Attitudes, Values, and Questions of African Americans Regarding Participation in Hospice Programs

Taxis, J. Carole

doi:10.1097/00129191-200603000-00011

Cited by 37 publications

(50 citation statements)

References 20 publications

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“…1,2 On the other hand, patients may limit disclosure of their diagnosis and prognosis for fear of being perceived as a burden, that talking about the illness and life expectancy may hasten death or lead to a loss of social support. 1,2,24 Some participants freely disclosed their diagnosis, and others chose to reveal the diagnosis only to close family members. A participant who was not enrolled in hospice freely shared her diagnosis with people who asked about her life.…”

Section: Communication About Eol Decisions and Disclosure Of Diagnosismentioning

confidence: 99%

“…Many African American communities find that hospice's tenet of embracing death as a natural occurrence is philosophically incompatible with faith in God's omnipotence and the desire to "affirm life at all costs." [1][2][3] This body of literature provides valuable information about the utilization of hospice by African Americans; however it does not fully describe factors that might impact decision making.…”

Section: Introductionmentioning

confidence: 99%

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Factors That Impact End-of-Life Decision Making in African Americans With Advanced Cancer

Campbell¹,

Williams²,

Orr³

2010

Journal of Hospice & Palliative Nursing

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Significance-African Americans with cancer are less likely to use hospice services and more likely to die in the hospital than white patients with the same diagnosis. However, there is much that is not understood about the factors that lead African Americans to choose options for end-oflife care.Design-A qualitative, descriptive design was used in this pilot study.Methods-Interviews were conducted with two groups of African Americans with advancedstage cancer (people enrolled in hospice and those who were not under hospice care).Findings-End-of-life decisions were primarily guided by clinical factors, the patient-related physical, emotional, and cognitive symptoms that are sequelae of the underlying disease or medical treatments. The physician was the healthcare provider most likely to be involved in decision making with patients, family members, and caregivers. Individual factors, such as personal beliefs, influenced end-of-life decision making. Religion and spirituality were a topic in many interviews, but they did not consistently influence decision making.Discussion-Future studies should include interviews with family members, caregivers, and healthcare professionals so that factors that impact end-of-life decision making can be fully described. Strategies to facilitate recruitment will need to be added to future protocols.

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Section: Communication About Eol Decisions and Disclosure Of Diagnosismentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Factors That Impact End-of-Life Decision Making in African Americans With Advanced Cancer

Campbell¹,

Williams²,

Orr³

2010

Journal of Hospice & Palliative Nursing

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“…It is considered that the decision to end or not to end the life of a loved one is not a decision to be made by human beings; consequently, Africans may decide to keep a loved one on life support as long as it takes as it is considered a moral obligation to do so. 38 For instance, although we were unable to find related Australian studies, Taxis 39 points out that African American culture emphasises living and prolonging life, whereas the traditional Western approach favours helping people plan for and cope with eventual death. This study also reported that African Americans are more likely to keep a person on a life support longer.…”

Section: Sense Of Sacredness Of Life and Religionmentioning

confidence: 88%

End-of-life experiences and expectations of Africans in Australia

Hiruy

Mwanri

2013

Nurs Ethics

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The ageing and frail migrants who are at the end of life are an increasing share of migrants living in Australia. However, within such populations, information about end-of-life experiences is limited, particularly among Africans. This article provides some insights into the sociocultural end-of-life experiences of Africans in Australia and their interaction with the health services in general and end-oflife care in particular. It provides points for discussion to consider ethical framework that include Afrocommunitarian ethical principles to enhance the capacity of current health services to provide culturally appropriate and ethical care. This article contributes to our knowledge regarding the provision of culturally appropriate and ethical care to African patients and their families by enabling the learning of health service providers to improve the competence of palliative care systems and professionals in Australia. Additionally, it initi-ates the discussion to highlight the importance of paying sufficient attention to diverse range of factors including the migration history when providing palliative and hospice care for patients from African migrant populations.

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“…Although various governing agencies for palliative care have what appear to be sufficient standards of care that address cultural, psychosocial, and religious issues, to name but a few, there is evidence that those needs are still not being met satisfactorily at both individual and family levels (Connor et al, 2004;NCP, 2004;Lorenz et al, 2004). But which side of the patient-provider relationship is most responsible for the continuation of these disparities appears to be confusing, since arguments and justifications can be legitimized almost equally when taken into their objective context (Blackhall et al, 1995(Blackhall et al, ,1999Taxis, 2006). The only argument that cannot ever be legitimized is outright discrimination, which does appear to be the single barrier most faced by patients and their families by the providers at all levels (Fiscella and Franks, 1999;Asch et al, 2006).…”

Section: Caselmentioning

confidence: 99%

“…Some may see his actions as having a devout respect for the sanctity of life which is not uncommon in this community. But those actions could be a direct result of years of discrimination and racism, especially at the hands of science as reported by several studies (Taxis, 2006). When his doctor attempted to be less formal.…”

Section: Casementioning

confidence: 99%

To the Bitter End: Disparities in End-of-Life Care

Coustasse

Quiroz

Lurie

2008

Journal of Hospital Marketing & Public Relations

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Although technological advancements have provided the means to sustain life and provide care regardless of whether the treatment is appropriate and compassionate given the condition of the patient, bioethical, legal, and moral concerns related to disparities in care still arise in the United States. These concerns call into question the necessity to continue life-sustaining or palliative care treatments when patients and/or families are faced with end-of-life decisions. This study will focus on various historical, clinical cultural, and ethical issues that have placed this dilemma into a controversial public spectrum, by using case studies retrieved from referenced literature, which illustrate disparities in care at the end of life.

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Attitudes, Values, and Questions of African Americans Regarding Participation in Hospice Programs

Cited by 37 publications

References 20 publications

Factors That Impact End-of-Life Decision Making in African Americans With Advanced Cancer

Factors That Impact End-of-Life Decision Making in African Americans With Advanced Cancer

End-of-life experiences and expectations of Africans in Australia

To the Bitter End: Disparities in End-of-Life Care

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