Association between enrolment in a heart failure quality registry and subsequent mortality—a nationwide cohort study

Abstract

Heart failure patients of male sex, younger age, and higher education were more likely to be enrolled in a HF quality registry. Enrolment was associated with reduced all-cause mortality that was explained by demographic differences and better utilization of cardiovascular and HF medications.

Improving heart failure health: is there a secret Swedish sauce?

“…In this issue of the journal, Lund et al . provide compelling data indicating that patients enrolled in SwedeHF received better evidence‐based HF care with potentially better outcomes than those not enrolled.…”

“…provide compelling data indicating that patients enrolled in SwedeHF received better evidence‐based HF care with potentially better outcomes than those not enrolled. In this study, SwedeHF enrolled 9.5% of 231 437 patients (68% of whom were inpatients) with incident HF diagnosed during the period 2006 to 2013 across 64 of 75 potential hospitals in Sweden . SwedeHF is a voluntary registry that publicly reports on HF inpatient and outpatient care to enable quality improvement (QI) through the gathering of a wealth of data.…”

The year in cardiology 2017: heart failure

“…A large Swedish study showed that enrolment vs. non-enrolment in the non-selective but voluntary Swedish Heart Failure Registry was associated with a 35% lower risk of death, and that the strongest explanatory factor was greater use of HF and CV medications in patients enrolled in the registry. 19 …”

How to create and analyze a Heart Failure Registry with emphasis on Anemia and Quality of Life

“…Recently we have published a paper based on the SwedeHF database showing the difference between patients enrolled in SwedeHF and those not enrolled in terms of improved survival. The results are probably explained by demographic differences and better utilization of guidelines recommended cardiovascular and HF-medication 153 .…”

“…This was handled by multiple imputations, which eliminates bias due to data not missing at random and increases external validity, but may compromises internal validity. Although our registry is nationwide it does not have complete coverage, and patients enrolled may be different than those not enrolled 153 . Moreover the hemoglobin level was obtained as a single measure at hospital discharge/clinical visit, therefore, we cannot clarify and quantify the changes in hemoglobin to verify how many patients were affected with transitory anemia or hem dilution and we do not know the true etiology of anemia since the pathogenesis is still unclear even if a number of underlying causes contributing to anemia have been suggested.…”