Assessment of self-efficacy for caregiving in oncology: Italian validation of the caregiver inventory (CGI-I)

Serpentini, Samantha; Guandalini, B.; Tosin, G.; Ronconi, Lucia; Cristaldi, Grazia; Amatulli, R.; Deledda, Giuseppe; Riccardi, Silvia; Sommacal, Samuela; Iannopollo, Letizia; Calvo, Vincenzo; Merluzzi, Thomas V.

doi:10.1186/s12904-021-00849-5

Cited by 5 publications

(1 citation statement)

References 36 publications

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“…According to the scienti c literature, one of the intrinsic experiences of those who care for a dependent with cancer is the feeling of guilt, particularly with respect to resolving ethical dilemmas 9,10 . This extends to the post-care trajectory 11,12 .…”

Section: Introductionmentioning

confidence: 99%

The guilt experiences of post-caregivers bereaved by cancer: a scoping review

Reis,

Marques,

Deodato

2024

Preprint

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Background According to preliminary research, little is known about the experiences of post-caregivers. In order to study this specific area of knowledge, it is necessary to identify the various phenomena inherent to the bereavement experience. One of these phenomena, repeatedly described in the narratives of this population, concerns the experience of guilt. The purpose of this study is to map the guilt experiences of post-caregivers bereaved by cancer. In addition, this study aims to map the motives, characteristics, predisposing factors and consequences of guilt. Considerations on how to overcome feelings of guilt will also be considered. Methods Review of the literature following the Scoping Review protocol of the Joanna Briggs Institute. The research included published and unpublished studies and it was performed in Portuguese and English at CINAHL Complete (by EBSCOHost), MEDLINE Complete (by EBSCOHost), Nursing and Allied Health Collection: Comprehensive (by EBSCOHost), Cochrane Central Register of Controlled Trials (by EBSCOHost), Cochrane Database of Systematic Reviews (by EBSCOHost), Cochrane Methodology Register (by EBSCOHost), Library, Information Science & Technology Abstracts (by EBSCOHost), Mediclatina (by EBSCOHost) Cochrane Clinical Answers(by EBSCOHost); PubMed (NLM); SciELO - Scientific Electronic Library Online and PROSPERO- International prospective register of systematic reviews and RCAAP - Repositório Científico de Acesso Aberto de Portugal. The search was conducted by title and abstract. All studies in Portuguese, Spanish and English were considered. No time limits were applied. 4 studies were selected as eligible. Results It was possible to identify 9 experiences of guilt, 13 motives that trigger it, 9 characteristics about the phenomenon, 7 predisposing factors, 4 possible consequences of its experience, and 4 considerations on how to overcome it. Conclusions It was possible to extract data and answer the predefined questions. However, the lack of a specific article on the present topic confirms that this is an area of knowledge to be explored. Conducting future phenomenological studies based on the experiences of guilt of post-caregivers bereaved by cancer is needed to develop new knowledge in this specific area of research.

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Section: Introductionmentioning

confidence: 99%

The guilt experiences of post-caregivers bereaved by cancer: a scoping review

Reis,

Marques,

Deodato

2024

Preprint

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Nurse Telephone Support for Caregivers of Older Adults at Hospital Discharge

Hill,

Moyle,

Slatyer

et al. 2024

JAMA Netw Open

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ImportanceInformal caregivers who provide home-based care frequently experience stress and burden that adversely affect their health-related quality of life (HRQOL).ObjectiveTo evaluate the efficacy of the Further Enabling Care at Home (FECH+) program for the HRQOL of caregivers of older adults discharged home from the hospital.Design, Setting, and ParticipantsThis multicenter, parallel, 2-group randomized clinical trial, with blinded baseline and outcome measurements, was conducted at 3 hospitals in 2 states in Australia. Recruitment took place between August 2020 and July 2022, and follow-up was performed for 12 months after hospital discharge. Participants were dyads of caregivers and patients. Eligible caregivers were aged 18 years or older who provided informal home-based care at least weekly for a patient aged 70 years or older. Caregivers were enrolled when their patient was discharged from the hospital. Dyads were randomly assigned to either the intervention or control group. Data analysis followed an intention-to-treat approach.InterventionCaregivers in the intervention group received the FECH+ program, structured nurse support of 6 telephone calls over 6 months after the patient’s discharge plus usual discharge care. Caregivers in the control group received usual care alone.Main Outcomes and MeasuresPrimary outcome was caregivers’ HRQOL 6 months after discharge, which was measured using the Assessment of Quality of Life 8-Dimension (AQOL-8D). Secondary outcomes were caregivers’ HRQOL 12 months after discharge as well as preparedness to care (measured using the Preparedness for Caregiving Scale), self-efficacy (measured using the Caregiver Inventory), and levels of strain and distress (measured using the Family Appraisal of Caregiving Questionnaire) at 6 and 12 months after discharge. Baseline and outcome measurements were administered by telephone at 3, 6, and 12 months after discharge.ResultsA total of 547 dyads (caregivers: 405 females [74.0%], mean [SD] age, 64.50 [12.82] years; patients: 296 females [54.1%], mean [SD] age, 83.16 [7.04] years for the intervention group and 83.45 [7.20] years for the control group) were included in the intention-to-treat analysis. There was no significant difference in caregivers’ HRQOL between the 2 groups at the primary time point of 6 months (difference in AQOL-8D score, 0.01; 95% CI, −0.02 to 0.03; P = .62) after hospital discharge.Conclusions and RelevanceIn this randomized clinical trial, the FECH+ program—a nurse telephone support intervention for caregivers of older adults after hospital discharge—did not significantly improve caregivers’ HRQOL at 6 months after discharge compared with usual care. Additional examination is warranted into improving caregivers’ HRQOL at the time of their patient’s hospital discharge.Trial RegistrationAustralian New Zealand Clinical Trials Registry Identifier: ACTRN12620000060943

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