Association Between Patient Education Videos and Knowledge of Radiation Treatment

Kumar, Kiran A; Balazy, K.E.; Gutkin, Paulina M.; Jacobson, Clare E.; Chen, Jie Jane; Karl, Jamie J.; Eyben, Rie von; Horst, Kathleen C.

doi:10.1016/j.ijrobp.2020.11.069

Cited by 21 publications

(18 citation statements)

References 25 publications

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“…Moreover, videos or graphical demonstrations prior to the formal consultation may be of help. 10,11 In the closely-knit predominantly Tamil culture in northern Sri Lanka, patients not only consulted their family members but also the community in decision-making. Torn between the scienti c information bombarded by medical professionals and lay perspectives conveyed by family and friends, several participants spoke of abiding with a loved one's decision on radiotherapy.…”

Section: Discussionmentioning

confidence: 99%

“Current”, “heated rods” & “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka

Mahadevan,

Appudurai,

Sothipragasam

et al. 2023

Preprint

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Purpose: Significant proportions of patients either refuse or discontinue radiotherapy, even in the curative setting, leading to poor clinical outcomes. This study explores patient perceptions that underlie decisions to refuse/discontinue radiotherapy at a cancer care facility in northern Sri Lanka. Methods: An exploratory descriptive qualitative study was carried out among 14 purposively-selected patients with cancer who refused/discontinued radiotherapy. In-depth semi-structured interviews were transcribed in Tamil, translated into English, coded, and thematically analyzed. Results: All participants referred to radiotherapy as “current” with several understanding the procedure to involve electricity, heat, or hot vapour. Many pointed to gaps in information provided by healthcare providers, who were perceived to focus on side effects without explaining the procedure. In the absence of these crucial details, patients relied on family members and acquaintances to fill these information gaps, often based on second- or third-hand accounts of experiences with radiotherapy. Many felt pressured by family to refuse radiation, feared radiation, or felt ashamed to ask questions, while for others COVID-19 was an impediment. All but three participants regretted their decision, claiming they would recommend radiation to patients with cancer, especially when it is offered with curative intent. Conclusion: Patients with cancer who refused/discontinued radiation therapy have significant information needs. While human resource deficits need to be addressed in low-resource settings like northern Sri Lanka, providing better supportive cancer care could improve clinical outcomes and save resources that would otherwise be wasted on patient preparation for radiotherapy.

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Section: Discussionmentioning

confidence: 99%

“Current”, “heated rods” & “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka

Mahadevan,

Appudurai,

Sothipragasam

et al. 2023

Preprint

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“…Better pre-treatment training procedures can also be developed to reduce patients' anxiety. A new study demonstrated the advantage of educating patients with online materials, such as training videos, that increase their knowledge of radiation treatment (30) .…”

Section: Discussionmentioning

confidence: 99%

Deep inspiration breath hold in left sided tangential breast radiotherapy: Degree of lung inflation needed to compansate for cardiac motion

Alço

Ercan²,

İğdem³

et al. 2022

Int J Radiat Res

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Background: To determine the degree of lung inflation sufficient to compensate for cardiac motion in patients receiving standard tangential left-breast radiotherapy during deep inspiration breath hold (DIBH). Materials and Methods: Computed tomography (CT) scans were performed in 20 patients with left-sided early breast cancer during free breathing (FB) and DIBH. Standard tangential field plans were generated in both CT sets. Doses to the organs at risk were assessed. The margin between the left anterior descending artery (LAD) and posterior field edge was measured from the closest point. Results: The DIBH plans showed equal coverage of the breasts, so it was possible to obtain lower cardiac doses with DIBH. The median increase in the left-lung volume with DIBH was 53% (range 12.6% -108%). A LAD safety distance ≥ 5mm from field edges was not obtained in any of the patients during FB, whereas in 60% of the patients during DIBH the safety distance was obtained. The lung inflation rate and cardiac safety distance were strongly correlated. The mean distance between the LAD and tangential field posterior edge increased significantly from 0.23 cm to 0.64 cm (p=0.041) in the patients who inflated their ipsilateral lung > 1.5 times. Conclusion: Lung inflation of ≥50% compensated for cardiac motion during treatment using DIBH. The lung inflation capacity should be considered in choosing the irradiation technique in left-sided breast cancer patients.

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“…For instance, educational videos have been shown to be effective tools for increasing knowledge and reducing patient anxiety compared to traditional pamphlet-based information. 23,24 Williams et al 25 further demonstrated the benefit of using videos containing real footage augmented with computer-generated 3D visualizations to describe the radiotherapy treatment process and rationale. Although effective and innovative, these videobased education approaches lack the personalization that could be provided by using a patient's own treatment plan.…”

Section: Radiotherapy Patient Educationmentioning

confidence: 99%

“…Various solutions have been proposed and examined to improve patient education in radiotherapy. For instance, educational videos have been shown to be effective tools for increasing knowledge and reducing patient anxiety compared to traditional pamphlet‐based information 23,24 . Williams et al 25 .…”

Section: Introductionmentioning

confidence: 99%

Design and implementation of a prototype radiotherapy menu in a patient portal

O'Sullivan‐Steben,

Galarneau,

Judd

et al. 2023

J Applied Clin Med Phys

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PurposeRadiotherapy patients often face undue anxiety due to misconceptions about radiation and their inability to visualize their upcoming treatments. Access to their personal treatment plans is one way in which pre‐treatment anxiety may be reduced. But radiotherapy data are quite complex, requiring specialized software for display and necessitating personalized explanations for patients to understand them. Therefore, our goal was to design and implement a novel radiotherapy menu in a patient portal to improve patient access to and understanding of their radiotherapy treatment plans.MethodsA prototype radiotherapy menu was developed in our institution's patient portal following a participatory stakeholder co‐design methodology. Customizable page templates were designed to render key radiotherapy data in the portal's patient‐facing mobile phone app. DICOM‐RT data were used to provide patients with relevant treatment parameters and generate pre‐treatment 3D visualizations of planned treatment beams, while the mCODE data standard was used to provide post‐treatment summaries of the delivered treatments. A focus group was conducted to gather initial patient feedback on the menu.ResultsPre‐treatment: the radiotherapy menu provides patients with a personalized treatment plan overview, including a personalized explanation of their treatment, along with an interactive 3D rendering of their body, and treatment beams for visualization. Post‐treatment: a summary of the delivered radiotherapy is provided, allowing patients to retain a concise personal record of their treatment that can easily be shared with future healthcare providers. Focus group feedback was overwhelmingly positive. Patients highlighted how the intuitive presentation of their complex radiotherapy data would better prepare them for their radiation treatments.ConclusionsWe successfully designed and implemented a prototype radiotherapy menu in our institution's patient portal that improves patient access to and understanding of their radiotherapy data. We used the mCODE data standard to generate post‐treatment summaries in a way that is easily shareable and interoperable.

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Association Between Patient Education Videos and Knowledge of Radiation Treatment

Cited by 21 publications

References 25 publications

“Current”, “heated rods” & “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka

“Current”, “heated rods” & “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka

Deep inspiration breath hold in left sided tangential breast radiotherapy: Degree of lung inflation needed to compansate for cardiac motion

Design and implementation of a prototype radiotherapy menu in a patient portal

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Association Between Patient Education Videos and Knowledge of Radiation Treatment

Cited by 21 publications

References 25 publications

“Current”, “heated rods” &amp; “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka

“Current”, “heated rods” &amp; “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka

Deep inspiration breath hold in left sided tangential breast radiotherapy: Degree of lung inflation needed to compansate for cardiac motion

Design and implementation of a prototype radiotherapy menu in a patient portal

Contact Info

Product

Resources

About

“Current”, “heated rods” & “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka

“Current”, “heated rods” & “hot vapour”: Why patients refuse radiotherapy as a treatment modality for cancer in Northern Sri Lanka