Attitudes Toward Neonatal Intensive Care Treatment of Preterm Infants With a High Risk of Developing Long-term Disabilities

Lam, Hugh Simon; Wong, Samuel S. Y.; Liu, Flora Yuen Big; Wong, Hiu Lei; Fok, Tai Fai; Ng, Pak Cheung

doi:10.1542/peds.2008-2061

Cited by 86 publications

(66 citation statements)

References 14 publications

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“…Positive stimuli can strongly contribute to the clinical evolution of these children, mainly if their own mothers touch them. These touches also allow mothers to get to know their children's individual aspects, distinguishing their actions from those of other professionals (16)(17)(18)(19)(20)(21)(22) .…”

Section: Taking Care Of the Child: Facing The Challenge Of Having A Smentioning

confidence: 99%

“…In this sense, we understand that, for these mothers, taking care is more than an action, it is an act of recognizing their own child and, also, their role as mothers (16)(17)(18)(19)(20)(21)(22) .…”

Section: Taking Care Of the Child: Facing The Challenge Of Having A Smentioning

confidence: 99%

“…This total surrendering to their children often makes them suffer, due to their long stay in such an inhospitable environment, without any comfort and with a massifying routine (16)(17)(18)(19)(20)(21) .…”

Section: Staying Close To the Premature Infant: Maternal Presence Conmentioning

confidence: 99%

“…According to the institution's possibilities, this initiative can be expanded to relatives, such as the father, siblings and grandparents. Thus, the family can be welcomed in times of crisis, which is the hospitalization of a family member (19) .…”

Section: Reciprocal Help Among Mothers: It Is Hope Reinforced Day By Daymentioning

confidence: 99%

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Vivências e perspectivas maternas na internação do filho prematuro em Unidade de Tratamento Intensivo Neonatal

Araújo

Rodrigues

2010

Rev. esc. enferm. USP

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O estudo teve o objetivo de apreender o motivo para a permanência materna no hospital durante a internação do filho prematuro em Unidade de Terapia Intensiva Neonatal. A pesquisa foi realizada com doze mães de recém-nascidos prematuros numa maternidade municipal do Rio de Janeiro em 2007. Adotou-se como suporte metodológico a Fenomenologia Sociológica de Alfred Schütz. A entrevista fenomenológica foi utilizada para captar o discurso das mães, cuja ação intencional foi desvelada mediante as seguintes categorias: Cuidar do filho - enfrentando o desafio de ter um pequeno bebê; Ficar perto do filho prematuro - a presença materna contribuindo para a sua recuperação mais rápida; Ajuda recíproca entre as mães - é a esperança reforçada a cada dia. O alojamento de mães destaca-se como iniciativa inovadora e relevante durante a internação dos filhos prematuros, sendo considerado um espaço de convivências, troca de experiências e apoio mútuo, na longa e difícil permanência hospitalar.

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Section: Taking Care Of the Child: Facing The Challenge Of Having A Smentioning

confidence: 99%

Section: Taking Care Of the Child: Facing The Challenge Of Having A Smentioning

confidence: 99%

Section: Staying Close To the Premature Infant: Maternal Presence Conmentioning

confidence: 99%

Section: Reciprocal Help Among Mothers: It Is Hope Reinforced Day By Daymentioning

confidence: 99%

See 2 more Smart Citations

Vivências e perspectivas maternas na internação do filho prematuro em Unidade de Tratamento Intensivo Neonatal

Araújo

Rodrigues

2010

Rev. esc. enferm. USP

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“…Since 1994, our knowledge regarding both the survival rates of extremely preterm infants (3)(4)(5) and the quality of life of those survivors has substantially improved (6-13). We have also learned more about what parents want to know when they are facing the delivery of an extremely premature infant (14)(15)(16), as well as their experiences in the NICU (17) and the impact on families in the long term (18,19). Disturbingly, we have also learned that preterm infants are routinely denied life-sustaining treatment, even when their prognosis is better than that of other patients who routinely receive such treatment (2,(20)(21)(22)(23)(24)(25)(26)(27)(28).…”

mentioning

confidence: 99%

CPS position statement for prenatal counselling before a premature birth: Simple rules for complicated decisions

Janvier

Barrington

Aziz

et al. 2014

Paediatrics and Child Health

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Predictors of Death or Severe Impairment in Neonates With Hypoxic-Ischemic Encephalopathy

Glass,

Wood,

Comstock

et al. 2024

JAMA Netw Open

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ImportanceOutcomes after hypoxic-ischemic encephalopathy (HIE) are variable. Predicting death or severe neurodevelopmental impairment (NDI) in affected neonates is crucial for guiding management and parent communication.ObjectiveTo predict death or severe NDI in neonates who receive hypothermia for HIE.Design, Setting, and ParticipantsThis prognostic study included participants enrolled in a large US clinical trial conducted in US neonatal intensive care units who were born between January 2017 and October 2019 and followed up to age 2 years. Eligible participants were neonates with moderate-severe HIE born at 36 weeks or more gestation and with 2-year outcome data. Data were analyzed June 2023. External validation was performed with a UK cohort.ExposureClinical, electroencephalography (EEG), and magnetic resonance imaging (MRI) variables were curated and examined at 24 hours and following cooling.Main Outcome and MeasuresDeath or severe NDI at age 2 years. Severe NDI was defined as Bayley Scales of Infant Toddler Development cognitive score below 70, Gross Motor Function Classification System score of 3 or higher, or quadriparesis. Model performance metrics were derived from training, internal, and external validation datasets.ResultsAmong 424 neonates (mean [SD] gestational age, 39.1 [1.4] weeks; 192 female [45.3%]; 28 Asian [6.6%], 50 Black [11.8%], 311 White [73.3%]), 105 (24.7%) had severe encephalopathy at enrollment. Overall, 59 (13.9%) died and 46 (10.8%) had severe NDI. In the 24-hour model, the combined presence of 3 clinical characteristics—(1) severely abnormal EEG, (2) pH level of 7.11 or below, and (3) 5-minute Apgar score of 0—had a specificity of 99.6% (95% CI, 97.5%-100%) and a positive predictive value (PPV) of 95.2% (95% CI, 73.2%-99.3%). Validation model metrics were 97.9% (95% CI, 92.7%-99.8%) for internal specificity, with a PPV of 77.8% (95% CI, 43.4%-94.1%), and 97.6% (95% CI, 95.1%-99.0%) for external specificity, with a PPV of 46.2% (95% CI, 23.3%-70.8%). In the postcooling model, specificity for T1, T2, or diffusion-weighted imaging (DWI) abnormality in at least 2 of 3 deep gray regions (ie, thalamus, caudate, putamen and/or globus pallidus) plus a severely abnormal EEG within the first 24 hours was 99.1% (95% CI, 96.8%-99.9%), with a PPV of 91.7% (95% CI, 72.8%-97.8%). Internal specificity in this model was 98.9% (95% CI, 94.1%-100%), with a PPV of 92.9% (95% CI, 64.2%-99.0%); external specificity was 98.6% (95% CI, 96.5%-99.6%), with a PPV of 83.3% (95% CI, 64.1%-93.4%).Conclusions and RelevanceIn this prognostic study of neonates with moderate or severe HIE who were treated with therapeutic hypothermia, simple models using readily available clinical, EEG, and MRI results during the hospital admission had high specificity and PPV for death or severe NDI at age 2 years.

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Attitudes Toward Neonatal Intensive Care Treatment of Preterm Infants With a High Risk of Developing Long-term Disabilities

Cited by 86 publications

References 14 publications

Vivências e perspectivas maternas na internação do filho prematuro em Unidade de Tratamento Intensivo Neonatal

Vivências e perspectivas maternas na internação do filho prematuro em Unidade de Tratamento Intensivo Neonatal

CPS position statement for prenatal counselling before a premature birth: Simple rules for complicated decisions

Predictors of Death or Severe Impairment in Neonates With Hypoxic-Ischemic Encephalopathy

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