Assessment of respite needs for carers of persons with severe mental illness

Malcolm, Katy; Rowlands, Paul; Inch, Heather

doi:10.1192/pb.22.6.354

Cited by 8 publications

(14 citation statements)

References 5 publications

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“…The findings confirm other research on respite care services with regard to: the lack of services available for mental health consumers and their carers (Carers NSW 2002; Malcolm et al . 1998; SANE Australia 1998b; Twigg & Atkin 1994); the poor quality of services and the negative impact this has on both carers and care recipients, the importance of understanding care recipients’ experience with and attitudes towards respite care (Ashworth & Baker 2000; Hanson et al .…”

Section: Discussionsupporting

confidence: 89%

Factors influencing the use and provision of respite care services for older families of people with a severe mental illness

Jeon

Chenoweth

McIntosh

2007

Int J Mental Health Nurs

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Family carers of people with a severe mental illness play a vital, yet often unrecognized and undervalued role in Australian society. Respite care services can assist these family carers in their role; however, little is known about their access to these services. The paper addresses this knowledge gap. An exploratory field study was conducted throughout the eastern suburbs of Sydney, Australia, to identify and examine the factors influencing the use and provision of respite services for older carers of people with a mental illness. Semistructured, in-depth interviews, and structured self-completed questionnaires were conducted with older family carers, mental health care professionals, and respite care service providers. Additionally, relevant documents (local policies, strategic plans and reports on respite care) were reviewed. It was found that current respite services are problematic for older family carers of Australians with a mental illness, signalling the need for concerted efforts by carers, health professionals, and service providers to improve access. Changes to respite provision and utilization are recommended.

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Section: Discussionsupporting

confidence: 89%

Factors influencing the use and provision of respite care services for older families of people with a severe mental illness

Jeon

Chenoweth

McIntosh

2007

Int J Mental Health Nurs

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“…It may be that cohabiting family carers perceive less of a need for health and community services to provide such care, given their significant role in providing care generally. Previous research has suggested that cohabitating carers may decline the offer of various forms of care due to a perception that this may negatively impact on their being the primary caregiver (Harris, Diminic, Marshall, Stockings, & Degenhardt, 2015;Malcolm, Rowlands, & Inch, 1998). This remains speculative and other possibilities could have led to this result.…”

Section: Discussionmentioning

confidence: 49%

Smoking Cessation Care for People with a Mental Illness: Family Carer Expectations of Health and Community Services

et al. 2016

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Introduction: Smoking prevalence remains high among people with a mental illness, contributing to higher levels of morbidity and mortality. Health and community services are an opportune setting for the provision of smoking cessation care. Although family carers are acknowledged to play a critical role in supporting the care and assistance provided by such services to people with a mental illness, their expectations regarding the delivery of smoking cessation care have not been examined.Aims: To explore family carer expectations of smoking cessation care provision by four types of health services, to clients with a mental illness, and factors associated with expectations.Methods: A cross-sectional survey was conducted with carers of a person with a mental illness residing in New South Wales, Australia. Carers were surveyed regarding their expectations of smoking cessation care provision from four types of health services. Possible associations between carer expectation of smoking cessation care provision and socio-demographic and attitudinal variables were explored.Results: Of 144 carers, the majority of carers considered that smoking cessation care should be provided by: mental health hospitals (71.4%), community mental health services (78.0%), general practice (82.7%), and non-government organisations (56.6%). The factor most consistently related to expectation of care was a belief that smoking cessation could positively impact mental health.Conclusions: The majority of carers expected smoking cessation treatment to be provided by all services catering for people with a mental illness, reinforcing the appropriateness for such services to provide smoking cessation care for clients in an effective and systematic manner.

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“…One such study indicated that 27% of carers expressed a need for professional support with their caring responsibilities that was not being met 47 . Another found that, of 63% of carers reporting a need for day care respite, only one‐third had their needs met through respite care services 48 …”

Section: Discussionmentioning

confidence: 99%

“…An international review of the literature on respite care among such carers indicates that a broader range of barriers (encompassing other factors such as quality of care, stigma and attitudes, and self‐awareness) contribute to under‐utilisation of respite services 55 . Some carers have expressed feeling resigned to their caring role, have given up hope for further assistance, and feel that little can be done to help them 47,48 . Issues regarding loss of control over decisions regarding treatment if a ‘professional’ is involved in the caring process have also been identified 48 .…”

Section: Discussionmentioning

confidence: 99%

“…47 Another found that, of 63% of carers reporting a need for day care respite, only one-third had their needs met through respite care services. 48 One major obstacle to addressing unmet respite care need is understanding and addressing the factors that affect non-use. 49 Despite small numbers, lack of suitability to carers' needs; availability; and affordability were the most frequently identified barriers to respite service utilisation, providing broad population-level support for previous studies that also identified a lack of flexibility, suitability, and/or local availability and cost as concerns.…”

Section: Discussionmentioning

confidence: 99%

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Estimating service demand for respite care among informal carers of people with psychological disabilities in Australia

Harris

Diminic

Marshall

et al. 2015

Australian and New Zealand Journal of Public Health

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Objective: To estimate service demand (willingness to seek or use services) for respite care among informal, primary carers of people with a psychological disability and to describe their characteristics.Methods: Analysis of data from the household component of the 2009 Survey of Disability Ageing and Carers (n=64,213 persons). Results:In Australia in 2009, 1.0% of people aged 15 years or over (177,900 persons) provided informal, primary care to a co-resident with a psychological disability. One-quarter (27.2%) of these carers reported service demand for respite care, of whom one-third had used respite services in the past three months and four-fifths had an unmet need for any or more respite care. A significantly greater percentages of carers with service demand for respite care spent 40 or more hours per week on caregiving, provided care to a person with profound activity restrictions and reported unmet support needs, compared to carers without service demand. Lack of suitable, available respite care models was a barrier to utilisation. Conclusions:Findings confirm significant service demand for, and under-utilisation of, respite care among mental health carers.Implications: Increased coverage of respite services, more flexible service delivery models matched to carers' needs and better integration with other support services are indicated.

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Assessment of respite needs for carers of persons with severe mental illness

Cited by 8 publications

References 5 publications

Factors influencing the use and provision of respite care services for older families of people with a severe mental illness

Factors influencing the use and provision of respite care services for older families of people with a severe mental illness

Smoking Cessation Care for People with a Mental Illness: Family Carer Expectations of Health and Community Services

Estimating service demand for respite care among informal carers of people with psychological disabilities in Australia

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