Attitudes toward prenatal diagnosis, termination of pregnancy, and reproduction by parents of children with nonsyndromic oral clefts in Argentina

Wyszynski, Diego F.; Perandones, Claudia; Bennun, Ricardo D.

doi:10.1002/pd.674

Cited by 37 publications

(33 citation statements)

References 23 publications

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“…The responses of mothers of children with clefts to the same question are similar to the results of a study conducted in Argentina by Wyszynski, Perandones, and Bennum[16] wherein most parents of children with a cleft strongly support the continuation of pregnancy as they felt that an oral cleft is not a serious condition requiring the termination of pregnancy and only 6.4% of 165 parents chose to terminate pregnancy. The reason for the continuation of pregnancy with a cleft child in Argentina is explained on the basis that most subjects in the study were Catholics and abortion is legally restricted in Argentina.…”

Section: Discussionsupporting

confidence: 75%

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Attitudes of pregnant women and mothers of children with orofacial clefts toward prenatal diagnosis of nonsyndromic orofacial clefts in a semiurban set-up in India

Kadagad

Pinto

Powar

2011

Indian J Plast Surg

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Objectives:To assess the attitudes of pregnant women and mothers of children with orofacial clefts toward prenatal diagnosis of clefts and elective termination of pregnancy, and to investigate their opinion about who makes reproductive decisions in the family.Design:Two hundred subjects were included in the study prospectively regarding hypothetical prenatal ultrasound diagnosis of clefts.Setting:The study was done in a private tertiary care institution and a teaching hospital.Subjects/Participants:One hundred pregnant women consulting the Obstetrics department and 100 mothers of children with orofacial clefts in the Cleft and Craniofacial Unit were selected.Materials and Methods:Group I subjects were interviewed using a questionnaire and were shown preoperative and postoperative pictures of children treated for cleft lip and palate. Group II subjects were interviewed using a questionnaire.Results:Only 3% of Group I subjects and 2% of Group II opined that they would choose the elective termination of pregnancy if the fetus was diagnosed with a cleft on an ultrasound scan. In Group II, 70% subjects wished to have known about pregnancy affected with cleft prenatally and 96% said they would definitely avail ultrasound scans to determine pregnancy affected by clefts in future.Conclusions:Majority of the respondents from both the groups chose to continue with the pregnancy affected with a cleft when questioned regarding hypothetical prenatal ultrasound diagnosis of the cleft.

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Section: Discussionsupporting

confidence: 75%

“…[14] The elective termination of pregnancy for prenatal diagnosis of a non-syndromic oral cleft has been viewed differently across the world, the concerns being ethical, religious, and cultural differences among the population. [1516]…”

Section: Introductionmentioning

confidence: 99%

Attitudes of pregnant women and mothers of children with orofacial clefts toward prenatal diagnosis of nonsyndromic orofacial clefts in a semiurban set-up in India

Kadagad

Pinto

Powar

2011

Indian J Plast Surg

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“…In this survey, more than half of the scholars believed that counseling regarding affected fetuses does not influence mothers into deciding for abortion. In some studies, it has been shown that when faced with an anomaly such as Down syndrome and aneuploidies in which a poor prognosis was expected, most of the couples independently decided to terminate the pregnancy, even if termination of pregnancy was not legally available in their countries [3, 6, 7, 9, 16, 28]. One study in the Netherlands stated that the decision process regarding the affected fetus was influenced most by the husband and much less by (health) caregivers or family and friends.…”

Section: Discussionmentioning

confidence: 99%

“…Specifically, prenatal screening estimates a woman’s risk of having an affected pregnancy [2]. On the basis of the knowledge gained through genetic counseling and prenatal screening and testing, couples can choose to continue with the pregnancy and receive prenatal treatment, if available, or to terminate the pregnancy [1, 3]. Decisions regarding these issues are complex and depend upon different factors such as the health care system, social-cultural background, ethical and religious beliefs, as well as the laws on abortion of the country [4,5,6].…”

Section: Introductionmentioning

confidence: 99%

Prenatal Screening and Counseling in Iran and Ethical Dilemmas

Saniei

Mehr

Shahraz

et al. 2008

Public Health Genomics

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Objective: Prenatal screening has become an increasingly common procedure all over the world. It offers couples useful information relating to the health of their fetus, although it faces us with serious ethical dilemmas as well. This study was conducted to find out the attitudes of Iranian scholars towards prenatal screening and counseling with respect to ethical issues. Methods: Two hundred and one physicians, genetic and religious scholars were interviewed with regard to demographics and attitudes towards the ethical dilemmas in prenatal screening and counseling. Interviews were analyzed using the four-principle approach. Results: Findings showed scholars’ attitudes towards: (1) the right of couples to choose prenatal screening, (2) the role of prenatal screening and counseling concerning termination of an affected fetus, (3) screening results and emotional distress in couples, and (4) the impact of prenatal screening and counseling on disability rate. Conclusion: Iranian scholars were willing to consider prenatal screening to help prevent transmission of diseases to the next generation. This goal is attained through the autonomous choice of the couple to participate in prenatal screening and counseling.

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“…However, it is interesting to note that when parents are asked if they are satisfied to have only learned of the malformation at the child's birth 9 to 41% of parents, according to the literature, say they would have preferred to have been informed sooner. Still most of them asserted that they were satisfied that they only learned of their child's defect at the time of its birth 1,9,12,19 . A single study has shown that all parents would have preferred a prenatal diagnosis 4 .…”

Section: -1 -Pre-natal Diagnosesmentioning

confidence: 99%

Relationships between parents and children with labio-palatal clefts: the importance of a delay preceding the first surgical repair

Grollemund¹,

Danion-Grilliat²,

Kauffmann³

et al. 2011

J Dentofacial Anom Orthod

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Any attentive observer of families who have a child afflicted with a cleft lip whether or not associated with a palatal cleft would be certain to be impressed by the importance of the psychological context of their interpersonal exchanges and the risks of a breakdown in the parent-child relationship adversely affecting the child's development. The birth of a child with a cleft lip inevitably becomes a painfully stressful and traumatic event for its parents.In the framework of the Programme Hospitalier de Recherche Clinique (PHRC) we have evaluated the psychological perceptions of parents of cleft lip and palate patients during the child's first year of life in a multi-disciplinary and multi-group prospective study. Our goal is to analyze both the child's psychic suffering and the parent-child relationship. We compared the results obtained in four hospital centers using different surgical protocols, distinguishing between the sub-groups of parents who had learned of the defect from an in utero examination and parents who did not become aware of the cleft until the child was born.We analyze for the parents the psychic and psychological dimensions of the deformity and its correction, touching on the importance of a prenatal diagnosis, the development of a relationship with the child, self-images, and the quality of life as well focusing on the infant's distress and eventual recovery from it.

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Attitudes toward prenatal diagnosis, termination of pregnancy, and reproduction by parents of children with nonsyndromic oral clefts in Argentina

Abstract: Most respondents do not perceive oral clefts as a severe condition. Parents would not choose to terminate the pregnancy over delivery of such an affected newborn.

Cited by 37 publications

References 23 publications

Attitudes of pregnant women and mothers of children with orofacial clefts toward prenatal diagnosis of nonsyndromic orofacial clefts in a semiurban set-up in India

Attitudes of pregnant women and mothers of children with orofacial clefts toward prenatal diagnosis of nonsyndromic orofacial clefts in a semiurban set-up in India

Prenatal Screening and Counseling in Iran and Ethical Dilemmas

Relationships between parents and children with labio-palatal clefts: the importance of a delay preceding the first surgical repair

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