Attitudes of people living with cancer towards trial non-publication and research participation

Hamilton, Daniel G; Everitt, Sarah; Page, Matthew J; Vazire, Simine; Fidler, Fiona

doi:10.1136/bmjebm-2023-112456

Cited by 1 publication

(1 citation statement)

References 11 publications

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“…It also contained a bonus section to explore participants' views on trial nonpublication; the results of which have been published elsewhere. 23 The first section collected relevant demographic information from participants including referral location, age, gender, rurality, level of education, diagnosed cancer, time since last treatment, prior research participation, and trust in Australian healthcare stakeholders (i.e., trust in their GP, other medical doctors, academic researchers, for-profit researchers, and the Australian Government). The second explained the concept of 'research data' and the commonly stated reasons for and against sharing, with the order of reasons being randomized for each participant, to allow us to investigate whether the order of reasons did not impact participants' attitudes toward data sharing.…”

Section: Survey Designmentioning

confidence: 99%

What do Australians affected by cancer think about oncology researchers sharing research data? A cross‐sectional survey

Hamilton,

Everitt,

Page

et al. 2024

Asia-Pac J Clncl Oncology

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AimPrevious research has shown patients and the public in Australia generally support medical researchers in making de‐identified research data available to other scientists. However, this research has focussed on certain types of data and recipients. We surveyed Australians affected by cancer to characterize their attitudes toward the sharing of research data with multiple third parties, including the public.MethodsA short, anonymous online survey of Australians with a previous diagnosis of cancer was advertised between October 27, 2022, and February 27, 2023. Quantitative responses were analyzed with descriptive statistics. Free‐text responses were coded deductively and summarised using content analysis.ResultsIn total, 551 respondents contributed data to the survey. There was strong support for cancer researchers sharing non‐human and de‐identified human research data with clinicians (90% and 95%, respectively) and non‐profit researchers (both 94%). However, fewer participants supported sharing data with for‐profit researchers (both 64%) or publicly (both 61%). When asked if they would hypothetically consent to researchers at their treatment location using and sharing their de‐identified data publicly, only half agreed. In contrast, after being shown a visual representation of the de‐identified survey data, 80% of respondents supported sharing it publicly.ConclusionAustralians affected by cancer support the sharing of research data, particularly with clinicians and non‐profit researchers. Our results also imply that visualization of the data to be shared may enhance support for making it publicly available. These results should help alleviate any concerns about research participants’ attitudes toward data sharing, as well as boost researchers’ motivation for sharing.

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Section: Survey Designmentioning

confidence: 99%