Attitudes of Patients With Bipolar Disorder Toward the Life Chart Methodology

Bendegem, Mischa A. van; Heuvel, Silvio C.G.H. van den; Kramer, Laura; Goossens, Peter

doi:10.1177/1078390314558420

Cited by 16 publications

(24 citation statements)

References 18 publications

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“…Before progressing into QoL tracking apps, it is important to attend to the evidence suggesting that self-monitoring in BD is not always experienced positively. Attention to symptoms may be a distressing reminder of being unwell [4] and may reinforce depressive symptoms [5]. Given its broad focus and attention to both positive and negative experiences, QoL may be an acceptable target for self-monitoring and play a valuable complementary role to symptom tracking.…”

Section: Introductionmentioning

confidence: 99%

“…Studies in BD and other psychiatric conditions suggest that there are additional psychological costs to self-monitoring when living with a chronic mental illness. One such qualitative study specifically explored experiences of using the Life Chart Methodology (LCM), a daily record of manic and depressed mood, sleep duration, number of mood changes, and medication use [23], in individuals with bipolar I disorder (BD-I) [4]. The usage of the LCM was perceived by almost half (43%) of the participants as an unpleasant reminder that they were living with BD, forcing confrontation with the limitations of illness.…”

Section: Introductionmentioning

confidence: 99%

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Experiences of a Web-Based Quality of Life Self-Monitoring Tool for Individuals With Bipolar Disorder: A Qualitative Exploration

et al. 2019

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BackgroundSelf-monitoring of symptoms is a cornerstone of psychological interventions in bipolar disorder (BD), but individuals with lived experience also value tracking holistic outcomes, such as quality of life (QoL). Importantly, self-monitoring is not always experienced positively by people with BD and may have lower than expected rates of engagement. Therefore, before progressing into QoL tracking tools, it is important to explore user perspectives to identify possible risks and benefits, optimal methods to support engagement, and possible avenues to integrate QoL self-monitoring practices into clinical work.ObjectiveThis study aimed to conduct a qualitative exploration of how individuals with BD engaged with a Web-based version of a BD-specific QoL self-monitoring instrument, the QoL tool.MethodsA total of 43 individuals with BD engaged with a self-management intervention with an optional Web-based QoL self-assessment tool as part of an overarching mixed method study. Individuals were later interviewed about personal experiences of engagement with the intervention, including experiences of gauging their own QoL. A thematic analysis was used to identify salient aspects of the experience of QoL self-monitoring in BD.ResultsIn total, 4 categories describing people’s experiences of QoL self-monitoring were identified: (1) breadth of QoL monitoring, (2) highlighting the positive, (3) connecting self-monitoring to action, and (4) self-directed patterns of use.ConclusionsThe findings of this research generate novel insights into ways in which individuals with BD experience the Web-based QoL self-assessment tool. The value of tracking the breadth of domains was an overarching aspect, facilitating the identification of both areas of strength and life domains in need of intervention. Importantly, monitoring QoL appeared to have an inherently therapeutic quality, through validating flourishing areas and reinforcing self-management efforts. This contrasts the evidence suggesting that symptom tracking may be distressing because of its focus on negative experiences and positions QoL as a valuable adjunctive target of observation in BD. Flexibility and personalization of use of the QoL tool were key to engagement, informing considerations for health care providers wishing to support self-monitoring and future research into Web- or mobile phone–based apps.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Experiences of a Web-Based Quality of Life Self-Monitoring Tool for Individuals With Bipolar Disorder: A Qualitative Exploration

et al. 2019

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“…In our study, we found that instruments such as the retrospective and prospective life charts, and relapse prevention plans, that are recommended in guidelines for treatment of BD (Nolen et al 2008, Bauer et al 2009 were rarely used by service users to identify and control the symptoms of BD. These findings are confirmed by the study of van Bendegem et al (2014), wherein service users often feel reluctant to consistently make use of life charts. In addition, we found that (social) learning by recognizing signals from people in a network was preferred above the use of instruments.…”

Section: Discussionmentioning

confidence: 65%

“…These findings are confirmed by the study of van Bendegem et al . (), wherein service users often feel reluctant to consistently make use of life charts. In addition, we found that (social) learning by recognizing signals from people in a network was preferred above the use of instruments.…”

Section: Discussionmentioning

confidence: 99%

Identifying and describing patients' learning experiences towards self‐management of bipolar disorders: a phenomenological study

Heuvel

Goossens

Terlouw

et al. 2015

Psychiatric Ment Health Nurs

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Existing evidence suggest that self-management education of bipolar disorder (BD) is effective. However, why outcomes differ across the full range of service users has not been examined. This study describes learning experiences of service users in self-managing BD that provide a possible explanation for this varying effectiveness. We have conducted a phenomenological study via face-to-face, in-depth interviews, guided by a topic list, along service users with BD I or II (n = 16) in three specialised community care clinics across the Netherlands. Interviews were digitally recorded and transcribed verbatim prior to analysis in Atlas.ti 7. Unlike existing studies, which suggest that individual abilities of service users determine outcomes in self-management of BD, the current study found that self-management of BD is a learning process that takes place in a collaborative network. We identified five categories: acknowledgment of having BD, processing the information load, illness management, reflecting on living with BD, and self-management of BD. The success of self-management depends on the acknowledgment of individual limitations in learning to cope with BD and willingness to use a social network as a back-up instead. Especially, the dormant fear of a recurrent episode is a hampering factor in this learning process.

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“…However, our assessment of mood state was based on participants’ self‐ratings, the reliability of which could be questioned. Van Bendegem et al investigated the attitudes of patients with BD toward the LCM and found that patients questioned its reliability too, particularly during an episode when their ability to self‐reflect might be limited. However, if the interviewer in the current study, an experienced mental health nurse, had cause to doubt a patient's rating on the basis of her own observations of signs and symptoms, the interview could be stopped or subsequently excluded.…”

Section: Discussionmentioning

confidence: 99%

Show yourself, experiences of patients with bipolar disorder recording a film to show their “euthymic being”: A qualitative study

Goossens

Daggenvoorde

Lipman

et al. 2020

Perspect Psychiatr Care

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Purpose: To examine the experiences of outpatients with bipolar disorder recording a 10-minute film to show their "being" in a euthymic mood state.Design and methods: A multicenter qualitative study, in the context of a feasibility study for a newly developed intervention. Data were analyzed using the Stevick-Colaizzi-Keen method.Findings: Participants experienced the recording as positive and valuable. Although camera anxiety was mentioned frequently, the overall conclusion is that recording a film in the context of a newly developed film intervention is valid.Practice implications: Clear information and support for the patient should be provided during the preparatory conversation and recording. K E Y W O R D S bipolar disorder, euthymic, film, intervention development

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Attitudes of Patients With Bipolar Disorder Toward the Life Chart Methodology

Abstract: The impact of the diagnosis of BD needs to be taken in account when introducing the instrument for the first time to a patient.

Cited by 16 publications

References 18 publications

Experiences of a Web-Based Quality of Life Self-Monitoring Tool for Individuals With Bipolar Disorder: A Qualitative Exploration

Experiences of a Web-Based Quality of Life Self-Monitoring Tool for Individuals With Bipolar Disorder: A Qualitative Exploration

Identifying and describing patients' learning experiences towards self‐management of bipolar disorders: a phenomenological study

Show yourself, experiences of patients with bipolar disorder recording a film to show their “euthymic being”: A qualitative study

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