Associations with Wellbeing and Medication Adherence in Young Adults Receiving Kidney Replacement Therapy

Hamilton, Alexander; Caskey, Fergus; Casula, Anna; Inward, Carol; Ben-Shlomo, Yoav

doi:10.2215/cjn.02450218

Cited by 42 publications

(45 citation statements)

References 32 publications

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“…Consequently, the experiential bene ts of the arts-based intervention more accurately address the core components of Seligman's PERMA model of wellbeing. [50] Patients with kidney disease have lower levels of mental wellbeing compared to the general population [52], and this is associated with higher levels of mental illness. However, mental wellbeing is a topic that is rarely explored in nephrology, in part due to the focus on physical health outcomes.…”

Section: Discussionmentioning

confidence: 99%

A mixed-methods feasibility study of an arts-based intervention for patients receiving maintenance haemodialysis

Carswell

Reid

Walsh

et al. 2020

Preprint

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BackgroundHaemodialysis can negatively impact quality of life and mental health. Arts-based interventions used successfully in other settings to improve health and well-being, could help address the impact of haemodialysis. This study aimed to evaluate the feasibility and acceptability of conducting a randomised controlled trial (RCT) of an arts-based intervention for patients receiving haemodialysisMethodsA parallel convergent mixed-methods design was used, including a pilot cluster RCT and qualitative process evaluation. Phase 1 evaluated recruitment and retention rates through a pilot cluster RCT at a single haemodialysis unit in Northern Ireland. Participants included patients who received haemodialysis for ESKD, were over the age of 18 and had the capacity to consent. These participants were randomised to the intervention or control group according to their haemodialysis shift. The intervention involved six one-hour, one-to-one facilitated arts sessions during haemodialysis. Phase 2 explored intervention and trial acceptability through a qualitative process evaluation using semi-structured interviews based on the RE-AIM framework. Participants included 13 patients who participated in phase 1 of the study, including 9 participants from the experimental group and four participants from the control group, and nine healthcare professionals who were present on the unit during implementation. Results:Out of 122 outpatient haemodialysis patients, 94 were assessed as eligible for participation. Twenty-four participants were randomised, meaning 80% of the target sample size was recruited and the attrition rate at 3 months was 12.5% (n=3). Participants viewed the arts as more accessible and enjoyable than anticipated following implementation. All participants who started the intervention (n=11) completed the full six sessions. Qualitative benefits of the intervention suggest improvements in mental well-being. Patient choice and facilitation were important factors for successful implementation. Conclusion:An arts-based intervention for patients receiving haemodialysis is acceptable for both patients and healthcare professionals, and a definitive trial is feasible. The intervention may help improve mental-wellbeing in patients receiving haemodialysis, but this requires further investigation in a definitive trial.Trial registrationThe trial was prospectively registered on clinicaltrials.gov on 14/8/2018, registration number NCT03629496.

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Section: Discussionmentioning

confidence: 99%

A mixed-methods feasibility study of an arts-based intervention for patients receiving maintenance haemodialysis

Carswell

Reid

Walsh

et al. 2020

Preprint

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“…The survey comprised questions from validated health surveys (described next) with available comparable normative data. Additional scales and tools covering aspects of chronic disease were also included (reported separately 8 ). The study was granted ethics approval by the Health Research Authority National Research Ethics Service Committee South West-Cornwall & Plymouth, reference 15/SW/0101.…”

Section: Methodsmentioning

confidence: 99%

Psychosocial Health and Lifestyle Behaviors in Young Adults Receiving Renal Replacement Therapy Compared to the General Population: Findings From the SPEAK Study

Hamilton

Caskey

Casula

et al. 2019

American Journal of Kidney Diseases

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Patients in late adolescence and early adulthood receiving renal replacement therapy (RRT) face disruption to normal activities, which affects well-being. We aimed to define psychosocial and lifestyle outcomes for young adults on RRT compared to the general population. Study Design: We undertook a cross-sectional survey (the SPEAK [Surveying Patients Experiencing Young Adult Kidney Failure] Study) using validated measures and general population comparator data from the Health Survey for England and Avon Longitudinal Study of Parents and Children. Additional clinical information was obtained from the UK Renal Registry.

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“…29 It has been stated that social support led to a better life, reduced depression, and resulted in more efficient coping with the disease in patients under hemodialysis, while weak social support could increase mortality. 30 Indeed, social support was associated with the hemodialysis patients' QoL, 31 which not only protected them against tensions caused by the illness, but also increased their social-mental coping level. 32 It has also been found that low levels of social support increased mortality and reduced QoL in patients under hemodialysis.…”

Section: Introductionmentioning

confidence: 99%

<p>The Effect of Peer Support on Hope Among Patients Under Hemodialysis</p>

Pasyar¹,

Rambod²,

Jowkar³

2020

IJNRD

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Introduction: Providing social support for patients under hemodialysis treatment can reduce their psychological, social, and physical problems. The present study aimed at determining the effect of peer support on hopefulness in patients under hemodialysis. Methods: This clinical trial with a pre/posttest design was conducted on 128 patients who had referred to the hemodialysis centers of Shiraz University of Medical Sciences in 2019. The patients were randomly divided into an intervention and a control group. The patients in the intervention group were supported by their peers for eight weeks and were provided with the usual care, but the controls were only provided with the usual care. The data were collected using Snyder Hope Scale. Then, the data were entered into the SPSS software, version 18 and were analyzed using independent t-test and paired t-test. Results: At baseline, the participants in both groups were similar with respect to the mean scores of hope and its subscales (p>0.05). However, there was a significant difference between the two groups in terms of hope and its subscales eight weeks after the intervention (p<0.001). Conclusion: The results confirmed the effect of peer support on increasing hope among the patients under hemodialysis. Peer support in informational, emotional, instrumental, and spiritual forms could create a positive incentive and increase hope among the patients. Clinical Trial Number: This clinical trial has been registered in the Iranian Registry of Clinical Trials (IRCT20190126042498N1).

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Associations with Wellbeing and Medication Adherence in Young Adults Receiving Kidney Replacement Therapy

Cited by 42 publications

References 32 publications

A mixed-methods feasibility study of an arts-based intervention for patients receiving maintenance haemodialysis

A mixed-methods feasibility study of an arts-based intervention for patients receiving maintenance haemodialysis

Psychosocial Health and Lifestyle Behaviors in Young Adults Receiving Renal Replacement Therapy Compared to the General Population: Findings From the SPEAK Study

<p>The Effect of Peer Support on Hope Among Patients Under Hemodialysis</p>

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