Attachment Theory and Adjustment Difficulties in Siblings of Children With Cancer

Murray, John S.

doi:10.1080/016128400248167

Cited by 30 publications

(33 citation statements)

References 22 publications

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“…Several studies have identified maladaptive levels of anxiety and depression in healthy siblings of childhood cancer patients [Cain et al, 1964;Spinetta, 1981], although the distress tends to remit once the cancer treatment stops [Van Dongen-Melman et al, 1995]. One possible explanation is that overwhelmed parents may neglect the psychological and physical needs of their healthy children [Sahler et al, 1994;Zeltzer et al, 1996;Houtzager et al, 1999;Murray, 2000] and, perhaps, leave them to contend with feelings of loneliness, fear, anger, hate and jealousy [Martinson et al, 1990;Murray, 1998]. In this way, parent-child bonding or attachment may be harmed and lead to psychological distress in the child [Fanos, 1997;Murray, 2000].…”

Section: Discussionmentioning

confidence: 99%

Genetic testing for hereditary colorectal cancer in children: Long‐term psychological effects

Codori

Zawacki

Petersen

et al. 2002

American J of Med Genetics Pt A

100

106

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Children who carry a gene mutation for familial adenomatous polyposis are virtually certain to develop colorectal cancer without annual endoscopic screening and a colectomy when polyps appear. Predictive genetic testing can identify children who need regular surveillance. While the medical benefits of genetic testing are clear, the psychological effects have not been well studied. We evaluated the long-term psychological effects of genetic testing in 48 children and their parents. In each family, one parent was a known APC gene mutation carrier. Before genetic testing, and three times afterward, participants completed measures of psychological functioning, which, for children, included depression and anxiety symptoms, and behavior problems and competencies. Parents completed a measure of depression symptoms. Data were collected at 3-, 12-, and 23-55 months after disclosure. Twenty-two children tested positive; 26 children tested negative. Mean length of follow-up was 38 months. There were no clinically significant changes in mean psychological test scores in children or parents, regardless of the children's test results or the sex of the affected parent. However, the group of children who tested positive and had a mutation-positive sibling showed significant, but subclinical, increases in depression symptoms. Furthermore, several individual mutation-negative children with a positive sibling had clinical elevations in anxiety symptoms at one or more follow-up. Behavior problems declined for all groups, and behavior competence scores remained unchanged. We conclude that most children do not suffer clinically significant psychological distress after testing. However, because some children showed clinically significant anxiety symptoms, long-term psychological support should be available to those families with both mutation-positive and mutation-negative children, and with multiple mutation-positive children. Our findings should call for a multidisciplinary approach to genetic testing for children.

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Section: Discussionmentioning

confidence: 99%

Genetic testing for hereditary colorectal cancer in children: Long‐term psychological effects

Codori

Zawacki

Petersen

et al. 2002

American J of Med Genetics Pt A

100

106

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“…Propondo compreender os efeitos da experiência do câncer infantil para os irmãos saudáveis, foi elaborado um estudo (9) utilizando-se como ferramenta conceitual a teoria do apego. O estudo busca explicar a natureza das relações entre as crianças com seus pais, em termos de funções biológicas, e avaliar possíveis distúrbios de comportamento em resposta a prolongada separação com figuras significativas.…”

Section: Impacto Da Doença Nos Irmãos Saudáveisunclassified

O câncer infantil na perspectiva dos irmãos das crianças doentes: revisão bibliográfica

2004

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Resumo IntroduçãoO câncer é uma doença de grande magnitude, com alta prevalência e impacto social e rotineiramente tem sido associado a dor, sofrimento e morte. O incerto curso da doença afeta o doente e toda a família, que têm a vida irreversivelmente transformada pelos tratamentos e conseqüências impostas pela doença, podendo levá-los a um processo de desintegração familiar e social.As demandas das crianças com câncer e de seus pais têm sido, há vários anos, objeto de investigação de muitos pesquisadores, entretanto, outros membros da família, como os irmãos, têm sido freqüentemente negligenciados (2) . Frente ao excesso de demanda decorrente da própria doença, algumas dificuldades são identificadas na família, como hospitalizações e viagens freqüentes, as quais podem interferir na rotina e planejamento das atividades dos irmãos saudáveis, ou ainda, determinar que eles sejam deixados nas casa de parentes ou amigos (3) . Nesse sentido, os pais podem não ser capazes de comparecer em reuniões e programações escolares ou outras, além dos recursos financeiros e emocionais serem direcionados em uma maior proporção à criança com necessidades especiais (3) . Freqüentemente ou inevitavelmente, os irmãos saudáveis sentem-se física e emocionalmente isolados (4) . A experiência do câncer infantil pode acarretar em efeitos positivos aos irmãos das crianças doentes (2,(5)(6) . Para alguns autores, eles passam a demonstrar maior simpatia por outras pessoas, desejo de proteger/cuidar do irmão doente, compreensão dos sentimentos das mães, responsabilidade e maturidade (5) . Por outro lado, outras pesquisas prevêem que os irmãos saudáveis são susceptíveis a desajustes, como depressão, raiva, ansiedade, culpa e isolamento social (7) . O estresse do irmão saudável ocorre, em grande parte, devido à instabilidade emocional pela separação dos pais, medo e infelicidade (5) . Frente às necessidades de ampliar o conhecimento a respeito da temática, o objetivo desse artigo é realizar uma revisão da literatura de pesquisas que abordem irmãos de crianças com câncer, no período de 1998 até 2003, a fim de identificar os temas de maior interesse e fornecer subsídios para o cuidado de enfermagem aos irmãos das crianças com câncer. Abstract

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“…In studies conducted with siblings of disabled chidren in recent years, it has been found that children with a disabled sibling are also more stressful (8). Siblings of disabled children had psychopathological problems such as stressful life, adaptation problems, increase in the feeling of inadequacy and internal and external behavioral problems and unrealistic responsibilities at home (9,10).…”

Section: Introductionmentioning

confidence: 99%

Desire to have other children in families with a chronically disabled child and its effect on the relationship of the parents

Şimşek

Taşçı²,

Karabulut³

2015

Turk Pediatri Ars

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Aim: The aim of this study was to examine the desire of the parents who had a chronically disabled child to have other children and to investigate the effect of having a disabled child on the relationship of the parents. Material and Methods:The families of 145 chronically disabled children were included in the study. After the sociodemographic information belonging to the child and family were obtained, the prepared questionnaire form was used to interrogate if the parents lived together, the number of children in the family, if they wished to have other children and the relation of the disabled child with the household. Ethics committee approval was obtained from Dokuz Eylül University (date: 18.10.2012, decision number, 2012/34-13). The data obtained in the study were expressed as figures and percentages.Results: While 91.7% of the parents continued their relationship, 2.8% were divorced and 1.4% were left by their spouses. The rate of the parents who did not wish to have (or did not have) other children after a disabled child was found to be 65.2%. The major reason for the families not to wish to have other children was found to be the fact that they thought they could not spare enough time for their disabled child. While 35.1% of the parents stated that clemped together more tightly, 35.2% stated that their concerns about the future increased further. Fifty eight percent of the parents stated that social relations and community involvements were not affected, whereas others stated that they were affected in different ways. Conclusions:Although the relationship between the parents was not affected to a great extent in families who had chronically disabled children, it was found that parents intensively experienced concern for the future. It was found that this also affected the desire of the parents who had a chronically disabled child to have other children with the concern that the child will be disabled. (Turk Pediatri Ars 2015; 50: 163-9)

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Attachment Theory and Adjustment Difficulties in Siblings of Children With Cancer

Cited by 30 publications

References 22 publications

Genetic testing for hereditary colorectal cancer in children: Long‐term psychological effects

Genetic testing for hereditary colorectal cancer in children: Long‐term psychological effects

O câncer infantil na perspectiva dos irmãos das crianças doentes: revisão bibliográfica

Desire to have other children in families with a chronically disabled child and its effect on the relationship of the parents

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