Assessment of palliative care needs of patients/families living with cancer in a developing country

Ndiok, Akon; Ncama, Busisiwe Purity

doi:10.1111/scs.12568

Cited by 24 publications

(41 citation statements)

References 18 publications

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“…Herrera and colleagues [34] remind us that PC provision should not be determined by the patient's geographical location, his/ her disease condition, or ability to pay, but on needs alone. Other studies [35,36] further support the contention that needs assessed deliberately among patients provide useful information to plan programmes and interventions that meet the explicit requirements of a local population. The ndings of this study are fundamental in developing PC services in Bhutan.…”

Section: Discussionmentioning

confidence: 89%

“…Studies have, however, found that cancer patients in the developed countries had higher unmet needs related to psychological and spiritual domains compared to patients in developing countries, whose main needs were pain medication, food and nancial support [74]. In developing countries, patients also had information needs about diagnosis, treatment options and side effects along with the need for psychological and spiritual support [35].…”

Section: Discussionmentioning

confidence: 99%

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Palliative Care Needs among Patients with Advanced Illnesses in Bhutan

Laabar

Saunders

Auret

et al. 2020

Preprint

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Background Palliative care improves the quality of lives of patients and families affected by life-limiting illnesses through the prevention and relief of suffering. While palliative care is well established in developed countries, it is inadequate or non-existent in most developing countries. Palliative care is an emerging concept in Bhutan, a tiny Himalayan Kingdom. A small community palliative care service is available in the national referral hospital with three dedicated inpatient palliative care beds. This study explored the needs for palliative care among patients diagnosed with advanced illnesses and is a component of a larger project aimed to inform a suitable palliative care model for the country.Methods This is a cross-sectional descriptive study. A survey, using a structured questionnaire including the EORTC QLQ-C30, was carried out among patients with advanced illness in hospitals, primary care units and communities across the country. Purposeful and snowball sampling strategies were used to recruit study participants.Results Seventy (76%), out of 93 eligible patients, agreed to participate in the survey. Participants reported low to moderate scores on physical, role, emotional, cognitive and social functioning, a moderate score for the global health/ quality of life scale and moderately high (worse) scores in symptoms including fatigue, pain, insomnia, loss of appetite and the financial impact from the disease.Conclusions The symptom burden experienced by patients affected by terminal and advanced illnesses demonstrates the need for palliative care in Bhutan. These findings will help inform the development of a public health-focused palliative care model, modified to the Bhutanese context, as recommended by the World Health Organization.

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Section: Discussionmentioning

confidence: 89%

Section: Discussionmentioning

confidence: 99%

Palliative Care Needs among Patients with Advanced Illnesses in Bhutan

Laabar

Saunders

Auret

et al. 2020

Preprint

View full text Add to dashboard Cite

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“…In order for nurses to provide early person‐centred palliative care, it is important that they have high levels of awareness and knowledge about the concept of person‐centred palliative care, as well as clarity of beliefs and values about person‐centred approaches to palliative care . In addition, an integrated approach to palliative care services needed .…”

Section: Discussionmentioning

confidence: 99%

“…In order for nurses to provide early person-centred palliative care, it is important that they have high levels of awareness and knowledge about the concept of person-centred palliative care, as well as clarity of beliefs and values about personcentred approaches to palliative care (8,9). In addition, an integrated approach to palliative care services needed (41). In studies to determine if nurses have sufficient knowledge of person-centred approaches to palliative care, it was shown that there is an increased need for further education of nurses in palliative care (17,18,42).…”

Section: Discussionmentioning

confidence: 99%

Nurses’ perceptions of early person‐centred palliative care: a cross‐sectional descriptive study

Kmetec

Štiglic

Lorber

et al. 2019

Scandinavian Caring Sciences

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Background Palliative care is aimed at improving the quality of life of an individual with chronic noncommunicable disease and their care partners. Limitations in the provision of palliative care are mainly lack of knowledge and experience by nurses, fear of treating palliative persons, loss of control over treatment and fear of providing poor‐quality palliative care to persons and care partners. Aim The aim of this study was to investigate the perception, knowledge and attitudes of palliative care by nurses who use palliative care approaches in practice, as well as the difference in perception, knowledge and attitudes of palliative care between nurses in Slovenia and Finland. Methods We conducted a cross‐sectional descriptive study. The survey included 440 nurses in clinical environments in Slovenia and Finland with a completed bachelor, master or doctoral level of education. Results We found statistically significant differences between both countries in the perception of palliative care. Differences between the two countries in the knowledge of palliative care were not confirmed. We confirmed statistically significant differences between both countries in the attitudes of palliative nursing care. Conclusion Early person‐centred palliative care is an important part of the holistic and integrative treatment of a person who has a disease with disturbing symptoms. For such an approach, it is important to educate nurses about knowledge, expectations, values and beliefs in developing a concept of person‐centred palliative care to improve quality of life. The better perception, knowledge and attitudes of palliative care by nurses may help persons to improve and raise their quality of life, as well as diminish stress in their care partners and improve quality of life.

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“…This study is limited in that it examined the patients' needs at the time of the study but does not indicate whether these needs changed as death approached. Ndiok 21 however, reported an important place of spiritual need among cancer patients followed in palliative care in Nigeria.…”

Section: Discussionmentioning

confidence: 99%

Untitled

2019

HPMIJ

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Introduction: In Benin, the experience of palliative care began in 2014 with an approach based on the model of Hospice Africa Uganda. Patients usually come to the hospital at a fairly advanced stage and require a full support, taking into account their need. This observation justifies the study whose objectives were to describe the sociodemographic characteristics of patients in palliative care and to identify their needs. Methods: This is a descriptive and retrospective cross-sectional study conducted from 1st December 2014 to 31st July 2016. It concerned all patients followed in palliative care units of the CNHU HKM and Comè District Hospital and who have a complete medical record. Results: Sixty-five (65) patients were followed in the palliative care units during the study period. Among them women were 61.5% with a sex ratio of 0.6. They mean age was 52.85 years. 78% of patients did not have social security coverage. 89.2% of patients admitted to palliative care units had cancer and 63.79% were already in the metastatic stage. Pain was present in all patients admitted to palliative care units. Other problems identified were spiritual support (90.2%) and psycho-social support (73%). Conclusion: Palliative patient's needs in Benin are dominated by pain control and psychosocial and spiritual support. A palliative care program focused on these needs will provide a better quality of life for these patients.

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Assessment of palliative care needs of patients/families living with cancer in a developing country

Cited by 24 publications

References 18 publications

Palliative Care Needs among Patients with Advanced Illnesses in Bhutan

Palliative Care Needs among Patients with Advanced Illnesses in Bhutan

Nurses’ perceptions of early person‐centred palliative care: a cross‐sectional descriptive study

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