Assessment of psychological outcomes and quality of life in the rheumatic diseases

Parker, Jerry C.; Wright, Gail E.

doi:10.1002/art.1790100608

Cited by 14 publications

(11 citation statements)

References 53 publications

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“…Health status instruments for children are less well developed than those for adults, although the Child Health Questionnaire (20) shows great promise as a general health status measure, and there are functional status mea-sures designed specifically for children with rheumatic diseases (e.g., the Juvenile Arthritis Functional Assessment Report; 21). Measures of psychological well-being, discussed by Parker and Wright (22), also fall under the general heading of health status.…”

Section: Defining the Concepts Of Health Care Quality And Outcomesmentioning

confidence: 99%

Choosing quality and outcomes measures for rheumatic diseases

Katz¹,

Showstack²

1997

Arthritis & Rheumatism

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Quality of health care is the top-rated concern of Americans with regard to changes in the health care system (1). Some employers and other purchasers of health care are also concerned with quality, attempting to spend their health care dollars on high quality health care at the lowest possible cost. For many years, it was assumed that quality was maintained through organizational methods, such as licensure and board certification of physicians and the accreditation of hospitals and other medical facilities. In the last few decades, however, there has been a dramatic expansion in the treatment options available to physicians, without corresponding research on the efficacy of many of these options. This phenomenon has often impeded the development of consensus on proper treatment, resulting in large variation in physician practice patterns. The uncertainty surrounding treatment options and the difficulty in linking treatments to discrete, definable outcomes have made assessment of the quality of health care extremely difficult. The purpose of this article is to present definitions of the concepts of health care quality and outcomes and provide information on how to choose measures of quality and outcomes. We focus primarily on outcomes associated with outpatient care, since the majority of care for rheumatic diseases is provided in the outpatient setting. 370Defining the concepts of health care quality and outcomes Quality of health care is a multidimensional concept that can be viewed narrowly (e.g., clinical efficacy) or broadly (e.g., all attributes of health care that consumers value). The Institute of Medicine defined quality of health care as "the degree to which health services for individuals and populations increase the likelihood of desired health outcomes and are consistent with current professional knowledge" ( 2 ) . Donabedian (3,4) defined 3 types of quality measures: structural measures, such as physician specialty mix, resources available, teaching status, and reimbursement methodology; process measures, or measures of the activities that health care providers perform in caring for patients, such as tests ordered, medications prescribed, and specialty referrals; and outcomes measures, or measures of the effects of health care on health status and consumer satisfaction.Structural measures have historically been used in accreditation processes, and some, such as physician board certification, have been used as indicators of quality, but most current methods to assess health care quality do not focus on structural measures. As medical care has become more complex, structural indicators have proven inadequate to measure and explain variations in practice.Process measures are widely used in evaluations of health care quality; in fact, the majority of the quality indicators recommended by purchaser groups, for example, those specified in HEDIS (the Health Plan Employer Data and Information Set, a managed care-oriented set of data elements for assessing the quality of health plans [51), are process meas...

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Section: Defining the Concepts Of Health Care Quality And Outcomesmentioning

confidence: 99%

Choosing quality and outcomes measures for rheumatic diseases

Katz¹,

Showstack²

1997

Arthritis & Rheumatism

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“…The trajectory from pathology to disability may be influenced positively or negatively by risk factors, intra-individual factors, and extra-individual factors. Disability is not inherent but rather reflects the gap between a person’s functional abilities and the demands of the social and physical environment (Parker and Wright, 1997). …”

Section: Introductionmentioning

confidence: 99%

The relevance of depressive symptoms and social support to disability in women with multiple sclerosis or fibromyalgia

Phillips

Stuifbergen

2010

International Journal of Rehabilitation Research

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Multiple sclerosis (MS) and fibromyalgia syndrome (FM) may spur substantial disability for those affected. Using structural equation modeling (SEM), this secondary analysis examined predictors of disability in women with MS (N=118) and FMS (N=197) recruited for separate wellness studies. Greater functional limitations, lower economic adequacy, less social support, and higher depressive symptoms predicted greater disability in both groups. The final multi-group model demonstrated good fit χ 2 (111, N=315)=135.92, CFI=.99, RMSEA=.03) and identified similarities and differences across groups.

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“…L'étude de Kuyper et Wester (1998) (Corbin, ã Strauss, 1988: 314), Certes, la tension présente au sein du couple est importante, non seulement parce qu'elle est une menace au soutien, mais aussi parce que l'existence et la qualité de la relation conjugale affectent l'état de santé de la personne souffrant de maladies chroniques, tel que l'ont démontré Burman et Margolin (1992). Puisque la dyade est la source la plus significative de soutien chez un couple ayant à s'adapter à la maladie elle peut aussi, en cas de dysfonction, être un obstacle considérable face à la capacité que possède chaque conjoint de s'adapter avec succès à cette situation (Parker, & Wright, 1997). Or, une relation conjugale stressante entraîne des effets négatifs au niveau de la progression de la maladie ainsi que sur la santé émotionnelle des deux conjoints (Mann, & Dieppe, 2006).…”

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Vie personnelle, conjugale et familiale des conjoints vivant avec un partenaire présentant plusieurs problèmes de santé chroniques /

Côté¹

2007

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Assessment of psychological outcomes and quality of life in the rheumatic diseases

Cited by 14 publications

References 53 publications

Choosing quality and outcomes measures for rheumatic diseases

Choosing quality and outcomes measures for rheumatic diseases

The relevance of depressive symptoms and social support to disability in women with multiple sclerosis or fibromyalgia

Vie personnelle, conjugale et familiale des conjoints vivant avec un partenaire présentant plusieurs problèmes de santé chroniques /

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