepines, and it was difficult to use an SSRI as the next drug.…”

Section: Introductionmentioning

confidence: 57%

“…The prevalence of anxiety in patients with cancer is 10%-13% [1,2]. Patients diagnosed with rare cancers report more severe anxiety than the general population of patients with cancer [6].…”

Section: Discussionmentioning

confidence: 99%

Effective Therapy Against Severe Anxiety Caused by Cancer: A Case Report and Review of the Literature

Sakamoto

Koyama

2020

Cureus

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Anxiety can make it difficult for patients to manage their illness. Therefore, it is important to reduce their anxiety if possible. However, few studies have examined the efficacy of drugs in the treatment of anxiety in patients with cancer. Our case had failed to respond to benzodiazepines, and it was difficult to use a selective serotonin reuptake inhibitor (SSRI) as the next drug. This case report describes the effective use of quetiapine to treat anxiety. We report this rare case along with a literature review. Few studies have assessed the treatment of anxiety in patients with rare cancers. In our case, quetiapine effectively alleviated anxiety associated with cystic adenoid carcinoma. However, in clinical practice, it is possible that anxiety is treated without differentiating the effects of cancer status, e.g. life prognosis, treatment progress. In our patient, benzodiazepines had no effect on anxiety. Thus, different drugs may be required to treat anxiety associated with cancer. The present study demonstrated that quetiapine is a useful modality for the palliative care of patients with rare cancer and intractable anxiety. Quetiapine may be an effective alternative to benzodiazepines (BZ) and SSRIs for treating anxiety in patients with cancer. However, further investigation is needed to clarify the efficacy of treatments for anxiety associated with rare cancers.

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“…A large proportion of patients reported moderate to severe distress, close to the one described among patients with metastatic cancer Mitchell et al, 2011) and higher than the one reported in a sample of Brazilian patients treated in private or public health care settings (Bergerot et al, 2016;Bergerot et al, 2017). This difference can be understood by the epidemiological characteristic of this disease (rare cancers), age group (young age is a risk factor), site of disease and treatment modalities (Acquati et al, 2018;Bergerot et al, 2018;Carpentier et al, 2011;Giese-Davis et al, 2012;Horick et al, 2017;Hoyt et al, 2013). But, also, by problems reported by these patients (e.g., pain, fatigue, worry and financial problems), suggesting a similar relevance to patients undergoing treatment, which requires extended psychosocial support (Jacobsen, Nipp, & Ganz, 2017).…”

Section: Discussionmentioning

confidence: 88%

Biopsychosocial needs of survivors of testicular cancer and evidence of validation of a brief scale

Manhães

Okuma

Pedras

et al. 2019

Estud. psicol. (Campinas)

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The favorable prognosis of testicular cancer does not minimize immediate and late biopsychosocial implications. This study sought to determine these needs, and to evaluate the evidence of validation of a brief and specific scale for this population. A sample of 29 survivors of testicular cancer (n = 29) was assessed for distress (Distress Thermometer), anxiety and depression (Hospital Anxiety and Depression Scale), quality of life and cognitive impairment (Functional Assessment of Chronic Illness Therapy-General and Cognitive Function), and specific needs (Cancer Assessment for Young Adults-Testicular). It was observed a high prevalence of distress (41.4%), a low prevalence of anxiety (6.9%) and depression (6.9%), and a moderate impact on quality of life and cognition. Self-image and sexual function were the most preponderant problems. The evidence of validation of Cancer Assessment for Young Adults-Testicular12 was verified in the psychometric analysis. Notably, biopsychosocial needs identified on global scales, and particularly in Cancer Assessment for Young Adults-Testicular12, assisted in understanding these specificities and in therapeutic planning.

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Assessment of distress and quality of life in rare cancers

Abstract: Patients diagnosed with rare cancer reported poorer psychosocial outcomes and impaired quality of life when compared to the general population of cancer patients. Certain demographic groups (eg, women and younger patients) may benefit from targeted psychosocial interventions.

Cited by 32 publications

References 29 publications

The Primary Sclerosing Cholangitis (PSC) Wellbeing Study: Understanding psychological distress in those living with PSC and those who support them

The Primary Sclerosing Cholangitis (PSC) Wellbeing Study: Understanding psychological distress in those living with PSC and those who support them

Effective Therapy Against Severe Anxiety Caused by Cancer: A Case Report and Review of the Literature

Biopsychosocial needs of survivors of testicular cancer and evidence of validation of a brief scale

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