Assessment of neurobehavioural disability: A review of existing measures and recommendations for a comprehensive assessment tool

Wood, Rodger Ll.; Alderman, Nick; Williams, Claire

doi:10.1080/02699050802491271

Cited by 24 publications

(11 citation statements)

References 59 publications

(72 reference statements)

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“…Interestingly, the subactivity with the highest value of ICT was Supervision Time. This is known to be a major component of ICT for adults with neurological disability [ 27 ] and is required when patients are at risk of harming themselves because of either physical or cognitive loss of autonomy. This large amount of informal caregiving time found here raises concerns because it is unpaid and is frequently delivered by working-aged IC.…”

Section: Discussionmentioning

confidence: 99%

Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis

Bayen

Papeix

Pradat‐Diehl

et al. 2015

Behavioural Neurology

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Background. Home care for patients with Multiple Sclerosis (MS) relies largely on informal caregivers (ICs). Methods. We assessed ICs objective burden (Resource Utilization in Dementia measuring informal care time (ICT)) and ICs subjective burden (Zarit Burden Inventory (ZBI)). Results. ICs (N = 99) were spouses (70%), mean age 52 years, assisting disabled patients with a mean EDSS (Expanded Disability Status Scale) of 5.5, with executive dysfunction (mean DEX (Dysexecutive questionnaire) of 25) and a duration of MS ranging from 1 to 44 years. Objective burden was high (mean ICT = 6.5 hours/day), mostly consisting of supervision time. Subjective burden was moderate (mean ZBI = 27.3). Multivariate analyses showed that both burdens were positively correlated with higher levels of EDSS and DEX, whereas coresidency and IC's female gender correlated with objective burden only and IC's poor mental health status with subjective burden only. When considering MS aggressiveness, it appeared that both burdens were not correlated with a higher duration of MS but rather increased for patients with severe and early dysexecutive function and for patients classified as fast progressors according to the Multiple Sclerosis Severity Score. Conclusion. Evaluation of MS disability course and IC's personal situation is crucial to understand the burden process and to implement adequate interventions in MS.

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Section: Discussionmentioning

confidence: 99%

Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis

Bayen

Papeix

Pradat‐Diehl

et al. 2015

Behavioural Neurology

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“…Despite the limitations of this method, several authors still recommended estimating the pre-morbid level of functioning by asking the informant (a caregiver) to retrospectively rate the patients on measures of behavioural problems [e.g. [21]]. This retrospective assessment of behavioural changes actually remains the most common method to obtain information about the degree of changes from the pre-morbid to the current behaviour.…”

Section: Discussionmentioning

confidence: 99%

“…We used questionnaires completed by the caregivers only because lack of awareness may constitute a threat to the validity of a questionnaire completed by the patients themselves [see [9,21]].…”

Section: Methodsmentioning

confidence: 99%

How Impulsivity Relates to Compulsive Buying and the Burden Perceived by Caregivers after Moderate-to-Severe Traumatic Brain Injury

Rochat¹,

Beni²,

Billieux³

et al. 2011

Psychopathology

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Background: Impulsivity is a core feature in patients with traumatic brain injury (TBI). The aim of the study is to investigate how a specific dimension of impulsivity, namely urgency (the tendency to act rashly when distressed), might shed new light on the aetiology of compulsive buying proneness in patients with TBI and to explore how urgency and compulsive buying relate to the burden perceived by the caregivers. Sampling and Methods: Caregivers of 74 patients with TBI were given 3 questionnaires in order to assess their subjective burden as well as patients’ impulsivity and compulsive buying proneness. Results: Both urgency and compulsive buying tendencies significantly increased after TBI. Furthermore, path analyses revealed that current urgency was both directly and indirectly related to the subjective burden perceived by the caregivers, and this indirect pathway was mediated by compulsive buying. Conclusion: Urgency plays a central role in understanding specific problematic behaviours after TBI and their impact on caregivers. These findings are discussed in light of the cognitive processes underlying the urgency component of impulsivity in relation to the occurrence of compulsive buying behaviours after TBI.

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“…However, a systematic review by Cusimano et al 18 reported that the Aggression subscale did not correlate with the reference test used, suggesting inadequate construct validity for this subscale. In addition, in a recent review, Wood et al 19 argued that subsequent investigations of the factor structure of the NFI showed some variation from that originally identified, suggesting structural validity problems. In light of the widespread use of NFI, these reports are concerning and indicate a need of further refinement of the NFI subscales.…”

mentioning

confidence: 99%

“…The findings suggesting issues with structural validity of the NFI 19 involved comparing results from 2 analytical approaches, namely, principal components analysis (PCA) and confirmatory factor analysis (CFA). In PCA, the variables are experientially associated, thus sample dependent.…”

mentioning

confidence: 99%

Measuring Neurobehavioral Functioning in People With Traumatic Brain Injury: Rasch Analysis of Neurobehavioral Functioning Inventory

Czuba

Kersten

Kayes

et al. 2016

Journal of Head Trauma Rehabilitation

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Assessment of neurobehavioural disability: A review of existing measures and recommendations for a comprehensive assessment tool

Abstract: The authors propose, promote and encourage the development of further measures with improved reliability and validity to help ensure that the unique characteristics of NBD are captured more effectively.

Cited by 24 publications

References 59 publications

Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis

Patterns of Objective and Subjective Burden of Informal Caregivers in Multiple Sclerosis

How Impulsivity Relates to Compulsive Buying and the Burden Perceived by Caregivers after Moderate-to-Severe Traumatic Brain Injury

Measuring Neurobehavioral Functioning in People With Traumatic Brain Injury: Rasch Analysis of Neurobehavioral Functioning Inventory

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