2023
DOI: 10.1159/000533501
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Assessment of the Needs of Nephrology Divisions to Implement Return of Clinically Significant Research Genetic Results: A Survey of Nephrotic Syndrome Study Network (NEPTUNE) Investigators

Jennifer E. Fishbein,
Loryn Wilson Dass,
Chrysta Lienczewski
et al.

Abstract: <b><i>Introduction:</i></b> There is an increasing need to return genetic testing results to patients with kidney disease who were first genotyped on a research basis. Operationalizing this process in nephrology clinics is challenged by a limited number of genetic providers with whom to partner and a general lack of support services for all clinicians. <b><i>Methods:</i></b> We administered a survey in March 2022 to assess the current ability and ongoing needs of… Show more

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