Atopic Eczema and Stress among Single Parents and Families: An Empirical Study of 96 Mothers

Gieler, Uwe; Schoof, Stefanie; Gieler, Tanja; Scheewe, S.; Schut, Christina; Kupfer, Jörg

doi:10.2340/00015555-2457

Cited by 18 publications

(16 citation statements)

References 18 publications

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“…[13][14][15] Contrary to allergic bronchial asthma and allergic rhinoconjunctivitis ('hay fever'), the aetiopathogenesis of atopic eczema is still not well established. [23][24][25][26][27][28] A study measuring quality of life in children with AE showed that those with generalized eczema had an impaired quality of life score similar to children affected with cystic fibrosis, severe renal disease or cerebral palsy, while more localized forms showed similar scores to rheumatoid arthritis or diabetes. 16 2 The deviated immune response towards Th2-dominant responses with increased immunoglobulin E production and distinct inflammatory events leading to allergic reactions against a multitude of environmental allergens from the air or from foods.…”

Section: Introductionmentioning

confidence: 99%

“…21,22 The disease goes along with a remarkable economic burden both for the affected individual and for society and with marked impairment in quality of life. [23][24][25][26][27][28] A study measuring quality of life in children with AE showed that those with generalized eczema had an impaired quality of life score similar to children affected with cystic fibrosis, severe renal disease or cerebral palsy, while more localized forms showed similar scores to rheumatoid arthritis or diabetes. 29 Furthermore, there are deficits in quality of health care for the affected persons and their families.…”

Section: Introductionmentioning

confidence: 99%

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Atopic eczema: burden of disease and individual suffering – results from a large EU study in adults

Ring

Zink

Arents

et al. 2019

Acad Dermatol Venereol

128

112

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Background Atopic eczema (AE, atopic dermatitis) is one of the most common non‐communicable inflammatory skin diseases affecting 1–5% of the adult population in Europe with marked impairment in quality of life. In spite of great progress in understanding the pathophysiology of disturbed skin barrier and immune deviation, AE still represents a problem in daily clinical practice. Furthermore, the true impact of AE on individual suffering is often not recognized. Objectives With a large European study, we wanted to provide insights into the actual suffering and individual burden of disease in adult patients with AE. Methods A total of 1189 adult patients (18–87 years, 56% female) with moderate to severe AE were recruited in nine European countries by dermatologists or allergists together with the help of patient organizations. A computer‐assisted telephone interview was performed by experienced interviewers between October 2017 and March 2018. The following instruments were used to assess severity or measure quality of life: Patient‐Oriented Eczema Measure (POEM), Dermatology Life Quality Index (DLQI), Hospital Anxiety and Depression Scale (HADS‐D) and a newly developed Atopic Eczema Score of Emotional Consequences (AESEC). Patients were also asked to self‐assess the severity of their disease. Results Despite current treatment, 45% of participants still had actual moderate to very severe AE in POEM. Due to their skin disease, 57% missed at least 1 day of work in the preceding year. DLQI showed moderate to extremely large impairment in 55%. According to HADS‐D, 10% scored on or above the threshold of eight points with signs of depressive symptoms. Assessed with AESEC, 57% were emotionally burdened with feelings such as ‘trying to hide the eczema’, ‘feeling guilty about eczema’, having ‘problems with intimacy’ and more. Of persons actually suffering from severe AE, 88% stated that their AE at least partly compromised their ability to face life. Conclusions This real‐life study shows that adults with a moderate to severe form of AE are suffering more than what would be deemed acceptable. There is a need for increased awareness of this problem among healthcare professionals, policymakers and the general public to support research in the development of new and more effective treatments and provide access to better and affordable health care for affected patients.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Atopic eczema: burden of disease and individual suffering – results from a large EU study in adults

Ring

Zink

Arents

et al. 2019

Acad Dermatol Venereol

128

112

View full text Add to dashboard Cite

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“…Despite a strong commitment to the health and development of all children, there are still concerns about poor childhood health outcomes due to issues within the social determinants of health. In recent studies, single-parenthood is recognised as a risk factor for the development of chronic health conditions among children [6][7][8][9][10][11][12][13]. Children in single-parent households are seen as a socially vulnerable population, as their families tend to have a lower overall income, resulting in food insecurity and other physical conditions that impose a heightened risk for maladaptive health outcomes.…”

Section: Introductionmentioning

confidence: 99%

Single-parenthood and health conditions among children receiving public assistance in Japan: a cross-sectional study

Nishioka

Saito

Ueno

et al. 2020

Preprint

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Background: Single-parenthood is recognised as a risk factor for chronic childhood health conditions due to lower family income, resulting in food insecurity and an increased psychological burden. Governmental social assistance may address the risk by ensuring minimum-income protection and financial healthcare access. However, no study has investigated the association between single-parenthood and health statuses among children in families receiving social assistance benefits. This study aimed to examine the association between single-parent households and children’s health among public assistance recipients in Japan by—for the first time ever—using linkage data of two municipal public assistance databases and medical assistance claim data.Methods: We performed a cross-sectional study. Public assistance for households below poverty line ensures their income security and medical care. We extracted individual factors of children aged 15 years or younger in January 2016 and observed until December 2016. We identified one-year prevalence of childhood diseases by using International Classification of Disease, Tenth Edition (ICD-10) codes.Results: Among the 573 participants, 383 (66.8%) lived in single-parent households. A multivariable Poisson regression showed that single-parenthood is associated with a higher prevalence of asthma (prevalence ratio [PR] = 1.62; 95% confidence interval [CI], 1.16-2.26), allergic rhinitis (PR = 1.41; 95% CI, 1.07-1.86), dermatitis and eczema (PR = 1.81; 95% CI, 1.21-2.70), and dental diseases (PR = 1.79; 95% CI, 1.33-2.42), as compared to other households. No association was found between single-parenthood and acute children’s diseases such as respiratory infections, injuries, and intestinal infections.Conclusions: Living in single-parent households is a risk factor for children’s chronic diseases, despite them receiving public assistance benefits. These results may be explained by the increased psychosocial stress, suggesting that the present public assistance system in Japan should provide additional social support. Ameliorating health conditions of children among single-parent households on public assistance can be achieved by closer monitoring of the community. Further investigations are necessary using more detailed information such as environmental factors, the severity of children’s health conditions, the contents of any received treatments, and broader socioeconomic factors.

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“…A 22‐item German questionnaire for parents of children with atopic eczema (Fragebogen für Eltern von Neurodermitis kranken Kindern; FEN) has been developed and used . The FEN includes four subscales: ‘aggressive behaviours towards scratching’ (eight items), ‘protective behaviour’ (seven items), ‘control of scratching’ (four items) and ‘negative experiences with the treatment’ (three items).…”

Section: Resultsmentioning

confidence: 99%

Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology‐specific instruments

Sampogna

Finlay

Salek

et al. 2017

Acad Dermatol Venereol

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The patient is the centre of a web of relationships and the impact of his/her disease on family members and caregivers must be taken into account. The aim of this study was to identify the specific instruments that measure the impact of a dermatological disease on the quality of life (QoL) of family members, by performing a systematic search of the literature. Fifteen papers were identified, describing the creation and validation of nine instruments. Four of them concerned atopic dermatitis (Dermatitis Family Index, DFI; Parents' Index QoL Atopic

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Atopic Eczema and Stress among Single Parents and Families: An Empirical Study of 96 Mothers

Cited by 18 publications

References 18 publications

Atopic eczema: burden of disease and individual suffering – results from a large EU study in adults

Atopic eczema: burden of disease and individual suffering – results from a large EU study in adults

Single-parenthood and health conditions among children receiving public assistance in Japan: a cross-sectional study

Measuring the impact of dermatological conditions on family and caregivers: a review of dermatology‐specific instruments

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