Associations between disease education, self-management support, and health literacy in psoriasis

Larsen, Marie Hamilton; Strumse, Yndis Staalesen; Andersen, Marit Helen; Borge, Christine Råheim; Wahl, Astrid Klopstad

doi:10.1080/09546634.2019.1688233

Cited by 12 publications

(12 citation statements)

References 40 publications

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“…These longstanding beliefs may mean that patients are reluctant to present to primary care or lack the agency required to make informed treatment decisions 52 . As with other chronic diseases, adequacy of health literacy has emerged as a determinant of self‐management, 53,54 and a barrier to optimal interactions with health professionals 43 . Patients' participation in shared decision‐making might be improved through better communication with their healthcare professional, 51 but this needs first to be underpinned by efforts directed toward patient education and disease knowledge 55 …”

Section: Discussionmentioning

confidence: 99%

Australian consensus: Treatment goals for moderate to severe psoriasis in the era of targeted therapies – Adult patients

Foley,

Gebauer,

Sullivan

et al. 2023

Aust J Dermatology

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BackgroundOver the last decade, the treatment landscape for moderate–severe psoriasis has rapidly evolved. The Australasian College of Dermatologists sought to review and update previously published treatment goals for moderate–severe psoriasis.MethodsA modified Delphi approach was used. Comprehensive literature review and guideline evaluation resulted in the development of statements and other questions to establish current clinical practices. Two rounds of anonymous voting were undertaken, with a collaborative meeting held in between to discuss areas of discordance. Overall, consensus was defined as achievement of ≥75% agreement in the range 7–9 on a 9‐point scale (1 strongly disagree; 9 strongly agree).ResultsConsensus was achieved on 26/29 statements in round 1 and a further 20 statements in round 2. There was strong agreement to expanding the classification/definition of psoriasis severity by including a choice of metrics, incorporating quality of life measures, and widening the scope of high‐impact sites. Consensus was also reached on revised treatment response criteria, which were then incorporated into a new treatment algorithm. There was discordance with the current requirement to undertake a trial with established systemic agents before accessing targeted therapy.ConclusionThe ability of new targeted treatment options to change the narrative in psoriasis patient care can only be properly realised if challenges to timely and equitable access are addressed. The proposed framework for the assessment, classification and management of moderate–severe psoriasis aligns with international recommendations. Its adoption into Australian clinical practice is hoped to improve treatment outcomes and patients' satisfaction with their care.

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Section: Discussionmentioning

confidence: 99%

Australian consensus: Treatment goals for moderate to severe psoriasis in the era of targeted therapies – Adult patients

Foley,

Gebauer,

Sullivan

et al. 2023

Aust J Dermatology

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“…An increasing body of research suggests that self-management efficacy is critical in improving the health outcomes of PSO patients, but there are few particular evaluation tools for assessing self-management efficacy among these patients [ 23 , 35 , 36 ]. Accordingly, it is essential to develop appropriate tool to identify and evaluate self-management efficacy among PSO patients.…”

Section: Discussionmentioning

confidence: 99%

Development and psychometric evaluation of a new patient -reported outcome measure for psoriasis self-management efficacy: the self-management efficacy questionnaire among patients with psoriasis (SMEQ-PSO)

Sun

Zhang

Yang

et al. 2023

Health Qual Life Outcomes

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Background It is significant for the healthy outcome of patients with psoriasis (PSO) to improve their self-management efficacy. A standardized assessment tool, however, was lacking. Therefore, we aimed to develop a self-management efficacy questionnaire for patients with PSO (SMEQ-PSO) and evaluate its psychometric properties. Methods A cross-sectional study developing clinical evaluation tool was conducted from October 2021 to August 2022. In the process of developing SMEQ-PSO, three phases were involved: item generation, item evaluation, and psychometric evaluation. Results The SMEQ-PSO with five dimensions and 28 items was developed. The questionnaire’s content validity index was 0.976. Exploratory factor analysis indicated a five-factor structure (self-efficacy of psychosocial adaptation, self-efficacy of daily life management, self-efficacy of skin management, self-efficacy of disease knowledge management and self-efficacy of disease treatment management) that explained 62.039% of the total variance. Confirmatory factor analysis indicated appropriate fit of the five-factor model. The overall Cronbach’α coefficient was 0.930, the test-retest reliability was 0.768 and the split half reliability coefficients was 0.952. Conclusions The 28-item SMEQ-PSO is a reliable and valid tool that can be used to assess the self-management efficacy among patients with PSO and provide personalized interventions based on their individual circumstances to improve their health outcomes.

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“…Clinicians should conduct a comprehensive assessment together with the patient and jointly develop a reasonable treatment plan to achieve a better treatment effect and reduce the treatment burden. [24] Psoriasis vulgaris is pathologically characterized by a high degree of vascular origin and is manifested by proliferation of vascular endothelial cells, dilated capillaries, and increased permeability. Physical exercise increases the elasticity of the blood vessel walls, which is very beneficial for the long-term outcome of healthy disease management in psoriasis patients A negative correlation between activity intensity and psoriasis severity has been found, but there is a lack of professional physical activity instruction for patients, and the assessment methods need to be improved.…”

Section: Clarity Of Presentation Applicability Editorial Independencementioning

confidence: 99%

Self-management of psoriasis vulgaris treatment burden: A Review

Zhu,

Li,

Yan

et al. 2023

Medicine

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Psoriasis vulgaris is complicated with metabolic syndrome and other diseases, which affects the longevity of patients. Its repeated attacks bring obvious and long-term treatment burden to patients, and improper self-management can aggravate disease symptoms and increase the risk of complications. To summarize the existing evidence on the self-management of psoriasis vulgaris treatment burden. Systematic search was performed in database. Two researchers reviewed, extracted, and summarized evidence from the literature. Nine studies were included, of which 3 guidelines, the number of fields with standardized scores in various domains ≥60% of the evaluation results of the 3 guidelines was at least 4, quality evaluation are all above Grade B, demonstrated higher quality of guidelines, 3 RCTs, 2 analytical studies, and 2 literature reviews. The evaluation results of these included literatures were of high quality. We summarized the data in 6 areas, including oral medication management, topical treatment management, risk factors, living habits, physical exercise, and biologics managements. Finally, we present 34 items of best evidence. This study provides the basis for the management of treatment burden of psoriasis vulgaris. According to this study, medical workers guide patient to reduce the disease and treatment burden.

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Associations between disease education, self-management support, and health literacy in psoriasis

Cited by 12 publications

References 40 publications

Australian consensus: Treatment goals for moderate to severe psoriasis in the era of targeted therapies – Adult patients

Australian consensus: Treatment goals for moderate to severe psoriasis in the era of targeted therapies – Adult patients

Development and psychometric evaluation of a new patient -reported outcome measure for psoriasis self-management efficacy: the self-management efficacy questionnaire among patients with psoriasis (SMEQ-PSO)

Self-management of psoriasis vulgaris treatment burden: A Review

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