Assessment of quality of life of patients with leprosy reactional states treated in a dermatology reference center

Costa, Marina Dias; Terra, Fábio de Souza; Costa, Rosane Dias; Lyon, Sandra; Costa, Ana Maria Duarte Dias; Antunes, Carlos Maurício de Figueiredo

doi:10.1590/s0365-05962012000100003

Cited by 39 publications

(30 citation statements)

References 11 publications

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“…This result was expected, since this reaction might manifest with neuritis, hand edema, fever and malaise; this signs and symptoms can impair the performance of activities that require greater physical effort, thus interfering in the quality of life (23) . Inability to manage the use of prescribed medication was associated with situations in which blood pressure and blood glucose were not controlled and the bacillary index was positive.…”

Section: Discussionmentioning

confidence: 89%

Factors associated with the functional capacity of older adults with leprosy

et al. 2017

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Objective: to investigate the association between socio-demographic and clinical factors and the functional capacity of older adults with leprosy. Method: cross-sectional analytical study conducted in Fortaleza, Ceará, Brazil, with 77 older adult patients with leprosy in a referral service, through interview, medical records and application of the Katz Index and the Lawton and Brody Scale. Results: the mean age was 68.23 years, with prevalence of men, in stable union/married, with mean monthly family income of 2.04 minimum wages, positive bacillary index, clinical dimorphic form and grade zero disability. In the Lawton and Brody scale, independence (58.5%) was predominant and associated to the variables "living arrangement" and "educational attainment". Total independence (87.0%) was predominant in the Katz Index and statistically associated to the variable monthly family income. Conclusion: most of the participants were classifi ed as independent in the instruments used. Furthermore, the instruments pointed to a greater number of associations with socio-demographic and clinical factors not related to leprosy. Descriptors: Older adults; Geriatric Assessment; Leprosy; Elderly Health; Mycobacterium leprae. RESUMO Objetivo: investigar a associação de fatores sociodemográfi cos e clínicos à capacidade funcional de idosos com hanseníase. Método: estudo transversal, analítico realizado em Fortaleza, Ceará, com 77 idosos com hanseníase acompanhados em serviço de referência, através de entrevista, consulta ao prontuário e aplicação do Índice de Katz e Escala de Lawton e Brody. Resultados: a média de idade foi de 68,23 anos, com prevalência de sexo masculino, união estável/casado, renda familiar mensal média de 2,04 salários mínimos, índice baciloscópico positivo, forma clínica dimorfa e Grau de Incapacidade Física zero. Na escala de Lawton e Brody prevaleceu a independência (58,5%) com associação às variáveis "com quem reside" e "escolaridade". Destacou-se a independência total (87,0%) no índice de Katz, associando-se estatisticamente a variável renda familiar mensal. Conclusão: a maioria dos participantes mostrou-se independente nos instrumentos utilizados. Ademais, os instrumentos apontaram mais associações a fatores sociodemográfi cos e clínicos não relacionados com a hanseníase. Descritores: Idoso; Avaliação Geriátrica; Hanseníase; Saúde do Idoso; Mycobacterium leprae. RESUMEN Objetivo: investigar la asociación de factores sociodemográfi cos y clínicos a la capacidad funcional de los ancianos con lepra. Método: estudio transversal, analítico, realizado en Fortaleza, Ceará, realizado entre 77 ancianos con lepra mediante entrevista, acompañados en servicio de referencia, consulta al prontuario y aplicación del Índice de Katz y de la Escala de Lawton y Brody. Resultados: la edad promedio era de 68,23 años, con prevalencia del sexo masculino, unión estable/casado, renda familiar mensual promedio de 2,04 salarios mínimos, índice bacteriológico positivo, forma clínica dimorfa y grado de incapacidad física cero. E...

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Section: Discussionmentioning

confidence: 89%

Factors associated with the functional capacity of older adults with leprosy

et al. 2017

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“…In addition, the presence of a mental health disorder was found to reduce physical and psychological quality of life, and this has been found to be a consistent predictor of low QoL in many studies [48,49]. Similarly, being unmarried has been found to be a predictor of low QoL [19]. It is also clear that other chronic health conditions are likely to reduce quality of life, for the same reasons as podoconiosis and the other NTDs.…”

Section: Discussionmentioning

confidence: 97%

“…One of these looked at dermatological quality of life in podoconiosis, and found a significant reduction in quality of life comparable to other dermatological conditions [18]; of the rest, five focused on leprosy [19-23], five on lymphatic filariasis or lymphoedema in general [24-28], and one each on trachoma [29] and cutaneous Leishmaniasis [30]. In addition, there was one qualitative study of lymphatic filariasis [31] which focused specifically on hydrocele in this group.…”

Section: Introductionmentioning

confidence: 99%

The impact of podoconiosis on quality of life in Northern Ethiopia

Mousley

Deribe

Tamiru³

et al. 2013

Health Qual Life Outcomes

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BackgroundPodoconiosis is one of the most neglected tropical diseases, which untreated, causes considerable physical disability and stigma for affected individuals. Little is known about the quality of life (QoL) of patients with podoconiosis. This study aimed to assess the QoL of patients with podoconiosis in comparison with healthy controls in Ethiopia.MethodsA comparative cross-sectional study was conducted in May 2012, among 346 clinically confirmed adult patients with podoconiosis, and 349 healthy adult neighbourhood controls in Dembecha woreda (district) in northern Ethiopia. QoL was assessed using the validated Amharic version of the World Health Organisation Quality of Life questionnaire (WHOQoL-BREF) scale; in addition, mental health and stigma were assessed by the Kessler-10 scale and podoconiosis stigma scale respectively. Logistic regression analysis was done to identify factors associated with QoL.ResultsPatients with podoconiosis had significantly lower mean overall QoL than the controls (52.05 versus 64.39), and this was also true in all four sub domains (physical, psychological, social and environmental). Controls were 7 times more likely to have high (above median) QoL (Odds Ratio = 6.74, 95% Confidence Interval 4.62 to 9.84) than cases. Factors associated with lower QoL were: experiencing high levels of stigma, living in an urban area, being illiterate, having additional co-morbidities, and being unmarried. Mental illness was associated with lower scores in psychological and physical domains.ConclusionsPrograms targeting podoconiosis interventions should include QoL as an indicator for monitoring progress. Interventions targeting improvement of QoL among patients with podoconiosis should address depression, stigma and other co-morbidities.

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“…23,30,34 Quando observados estes aspectos mais os de transmissão e incapacidades a doença se torna complexa, abrangente e o cuidado deve ser, portanto, mais amplo, visto que, a hanseníase causa sofrimento que ultrapassa a dor e o mal-estar estritamente vinculados ao prejuízo físico, com grande impacto social e psicológico. 24,35 Em estudo feito por Barbosa 14 foram identificadas lacunas no sistema de saúde de duas cidades cearenses, Sobral e Fortaleza, quando observada à atenção pós-alta, mantendo-se como um desafio para o sistema de saúde, o atendimento a estas pessoas. O desenvolvimento de ações multidisciplinares que não apontem apenas para a eliminação, mas também para a prevenção de incapacidades, incentivo à aderência ao tratamento e luta contra o estigma social devem fazer parte do sistema de atenção à saúde destas pessoas a fim de minimizar o impacto da doença na vida destes indivíduos.…”

Section: 15unclassified

“…O desenvolvimento de ações multidisciplinares que não apontem apenas para a eliminação, mas também para a prevenção de incapacidades, incentivo à aderência ao tratamento e luta contra o estigma social devem fazer parte do sistema de atenção à saúde destas pessoas a fim de minimizar o impacto da doença na vida destes indivíduos. 35 …”

Section: 15unclassified

Pós-Alta Em Hanseníase: Uma Revisão Sobre Qualidade De Vida E Conceito De Cura.

2015

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Pós Post treatment in Leprosy: a review about quality of life and cure concept ABSTRACTThe fragility of access to care, stigma and misinformation makes the post treatment in Leprosy cornered for affected. OBJECT: To explore the post treatment in Leprosy seeking more whole shares to holders and expansion of the concept of cure. METHODS: Search in databases: BVS, SCIELO, PUBMED, LILACS, BIREME and google scholar. The used terms were: leprosy, post-high, sequela, stigma, quality of life. RESULTS: Were selected 44 articles, dating from 1995 to 2012. The need for specific policies to address in patients who were discharged after cure was observed. It is demonstrated negative influence on quality of life (QOL) by socio-cultural aspects surrounding the disease, as well as by physical deformities. CONCLUSIONS: The adoption of specific interventions to the population post treatment in Leprosy is essential to the accomplishment of one of the guiding principles of the Health System, the integrality.

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Assessment of quality of life of patients with leprosy reactional states treated in a dermatology reference center

Abstract: Leprosy causes suffering that goes beyond the pain and discomfort strictly related to the physical damage, with great social and psychological impact.

Cited by 39 publications

References 11 publications

Factors associated with the functional capacity of older adults with leprosy

Factors associated with the functional capacity of older adults with leprosy

The impact of podoconiosis on quality of life in Northern Ethiopia

Pós-Alta Em Hanseníase: Uma Revisão Sobre Qualidade De Vida E Conceito De Cura.

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